COALITION FOR USHER SYNDROME RESEARCH

EIN: 264560897 501(c)(3) Health Care

WESTFORD, MA

Total Revenue
$416,783
Total Expenses
$360,200
Total Assets
$238,700
Net Assets
$237,427
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2009
Legal Domicile
MA
Principal Officer
KRISTA VASI
Phone
8009469203
Tax Period
2025-01-01 to 2025-12-31

COALITION FOR USHER SYNDROME RESEARCH, founded in 2009, is a small nonprofit in the Health Care sector that reported $417K in total revenue in fiscal year 2025. Revenue grew 10% year-over-year, indicating healthy expansion. Expenses of $360K left a modest 14% surplus.

Mission

TO RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON GENETIC CAUSE OF COMBINED DEAFNESS AND BLINDNESS, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS WITH USHER SYNDROME.

Program Service Accomplishments

Program 1
Expenses: $307,473 Revenue: $14,931

THE ORGANIZATION RAISES AWARENESS AND ACCELERATES RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNES, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES WITH USHER...

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THE ORGANIZATION RAISES AWARENESS AND ACCELERATES RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNES, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES WITH USHER SYNDROME. THIS IS ACCOMPLISHED THROUGH THEIR CONNECTIONS CONFERENCE WHERE ATTENDEES HAVE THE OPPORTUNITY TO LEARN THE LATEST ON DEVELOPING TREATMENTS WHILE CONNECTING WITH OTHER AFFECTED INDIVIDUALS AND FAMILIES. THE ORGANIZATION PROVIDES INFORMATION AND RESOURCES THROUGH WEBSITE, WEBINARS, ETC. THE ORGANIZATION ADVOCATES FOR INCREASED FEDERAL FUNDING FOR RESEARCH AND HELPS COLLECT DATA TO ACCELERATE RESEARCH. THE ORGANIZATION ALSO CONNECTS OTHERS AFFECTED BY USHER SYNDROME TO HELP PROVIDE A COMMUNITY FORM THEM AND THEIR FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $400,646
Program Service Revenue $14,931
Investment Income $663
Other Revenue $543
TOTAL REVENUE $416,783

Expense Breakdown

Grants Paid $1,700
Salaries & Benefits $250,904
Fundraising Expenses $0
Program Expenses $307,473
Other Expenses $107,596
TOTAL EXPENSES $360,200

Year-over-Year Comparison

2025 2024 Change
Revenue $416,783 $378,430 +0.1%
Expenses $360,200 $436,862 -0.2%
Net Income $56,583 $-58,432 -2.0%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
10
Independent Members
9
Employees
3
Volunteers
100

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$93,682
Total Directors
10
$93,682
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KRISTA VASI EXECUTIVE DI 40.00
Officer Director
$93,682 $0 $93,682
KATHY ANAMISIS DIRECTOR 1.00
Director
$0 $0 $0
TARA BOWMAN DIRECTOR 1.00
Director
$0 $0 $0
NANCY CORDERMAN DIRECTOR 2.00
Director
$0 $0 $0
SARAH JORDAN DIRECTOR 2.00
Director
$0 $0 $0
STEVE MASON TREASURER 1.00
Officer Director
$0 $0 $0
JENNIFER J LENTZ PHD DIRECTOR 1.00
Director
$0 $0 $0
MONTE WESTERFIELD PHD DIRECTOR 1.00
Director
$0 $0 $0
DANAY TREST DIRECTOR 1.00
Director
$0 $0 $0
SARAH TURNER DIRECTOR 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $416,783 $360,200 $238,700 $56,583
2024 No data No data No data No data
2023 $250,204 $284,874 $240,348 $-34,670
2022 $502,883 $415,751 $286,985 $87,132
2020 $236,754 $172,747 $199,232 $64,007
2019 $280,060 $269,821 $135,663 $10,239
2018 $199,273 $182,902 $125,293 $16,371
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