LUPUS FOUNDATION OF AMERICA GREATER OHIO CHAPTER

EIN: 341229407 501(c)(3)

BRECKSVILLE, OH

Total Revenue
$266,656
Total Expenses
$613,529
Total Assets
$258,695
Net Assets
$-16,012
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Financial Trends

Organization Details

Formation Year
1977
Legal Domicile
OH
Principal Officer
SUZANNE TIERNEY
Phone
4407170183
Tax Period
2023-10-01 to 2024-09-30

LUPUS FOUNDATION OF AMERICA GREATER OHIO CHAPTER, founded in 1977, is a small nonprofit that reported $267K in total revenue in fiscal year 2023. Revenue fell 67% from the prior year — a significant decline worth monitoring. Expenses of $614K exceeded revenue, resulting in a 130% operating deficit.

Mission

DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR ALL PEOPLE AFFECTED BY LUPUS THROUGH PROGRAMS OF RESEARCH, EDUCATION AND ADVOCACY. OUR VISION IS A WORLD WITHOUT LUPUS.

Program Service Accomplishments

Program 1
Expenses: $452,640

WE CONTINUE TO SERVE OVER 60,000 OHIOANS WITH LUPUS BY OFFERING EDUCATION, SUPPORT, AND RESOURCES TO HELP THEM MANAGE THEIR CONDITION. THE CONTINUED ADVANCEMENT IN NEW MEDICAL TREATMENTS AND A SURGE...

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WE CONTINUE TO SERVE OVER 60,000 OHIOANS WITH LUPUS BY OFFERING EDUCATION, SUPPORT, AND RESOURCES TO HELP THEM MANAGE THEIR CONDITION. THE CONTINUED ADVANCEMENT IN NEW MEDICAL TREATMENTS AND A SURGE OF RECENT LUPUS RESEARCH PROJECTS GIVE US ALL MUCH CAUSE FOR OPTIMISM ABOUT A BETTER TOMORROW AS WE CONTINUE TO BUILD AN ARSENAL OF NEW TREATMENTS FOR LUPUS. OUR ADVOCACY INITIATIVES HAVE BEEN FRUITFUL AT BOTH THE NATIONAL AND STATE LEVELS AS WE STRIVE TO KEEP FUNDING IN BUDGETS TO SUSTAIN THIS FIGHT AGAINST LUPUS. AS WE MAKE PROGRESS, PHARMACEUTICAL COMPANIES HAVE STEPPED UP TO SUPPORT ADVOCACY GROUPS LIKE OURS BY PROVIDING MATERIALS AND FUNDING FOR EDUCATION ON MANY FRONTS. WE REMAIN THE LEADING SOURCE OF THE LATEST AND MOST ACCURATE INFORMATION ABOUT LUPUS IN THE COUNTRY. HOWEVER, WE HAVE SEEN A DECREASE IN FUNDING FROM PHARMA GROUPS.

Program 2

MANY OF OUR OLD PROGRAMS HAVE NOW BEEN CONVERTED TO DIGITAL OR HYBRID. WE ARE STILL FINDING OUR WAY POST-COVID. OUR RECENT AWARENESS CAMPAIGNS HAVE GAINED MONUMENTAL TRAFFIC WITH "COULD YOU HAVE...

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MANY OF OUR OLD PROGRAMS HAVE NOW BEEN CONVERTED TO DIGITAL OR HYBRID. WE ARE STILL FINDING OUR WAY POST-COVID. OUR RECENT AWARENESS CAMPAIGNS HAVE GAINED MONUMENTAL TRAFFIC WITH "COULD YOU HAVE LUPUS" THOUSANDS HAVE TAKEN AN ONLINE TEST. WE KNOW THAT FOR THERE TO BE NO LUPUS EVERYONE MUST FIRST KNOW WHAT IT IS. WE STRIVE FOR THIS DAILY. OUR NAVIGATORS CONSTANTLY REACH OUT TO THE LUPUS COMMUNITY TO ENSURE THAT NEEDS ARE MET AND TO ENSURE THAT BARRIERS TO CARE CAN BE RESOLVED. CURRENT FUNDING WAS USED FOR MEDICATIONS, TRAVEL TO PHYSICIANS APPT., FOOD DEPRIVATION, MEDICAL CO-PAY, AND OTHER BARRIERS TO CARE.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $212,118
Program Service Revenue $912
Investment Income $0
Other Revenue $53,626
TOTAL REVENUE $266,656

Expense Breakdown

Grants Paid $0
Salaries & Benefits $360,451
Fundraising Expenses $98,311
Program Expenses $452,640
Other Expenses $253,078
TOTAL EXPENSES $613,529

Year-over-Year Comparison

2023 2022 Change
Revenue $266,656 $811,330 -0.7%
Expenses $613,529 $658,256 -0.1%
Net Income $-346,873 $153,074 -3.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
11
Independent Members
11
Employees
11
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$96,545
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
SUZANNE TIERNEY EXECUTIVE DI 40.00
Officer
$96,545 $0 $96,545
LISA BORDNER DIRECTOR 1.00
Director
$0 $0 $0
NATALIE LINDSAY-SMITH DIRECTOR 1.00
Director
$0 $0 $0
STANLEY BALLOU MD MEDICAL ADVI 1.00
Director
$0 $0 $0
DOMINICK PALAZZO DIRECTOR 1.00
Director
$0 $0 $0
TANYA QUINONES-SANTIAGO DIRECTOR 1.00
Director
$0 $0 $0
DIANA FLEMING PHD MSN RN SECRETARY 3.00
Officer Director
$0 $0 $0
ANTHONY SAGARIS DIRECTOR 1.00
Director
$0 $0 $0
GREG TAVRELL DIRECTOR 1.00
Director
$0 $0 $0
JEANNINE VALENTI DIRECTOR 1.00
Director
$0 $0 $0
MARK WESTER TREASURER 3.00
Officer Director
$0 $0 $0
MARIA WOYMA CHAIR OF THE 3.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $266,656 $613,529 $258,695 $-346,873
2023 $811,330 $658,256 $603,644 $153,074
2022 $638,300 $603,886 $410,748 $34,414
2021 $585,499 $548,034 $370,096 $37,465
2020 $397,162 $485,149 $342,953 $-87,987
2019 $624,272 $432,074 $347,099 $192,198
2018 $389,472 $407,741 $147,608 $-18,269
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