Coalition For Usher Syndrome Research

EIN: 264560897 501(c)(3) Health Care

Westford, MA

Total Revenue
$250,204
Total Expenses
$284,874
Total Assets
$240,348
Net Assets
$238,761
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2009
Legal Domicile
MA
Principal Officer
Lanya McKittrick
Phone
8009469203
Tax Period
2023-01-01 to 2023-12-31

Coalition For Usher Syndrome Research, founded in 2009, is a small nonprofit in the Health Care sector that reported $250K in total revenue in fiscal year 2023. Revenue fell 50% from the prior year — a significant decline worth monitoring. Expenses of $285K exceeded revenue, resulting in a 14% operating deficit.

Mission

To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $221,199
Program Service Revenue $29,003
Investment Income $2
Other Revenue $0
TOTAL REVENUE $250,204

Expense Breakdown

Grants Paid $0
Salaries & Benefits $202,658
Fundraising Expenses $0
Program Expenses $227,835
Other Expenses $82,216
TOTAL EXPENSES $284,874

Year-over-Year Comparison

2023 2022 Change
Revenue $250,204 $502,883 -0.5%
Expenses $284,874 $415,751 -0.3%
Net Income $-34,670 $87,132 -1.4%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
12
Independent Members
12
Employees
3
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$72,497
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Krista Vasi Executive Director 040.00
Officer
$72,497 $0 $72,497
Lanya McKittrick PhD President 002.00
Officer Director
$0 $0 $0
David Alexander Director 001.00
Director
$0 $0 $0
Danay Trest Director 001.00
Director
$0 $0 $0
Kathy Anamisis Director 001.00
Director
$0 $0 $0
Margaret Kenna MD MPH Director 001.00
Director
$0 $0 $0
Monte Westerfield PhD Director 001.00
Director
$0 $0 $0
Nancy Corderman Director 002.00
Director
$0 $0 $0
Tara Bowman Secretary 001.00
Officer Director
$0 $0 $0
Jennifer J Lentz PhD Director 001.00
Director
$0 $0 $0
Steve Mason Treasurer 001.00
Officer Director
$0 $0 $0
Steven McCoy Director 001.00
Director
$0 $0 $0
Eric Wagner PhD Director 001.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $250,204 $284,874 $240,348 $-34,670
2022 $502,883 $415,751 $286,985 $87,132
2020 $236,754 $172,747 $199,232 $64,007
2019 $280,060 $269,821 $135,663 $10,239
2018 $199,273 $182,902 $125,293 $16,371
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