EB RESEARCH PARTNERSHIP INC

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

2010

Legal Domicile

Principal Officer

MICHAEL HUND

Phone

6468440902

Tax Period

2024-01-01 to 2024-12-31

EB RESEARCH PARTNERSHIP INC, founded in 2010, is a community nonprofit in the Diseases & Disorders sector that reported $5.5M in total revenue in fiscal year 2024. Revenue fell 26% from the prior year — a significant decline worth monitoring. Expenses of $7.2M exceeded revenue, resulting in a 30% operating deficit.

Mission

EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.

Program Service Accomplishments

Program 1

Expenses: $5,261,143

GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH...

GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $5,491,713

Program Service Revenue $0

Investment Income $468,161

Other Revenue $-441,638

TOTAL REVENUE $5,518,236

Expense Breakdown

Grants Paid $4,699,297

Salaries & Benefits $995,190

Fundraising Expenses $1,493,358

Program Expenses $5,261,143

Other Expenses $1,500,044

TOTAL EXPENSES $7,194,531

Year-over-Year Comparison

	2024	2023	Change
Revenue	$5,518,236	$7,430,625	-0.3%
Expenses	$7,194,531	$7,652,304	-0.1%
Net Income	$-1,676,295	$-221,679	+6.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$466,331

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
JILL VEDDER	CHAIRPERSON	5.00	Officer Director	$0	$0	$0
NATHAN BURMEISTER	DIRECTOR	1.00	Director	$0	$0	$0
ARI DESHE	VICE CHAIRMAN	1.00	Officer Director	$0	$0	$0
CHAD CERETTO	DIRECTOR	1.00	Director	$0	$0	$0
DANIEL DESHE	DIRECTOR	1.00	Director	$0	$0	$0
RIC FIRTH	DIRECTOR	1.00	Director	$0	$0	$0
COREY GRAY	DIRECTOR	1.00	Director	$0	$0	$0
JENNIFER KAUF	SECRETARY	1.00	Officer Director	$0	$0	$0
EMILY KUBIK	TREASURER	1.00	Officer Director	$0	$0	$0
FAYE DILGEN	DIRECTOR	1.00	Director	$0	$0	$0
GREG LICHOLAI	DIRECTOR	1.00	Director	$0	$0	$0
ED VEDDER	DIRECTOR	1.00	Director	$0	$0	$0
TRACY BALDWIN	DIRECTOR	1.00	Director	$0	$0	$0
MICHAEL SACKS	DIRECTOR	1.00	Director	$0	$0	$0
MARC SEIDNER	DIRECTOR	1.00	Director	$0	$0	$0
MICHAEL PATRICK HUND	CEO	60.00	Officer	$466,331	$0	$466,331
IMANI RIBADENEYRA	CHIEF MARKETING OFFICER	40.00	Highest	$218,812	$13,732	$232,544
ALLISON MCGETTIGAN	COMMUNICATIONS & OPERATIONS DIRECTOR	40.00	Highest	$117,138	$0	$117,138

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$5,518,236	$7,194,531	$22,929,761	$-1,676,295
2023	$7,430,625	$7,652,304	$24,668,019	$-221,679
2022	$6,450,445	$7,021,827	$22,585,702	$-571,382
2021	$7,736,054	$4,062,520	$20,862,871	$3,673,534
2020	$4,844,748	$4,608,812	$16,447,931	$235,936
2019	$8,107,482	$3,811,980	$16,108,085	$4,295,502
2018	$5,363,294	$3,388,586	$11,185,681	$1,974,708