THE FIBROLAMELLAR CANCER FOUNDATION

EIN: 270341021 501(c)(3) Diseases & Disorders

GREENWICH, CT

Total Revenue
$2,960,135
Total Expenses
$5,485,040
Total Assets
$10,499,605
Net Assets
$6,401,759
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2009
Legal Domicile
DE
Principal Officer
KURT LOSERT
Phone
2033407800
Tax Period
2023-01-01 to 2023-12-31

THE FIBROLAMELLAR CANCER FOUNDATION, founded in 2009, is a community nonprofit in the Diseases & Disorders sector that reported $3.0M in total revenue in fiscal year 2023. Revenue fell 51% from the prior year — a significant decline worth monitoring. Expenses of $5.5M exceeded revenue, resulting in a 85% operating deficit.

Mission

FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,241,100
Program Service Revenue $0
Investment Income $719,035
Other Revenue $0
TOTAL REVENUE $2,960,135

Expense Breakdown

Grants Paid $4,235,649
Salaries & Benefits $751,053
Fundraising Expenses $14,012
Program Expenses $5,033,613
Other Expenses $498,338
TOTAL EXPENSES $5,485,040

Year-over-Year Comparison

2023 2022 Change
Revenue $2,960,135 $6,076,635 -0.5%
Expenses $5,485,040 $2,563,688 +1.1%
Net Income $-2,524,905 $3,512,947 -1.7%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
12
Independent Members
10
Employees
5
Volunteers
50

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$279,981
Total Directors
12
$279,981
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
MARNA O DAVIS CO-CHAIRPERSON 25.00
Officer Director
$0 $0 $0
CHARLES W BEERMANN DIRECTOR 1.00
Director
$0 $0 $0
DEREK GILCHRIST DIRECTOR, SECRETARY 2.00
Officer Director
$0 $0 $0
ANNE ADLER DIRECTOR 25.00
Director
$0 $0 $0
JOHN CRAIG DIRECTOR 1.00
Director
$0 $0 $0
TAL FRIEDMAN DIRECTOR 1.00
Director
$0 $0 $0
CHARLES A DAVIS CO-CHAIRPERSON 1.00
Officer Director
$0 $0 $0
LESLIE GRAVES TREASURER 1.00
Officer Director
$0 $0 $0
CRAIG MARTIN DIRECTOR 1.00
Director
$0 $0 $0
KURT LOSERT CEO 40.00
Officer Director
$273,188 $6,793 $279,981
DAVID WERMUTH DIRECTOR 1.00
Director
$0 $0 $0
GUY LEVY DIRECTOR 1.00
Director
$0 $0 $0
DR MARK FURTH SCIENTIFIC DIRECTOR 40.00
Highest
$159,650 $6,777 $166,427
JOHN HOPPER DIRECTOR(RETIRED 05/23) 1.00
$88,718 $3,711 $92,429
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $2,960,135 $5,485,040 $10,499,605 $-2,524,905
2022 $6,076,635 $2,563,688 $10,981,422 $3,512,947
2021 $4,041,093 $1,865,036 $7,664,472 $2,176,057
2020 $1,841,395 $2,741,615 $5,395,682 $-900,220
2019 $1,772,024 $1,757,184 $5,019,229 $14,840
2018 $1,712,900 $1,073,035 $4,969,117 $639,865
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