The LAM Foundation

EIN: 311438001 501(c)(3) Philanthropy & Grantmaking

Cincinnati, OH

Total Revenue
$1,922,410
Total Expenses
$1,592,763
Total Assets
$2,870,285
Net Assets
$2,579,224
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1995
Legal Domicile
OH
Phone
5137776889
Tax Period
2024-01-01 to 2024-12-31

The LAM Foundation, founded in 1995, is a community nonprofit in the Philanthropy & Grantmaking sector that reported $1.9M in total revenue in fiscal year 2024. Revenue surged 32% from the prior year, signaling strong growth momentum. The organization ran a surplus of $330K, a strong 17% operating margin.

Mission

The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM.

Program Service Accomplishments

Program 1
Expenses: $676,813

Research Costs The LAM Foundation awarded $424,603 to fund five new research projects in 2024. The Foundation continued to fund eight active grants which had been approved in prior years. The LAM...

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Research Costs The LAM Foundation awarded $424,603 to fund five new research projects in 2024. The Foundation continued to fund eight active grants which had been approved in prior years. The LAM Patient Research Priorities (LAM PREP) survey collected more than 750 responses from patients, their loved ones, scientists and clinicians. The LAM Foundation Early Career Network (TEN) met on three occasions providing a unique environment for young investigators to discuss their LAM research and career goals.

Program 2
Expenses: $391,703

Patient Services In collaboration with our LAM clinic directors, liaisons and scientists we offered 34 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social...

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Patient Services In collaboration with our LAM clinic directors, liaisons and scientists we offered 34 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. More than 1,000 members of our global community attended our virtual events, and the recorded presentation received over 5700 viewings, further spreading LAM education and awareness around the globe. More than 255 individuals registered with the Foundation. Nine Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in more than 38 tissue samples to further LAM research.

Program 3
Expenses: $86,226

Clinical The LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added one clinic in 2024: Oslo, Norway. The LAM...

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Clinical The LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added one clinic in 2024: Oslo, Norway. The LAM Foundation hosted more than 50 members of the LAM Clinic and Research Network at the LAM Foundation luncheon at the ATS Conference in San Diego, CA.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,811,620
Program Service Revenue $0
Investment Income $102,577
Other Revenue $8,213
TOTAL REVENUE $1,922,410

Expense Breakdown

Grants Paid $339,630
Salaries & Benefits $550,207
Fundraising Expenses $242,147
Program Expenses $1,154,742
Other Expenses $702,926
TOTAL EXPENSES $1,592,763

Year-over-Year Comparison

2024 2023 Change
Revenue $1,922,410 $1,455,589 +0.3%
Expenses $1,592,763 $1,803,072 -0.1%
Net Income $329,647 $-347,483 -1.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
13
Independent Members
13
Employees
8
Volunteers
150

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$0
Total Directors
13
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Vera Krymskaya PhD Vice Chair 1.00
Officer Director
$0 $0 $0
Andrew Romanosky Treasurer 1.00
Officer Director
$0 $0 $0
Greg Downey MD Director 1.00
Director
$0 $0 $0
Dan Dilling MD Director 1.00
Director
$0 $0 $0
Pat Venters Director 1.00
Director
$0 $0 $0
Stephanie Nemser-Dreyer Vice Chair 1.00
Officer Director
$0 $0 $0
Chuck Wehland Chairman 1.00
Officer Director
$0 $0 $0
Dr Lyndsay Hoy Vice Chair 1.00
Officer Director
$0 $0 $0
Eden Pontz Secretary 1.00
Officer Director
$0 $0 $0
Stephanie Hammes MD PcD Director 1.00
Director
$0 $0 $0
Christine Krueger Director 1.00
Director
$0 $0 $0
Andrea Slattery Vice Chair 1.00
Officer Director
$0 $0 $0
Kaela Varberg Director 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $1,922,410 $1,592,763 $2,870,285 $329,647
2023 $1,455,589 $1,803,072 $2,596,985 $-347,483
2022 $1,571,673 $1,873,408 $2,903,030 $-301,735
2021 $2,209,585 $1,346,515 $3,219,008 $863,070
2020 $1,815,339 $1,611,773 $2,357,161 $203,566
2019 $1,389,662 $1,524,952 $2,217,979 $-135,290
2018 $1,849,309 $1,745,000 $2,350,912 $104,309
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