CYSTINOSIS RESEARCH FOUNDATION (EIN 320067668) - Form 990 Financial Analysis & Trantor Score

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

2003

Legal Domicile

Phone

9492237610

Tax Period

2024-07-01 to 2025-06-30

CYSTINOSIS RESEARCH FOUNDATION, founded in 2003, is a community nonprofit in the Medical Research sector that reported $3.2M in total revenue in fiscal year 2024. Net assets of $7.5M represent 28 months of operating reserves.

Mission

Cystinosis Research Foundation's (CRF) mission is to support bench, clinical, and translational research to find better treatments and a cure for cystinosis. CRF is dedicated to funding research that will improve the quality of life for those with cystinosis and to find a cure for this devastating disease.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,445,467

Program Service Revenue $0

Investment Income $731,957

Other Revenue $0

TOTAL REVENUE $3,177,424

Expense Breakdown

Grants Paid $2,203,637

Salaries & Benefits $78,493

Fundraising Expenses $171,371

Program Expenses $3,072,586

Other Expenses $1,155,877

TOTAL EXPENSES $3,438,007

Year-over-Year Comparison

	2024	2023	Change
Revenue	$3,177,424	$3,187,305	0.0%
Expenses	$3,438,007	$4,157,212	-0.2%
Net Income	$-260,583	$-969,907	-0.7%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
NANCY J STACK	CHAIR - TRUSTEE	40.00	Officer Director	$0	$0	$0
GEOFFREY STACK	VICE CHAIR-TTEE	0.00	Officer Director	$0	$0	$0
DONALD L SOLSBY	TREASURER - TTE	2.00	Officer Director	$0	$0	$0
MARCU ALEXANDER	Trustee	0.00	Director	$0	$0	$0
STEPHANIE CHERQUI PHD	Trustee	0.00	Director	$0	$0	$0
BRUCE CRAIR	Trustee	0.00	Director	$0	$0	$0
JILL EMERSON CPA	Trustee	0.00	Director	$0	$0	$0
DENICE FLERCHINGER	Trustee	0.00	Director	$0	$0	$0
CLAY EMERSON PHD PE CFM	Trustee	0.00	Director	$0	$0	$0
ANGELA KIRCHOFF	Trustee	0.00	Director	$0	$0	$0
STEPHEN L JENKINS	Trustee	0.00	Director	$0	$0	$0
DAVID W MOSSMAN	Trustee	0.00	Director	$0	$0	$0
KEVIN PARTINGTON	Trustee	0.00	Director	$0	$0	$0
TERESA PARTINGTON	Trustee	0.00	Director	$0	$0	$0
KRISTEN MURRAY	Trustee	0.00	Director	$0	$0	$0
BRIAN STURGIS	Trustee	0.00	Director	$0	$0	$0
BARBARA KULYK	Trustee	0.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$3,177,424	$3,438,007	$10,029,960	$-260,583
2024	$3,187,305	$4,157,212	$10,415,384	$-969,907
2023	$3,244,975	$2,871,720	$10,305,666	$373,255
2022	$3,589,447	$3,072,713	$10,168,657	$516,734
2021	$3,809,513	$3,470,840	$10,349,578	$338,673
2020	$4,308,424	$3,362,690	$9,847,694	$945,734
2019	$5,402,719	$5,870,413	$9,691,493	$-467,694
2018	$4,655,704	$4,270,333	$9,121,015	$385,371

CYSTINOSIS RESEARCH FOUNDATION