International Rett Syndrome Foundation (EIN 311682518) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1999

Legal Domicile

Principal Officer

Melissa Kennedy

Phone

5138743020

Tax Period

2024-01-01 to 2024-12-31

International Rett Syndrome Foundation, founded in 1999, is a community nonprofit in the Medical Research sector that reported $4.8M in total revenue in fiscal year 2024. Expenses of $5.5M exceeded revenue, resulting in a 15% operating deficit.

Mission

To fund reseach aimed at potential cures for Rett syndrome and to empower families through education.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,808,219

Program Service Revenue $334,015

Investment Income $261,285

Other Revenue $410,229

TOTAL REVENUE $4,813,748

Expense Breakdown

Grants Paid $1,856,999

Salaries & Benefits $1,288,538

Fundraising Expenses $428,352

Program Expenses $4,761,006

Other Expenses $2,385,485

TOTAL EXPENSES $5,531,022

Year-over-Year Comparison

	2024	2023	Change
Revenue	$4,813,748	$4,855,820	0.0%
Expenses	$5,531,022	$3,723,772	+0.5%
Net Income	$-717,274	$1,132,048	-1.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

200

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$194,427

Total Directors

$5,208

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Jospeh Horrigan MD	Trustee	0.50	Director	$0	$0	$0
Lisa Monteggia PhD	Trustee	0.50	Director	$0	$0	$0
David Pass PharmD	Chairman	1.00	Officer Director	$0	$0	$0
Mitch Bleske	Treasurer	1.00	Officer Director	$0	$0	$0
Gordon Rich	Founding Seat - Non Voting	0.50	Officer Director	$0	$0	$0
Alan Shukovsky	Trustee	0.50	Director	$0	$0	$0
Leslie Mehta Esq	Interim Chief Executive Officer	0.50	Officer Director	$5,208	$0	$5,208
Mary Forrest Engel	Trustee	0.50	Director	$0	$0	$0
Steve Wood	Vice Chairman	0.50	Officer Director	$0	$0	$0
Laura Stoppel PhD	Trustee	0.50	Director	$0	$0	$0
Parthy Evans	Trustee - Start 07/24	0.50	Director	$0	$0	$0
Steve Marconi CPA	Trustee - Start 07/24	0.50	Director	$0	$0	$0
Melissa Kennedy - Exit 1224	Chief Executive Officer	40.00	Officer	$186,940	$2,279	$189,219
Nupur Garg	VP of Research	40.00	Highest	$187,300	$7,384	$194,684
Timothy Frank	Development Director	40.00	Highest	$116,466	$2,264	$118,730
Meghan Cordeiro	Marketing & Communication Director	40.00	Highest	$113,308	$6,234	$119,542
Drew Jones	VP of Clinical Development	40.00	Highest	$108,976	$839	$109,815

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$4,813,748	$5,531,022	$5,325,567	$-717,274
2023	$4,855,820	$3,723,772	$6,263,405	$1,132,048
2022	$3,669,308	$5,494,227	$6,438,774	$-1,824,919
2021	$4,132,287	$4,097,063	$7,416,506	$35,224
2020	$3,850,950	$2,465,808	$6,281,992	$1,385,142
2019	$4,782,320	$2,898,109	$6,238,495	$1,884,211
2018	$3,648,554	$3,606,274	$5,507,933	$42,280

International Rett Syndrome Foundation