National Spasmodic Torticollis

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2012

Legal Domicile

Principal Officer

Karen Frei MD

Phone

6575540661

Tax Period

2024-10-01 to 2025-09-30

National Spasmodic Torticollis, founded in 2012, is a micro nonprofit in the Diseases & Disorders sector that reported $55K in total revenue in fiscal year 2024. Revenue fell 22% from the prior year — a significant decline worth monitoring. Expenses of $231K exceeded revenue, resulting in a 324% operating deficit.

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

Program Service Accomplishments

Program 1

Expenses: $40,313

A two-day conference for patients with neurologists and specialists presenting information on spasmodic torticollis, with social activities. Symposium 2025

Program 2

Expenses: $11,333

People who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support.

Program 3

Expenses: $9,820 Revenue: $10,073

Hosted Three Fundraisers with the Parkinsons and Movement Disorder Foundation

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $54,557

Program Service Revenue $0

Investment Income $7

Other Revenue $0

TOTAL REVENUE $54,564

Expense Breakdown

Grants Paid $0

Salaries & Benefits $139,672

Fundraising Expenses $0

Program Expenses $70,352

Other Expenses $91,759

TOTAL EXPENSES $231,431

Year-over-Year Comparison

	2024	2023	Change
Revenue	$54,564	$69,741	-0.2%
Expenses	$231,431	$197,614	+0.2%
Net Income	$-176,867	$-127,873	+0.4%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Role	Reportable Comp	Other Comp	Total
Kenneth Price	President	Officer	$0	$0	$0
Karen Frei MD	Chariman	Officer	$0	$0	$0
Sandra Levine	Secretary	Officer	$0	$0	$0
Kenneth Price	Treasurer	Officer	$0	$0	$0
Justin Aquines	Treasurer	Officer Highest	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$54,564	$231,431	$94,045	$-176,867
2024	$69,741	$197,614	$270,912	$-127,873
2023	$436,033	$183,921	$398,785	$252,112
2022	$411,670	$183,502	$146,673	$228,168
2021	$77,423	$97,205	$-81,495	$-19,782
2020	$90,953	$72,678	$-61,713	$18,275
2019	$95,964	$88,687	$-79,988	$7,277