Cincinnati, OH
4 risk indicators measuring financial stability and operational resilience
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Sign In — Free (10 views/day)International Rett Syndrome Foundation, founded in 1999, is a community nonprofit in the Medical Research sector that reported $4.8M in total revenue in fiscal year 2024. Expenses of $5.5M exceeded revenue, resulting in a 15% operating deficit.
To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Our commitment to finding treatments and a cure for Rett syndrome compels us to advance cutting edge research. Through our research programs we fund basic, translational grants throughout the world...
Our commitment to finding treatments and a cure for Rett syndrome compels us to advance cutting edge research. Through our research programs we fund basic, translational grants throughout the world. We fund post-doctoral researchers, host science symposia to allow for discussions and networking of the world's Rett experts. We fund compound development directly through financial support of high throughput screening systems as well as financially supporting clinical trials. We actively support a clinical research network that develops care guidelines and contributes to a data registry that builds upon the NHS funded Natural History Study, and aims to continue to deepen our understanding of Rett syndrome and support drug development.
We empower families through our robust educational programming, consisting of free monthly webinars covering health care topics of interest to families, as well as 4 in-person regional education...
We empower families through our robust educational programming, consisting of free monthly webinars covering health care topics of interest to families, as well as 4 in-person regional education days. We provide 24/7/365 access to 2 staff members who are devoted to family engagement. We provide educational materials for families, caregivers, schools and therapists. We advocate to federal officials, keeping Rett syndrome on the list of funding priorities. We work with industry in the design of clinical trials, ensuring the clinical trial environment is family centered. We support a network of clinics in North America that is building guidelines for clinical care, making those guidelines available to families as they work with their child's care team, ensuring they are receiving appropriate care.
Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency
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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)
Sign In — Free (10 views/day)| 2024 | 2023 | Change | |
|---|---|---|---|
| Revenue | $4,813,748 | $4,855,820 | 0.0% |
| Expenses | $5,531,022 | $3,723,772 | +0.5% |
| Net Income | $-717,274 | $1,132,048 | -1.6% |
Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics
Financial Distress Indicator
Liquidity & Cash Position
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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics
Sign In| Name | Title | Hours/Week | Role | Reportable Comp | Other Comp | Total |
|---|---|---|---|---|---|---|
| Jospeh Horrigan MD | Trustee | 0.50 |
Director
|
$0 | $0 | $0 |
| Lisa Monteggia PhD | Trustee | 0.50 |
Director
|
$0 | $0 | $0 |
| David Pass PharmD | Chairman | 1.00 |
Officer
Director
|
$0 | $0 | $0 |
| Mitch Bleske | Treasurer | 1.00 |
Officer
Director
|
$0 | $0 | $0 |
| Gordon Rich | Founding Seat - Non Voting | 0.50 |
Officer
Director
|
$0 | $0 | $0 |
| Alan Shukovsky | Trustee | 0.50 |
Director
|
$0 | $0 | $0 |
| Leslie Mehta Esq | Interim Chief Executive Officer | 0.50 |
Officer
Director
|
$5,208 | $0 | $5,208 |
| Mary Forrest Engel | Trustee | 0.50 |
Director
|
$0 | $0 | $0 |
| Steve Wood | Vice Chairman | 0.50 |
Officer
Director
|
$0 | $0 | $0 |
| Laura Stoppel PhD | Trustee | 0.50 |
Director
|
$0 | $0 | $0 |
| Parthy Evans | Trustee - Start 07/24 | 0.50 |
Director
|
$0 | $0 | $0 |
| Steve Marconi CPA | Trustee - Start 07/24 | 0.50 |
Director
|
$0 | $0 | $0 |
| Melissa Kennedy - Exit 1224 | Chief Executive Officer | 40.00 |
Officer
|
$186,940 | $2,279 | $189,219 |
| Nupur Garg | VP of Research | 40.00 |
Highest
|
$187,300 | $7,384 | $194,684 |
| Timothy Frank | Development Director | 40.00 |
Highest
|
$116,466 | $2,264 | $118,730 |
| Meghan Cordeiro | Marketing & Communication Director | 40.00 |
Highest
|
$113,308 | $6,234 | $119,542 |
| Drew Jones | VP of Clinical Development | 40.00 |
Highest
|
$108,976 | $839 | $109,815 |
| Year | Revenue | Expenses | Assets | Net Income |
|---|---|---|---|---|
| 2024 | $4,813,748 | $5,531,022 | $5,325,567 | $-717,274 |
| 2023 | $4,855,820 | $3,723,772 | $6,263,405 | $1,132,048 |
| 2022 | $3,669,308 | $5,494,227 | $6,438,774 | $-1,824,919 |
| 2021 | $4,132,287 | $4,097,063 | $7,416,506 | $35,224 |
| 2020 | $3,850,950 | $2,465,808 | $6,281,992 | $1,385,142 |
| 2019 | $4,782,320 | $2,898,109 | $6,238,495 | $1,884,211 |
| 2018 | $3,648,554 | $3,606,274 | $5,507,933 | $42,280 |
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