ADNP KIDS RESEARCH FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2016

Legal Domicile

Phone

3608313069

Tax Period

2023-06-01 to 2024-05-31

ADNP KIDS RESEARCH FOUNDATION, founded in 2016, is a community nonprofit in the Medical Research sector that reported $1.1M in total revenue in fiscal year 2023. Revenue surged 609% from the prior year, signaling strong growth momentum.

Mission

Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome.

Program Service Accomplishments

Program 1

Expenses: $1,042,794 Revenue: $0

UC Davis and MIND Institute research funding for gene therapy. Research and development investigating three 3 different gene therapy approaches in cells neurons and mouse model characterization...

UC Davis and MIND Institute research funding for gene therapy. Research and development investigating three 3 different gene therapy approaches in cells neurons and mouse model characterization including EEG and biomarker investigations. Three approaches to move forward with an AAV as the top program.

Program 2

Expenses: $37,500 Revenue: $0

RareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT

Program 3

Expenses: $26,000 Revenue: $0

Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput...

Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,121,205

Program Service Revenue $0

Investment Income $0

Other Revenue $0

TOTAL REVENUE $1,121,205

Expense Breakdown

Grants Paid $1,106,294

Salaries & Benefits $0

Fundraising Expenses $0

Program Expenses $1,127,444

Other Expenses $24,833

TOTAL EXPENSES $1,131,127

Year-over-Year Comparison

	2023	2022	Change
Revenue	$1,121,205	$158,160	+6.1%
Expenses	$1,131,127	$87,757	+11.9%
Net Income	$-9,922	$70,403	-1.1%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Sandra Sermone	President	30.00	Officer	$0	$0	$0
Genie Egerton-Warburton	Vice President	0.50	Officer	$0	$0	$0
Tim Mosier	Treasurer	0.25	Officer	$0	$0	$0
Debbie Abraham	Secretary	0.25	Officer	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,121,205	$1,131,127	$428,086	$-9,922
2023	$158,160	$87,757	$438,008	$70,403
2022	$1,145,983	$949,961	$367,605	$196,022