NBIA Disorders Association

EIN: 330712327 501(c)(3) Medical Research

CYPRESS, TX

Total Revenue
$526,469
Total Expenses
$431,185
Total Assets
$1,061,655
Net Assets
$809,218
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1996
Legal Domicile
CA
Principal Officer
Amber Denton
Phone
8328356242
Tax Period
2024-10-01 to 2025-09-30

NBIA Disorders Association, founded in 1996, is a small nonprofit in the Medical Research sector that reported $526K in total revenue in fiscal year 2024. Revenue surged 118% from the prior year, signaling strong growth momentum. The organization ran a surplus of $95K, a strong 18% operating margin.

Mission

In our drive to find a cure for NBIA we provide support to families educate the public and accelerate research with collaborators from around the world.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $509,742
Program Service Revenue $0
Investment Income $16,727
Other Revenue $0
TOTAL REVENUE $526,469

Expense Breakdown

Grants Paid $110,635
Salaries & Benefits $145,627
Fundraising Expenses $8,831
Program Expenses $331,236
Other Expenses $174,923
TOTAL EXPENSES $431,185

Year-over-Year Comparison

2024 2023 Change
Revenue $526,469 $241,251 +1.2%
Expenses $431,185 $290,069 +0.5%
Net Income $95,284 $-48,818 -3.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
9
Independent Members
9
Employees
3
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$69,999
Total Directors
9
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Amber Denton President 40.00
Officer
$69,999 $0 $69,999
Carolyn Banik Treasurer 2.00
Officer Director
$0 $0 $0
Meg Talley Dyer Vice President 2.00
Officer Director
$0 $0 $0
Matthew Ritzman Secretary 2.00
Officer Director
$0 $0 $0
Sarah Doerr Trustee 2.00
Director
$0 $0 $0
Jeffrey Gartman Trustee 2.00
Director
$0 $0 $0
Vanessa Smith Trustee 2.00
Director
$0 $0 $0
Jennifer Sanchez Trustee 2.00
Director
$0 $0 $0
Jennifer Wildvank Trustee 2.00
Director
$0 $0 $0
Dr James Bourgeois Trustee 2.00
Director
$0 $0 $0
Patricia V Wood Former President 20.00
$30,357 $0 $30,357
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $526,469 $431,185 $1,061,655 $95,284
2024 $241,251 $290,069 $997,387 $-48,818
2023 $532,494 $428,286 $918,162 $104,208
2022 $276,389 $267,629 $846,663 $8,760
2021 $564,871 $285,400 $786,180 $279,471
2020 $231,050 $238,596 $477,142 $-7,546
2019 $315,788 $367,191 $538,549 $-51,403
2018 $361,690 $488,749 $619,259 $-127,059
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