National Spasmodic Torticollis

EIN: 330879421 501(c)(3) Diseases & Disorders

Fountain Valley, CA

Total Revenue
$54,564
Total Expenses
$231,431
Total Assets
$94,045
Net Assets
$94,045
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2012
Legal Domicile
CA
Principal Officer
Karen Frei MD
Phone
6575540661
Tax Period
2024-10-01 to 2025-09-30

National Spasmodic Torticollis, founded in 2012, is a micro nonprofit in the Diseases & Disorders sector that reported $55K in total revenue in fiscal year 2024. Revenue fell 22% from the prior year — a significant decline worth monitoring. Expenses of $231K exceeded revenue, resulting in a 324% operating deficit.

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $54,557
Program Service Revenue $0
Investment Income $7
Other Revenue $0
TOTAL REVENUE $54,564

Expense Breakdown

Grants Paid $0
Salaries & Benefits $139,672
Fundraising Expenses $0
Program Expenses $70,352
Other Expenses $91,759
TOTAL EXPENSES $231,431

Year-over-Year Comparison

2024 2023 Change
Revenue $54,564 $69,741 -0.2%
Expenses $231,431 $197,614 +0.2%
Net Income $-176,867 $-127,873 +0.4%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
8
Independent Members
2
Employees
2
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$0
Total Directors
0
$0
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Kenneth Price President 0.00
Officer
$0 $0 $0
Karen Frei MD Chariman 0.00
Officer
$0 $0 $0
Sandra Levine Secretary 0.00
Officer
$0 $0 $0
Kenneth Price Treasurer 0.00
Officer
$0 $0 $0
Justin Aquines Treasurer 0.00
Officer Highest
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $54,564 $231,431 $94,045 $-176,867
2024 $69,741 $197,614 $270,912 $-127,873
2023 $436,033 $183,921 $398,785 $252,112
2022 $411,670 $183,502 $146,673 $228,168
2021 $77,423 $97,205 $-81,495 $-19,782
2020 $90,953 $72,678 $-61,713 $18,275
2019 $95,964 $88,687 $-79,988 $7,277
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