SOUTHWESTERN OHIO HEMOPHILIA FOUNDATION

IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY HEMOPHILIA, VON WILLEBRAND DISEASE, AND OTHER BLEEDING DISORDERS BY PROVIDING SUPPORT, EDUCATION, NETWORKING, ADVOCACY AND SERVICES TO INDIVIDUALS, THEIR FAMILIES AND THE COMMUNITY

PROGRAM ACTIVITIES INCLUDE AN ANNUAL BUSINESS MEETING WITH REVIEW OF FINANCIAL REPORTS, A BOARD PRESIDENT REPORT TO THE ORGANIZATION, AN UPDATE AND ASK-THE-DOC FORUM FROM THE DAYTON CHILDREN'S HEMOPHILIA TREATMENT CENTER PHYSICIAN. WE SERVED OVER 115 INDIVIDUALS AT THIS EVENT. THIS MEETING ALSO RECOGNIZES OUR EVENT VOLUNTEERS (TOTAL 22 IN 2025). IN THE SUMMER, WE PRESENTED OUR ANNUAL FAMILY FEST AT A DOWNTOWN DAYTON EVENT VENUE WITH INCREASED FAMILY PARTICIPATION. THIS IS A FAMILY-CENTERED WEEKEND FILLED WITH EDUCATIONAL SEMINARS, INSPIRATIONAL SPEAKERS AND FAMILY ACTIVITES. WE SERVED 26 FAMILIES (OVER 100 INDIVIDUALS) AT THIS EVENT. FALL OUTING IS A PROGRAM THAT ENCOURAGES NETWORKING, COMMUNICATION AND CONNECTION IN CONTEXT OF FUN FAMILY ACTIVITIES. WE SERVED 35 FAMILIES (OVER 220 INDIVIDUALS) AT THIS EVENT, PROVIDING UPDATES ON RECENT ADVANCEMENTS IN CARE AND TREATMENT OF BLEEDING DISORDERS, AS WELL AS NEW THERAPIES / RESOURCES. IN THE FALL, WE ALSO PRESENTED A ONE-DAY WOMEN'S WORKSHOP TO PROVIDE A FUN, RELAXED NETWORKING OPPORTUNITY AND REINFORCE THE IMPORTANCE OF SELF-CARE AND FRIENDSHIPS AMONG OVER 40 WOMEN PATIENTS / CAREGIVERS WHO ATTENDED. LASTLY IN 2025, IN COOPERATION WITH THE DAYTON CHILDREN'S HTC, WE SENT A SPECIAL MAILING TO NEWLY DIAGNOSED FAMILIES. THE PURPOSE OF THE PROGRAM WAS TO PROVIDE INFORMATION ABOUT SWOHF PROGRAMS AND SUPPORT. ADDITIONALLY, WE COLLABORATED WITH THE HTC TO PROVIDE PERIOD PACKS (FEMININE HYGIENE PRODUCTS) FOR YOUNG FEMALE PATIENTS. THIS PROGRAM BENEFITS THOSE INDIVIDUALS AS THEY NAVIGATE THE CHALLENGES OF LIVING WITH A BLEEDING DISORDER DIAGNOSIS.