DRAVET SYNDROME FOUNDATION INC

EIN: 270924627 501(c)(3) Philanthropy & Grantmaking

Cherry Hill, NJ

Total Revenue
$4,221,622
Total Expenses
$4,259,172
Total Assets
$8,536,916
Net Assets
$6,976,053
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2009
Legal Domicile
CT
Principal Officer
Ross Nicholas
Phone
2033921955
Tax Period
2024-01-01 to 2024-12-31

DRAVET SYNDROME FOUNDATION INC, founded in 2009, is a community nonprofit in the Philanthropy & Grantmaking sector that reported $4.2M in total revenue in fiscal year 2024. Revenue surged 30% from the prior year, signaling strong growth momentum.

Mission

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,106,931
Program Service Revenue $734,789
Investment Income $304,376
Other Revenue $75,526
TOTAL REVENUE $4,221,622

Expense Breakdown

Grants Paid $2,509,120
Salaries & Benefits $841,275
Fundraising Expenses $237,361
Program Expenses $3,602,910
Other Expenses $908,777
TOTAL EXPENSES $4,259,172

Year-over-Year Comparison

2024 2023 Change
Revenue $4,221,622 $3,257,096 +0.3%
Expenses $4,259,172 $2,163,052 +1.0%
Net Income $-37,550 $1,094,044 -1.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
9
Independent Members
9
Employees
13
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$281,452
Total Directors
10
$0
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Mary Anne Meskis Executive Director 40
Officer
$172,586 $0 $172,586
Veronica Hood Scientific Director 40
Highest
$165,459 $0 $165,459
Jamie Cohen Finance & Program Director 40
Officer
$108,866 $0 $108,866
Ted Odlaug PhD President 1
Officer Director
$0 $0 $0
Ross Nicholas Vice President 1
Officer Director
$0 $0 $0
Claire Carey Secretary 1
Officer Director
$0 $0 $0
Josh Goldman Treasurer 1
Officer Director
$0 $0 $0
Nathan Batt Trustee 1
Director
$0 $0 $0
Ashley Kerns Trustee 1
Director
$0 $0 $0
Joseph Sullivan MD Trustee 1
Director
$0 $0 $0
Bill Kirshner Trustee 1
Director
$0 $0 $0
Gail Farfel Trustee 1
Director
$0 $0 $0
Amanda Prather Trustee 1
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $4,221,622 $4,259,172 $8,536,916 $-37,550
2023 $3,257,096 $2,163,052 $7,509,902 $1,094,044
2022 $2,515,782 $2,028,839 $6,249,148 $486,943
2021 $2,186,012 $1,265,323 $5,918,927 $920,689
2020 $1,964,117 $921,735 $4,882,989 $1,042,382
2019 $2,030,205 $1,162,133 $3,618,355 $868,072
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