CURE JM FOUNDATION

EIN: 352222262 501(c)(3) Diseases & Disorders

LEESBURG, VA

Total Revenue
$2,486,838
Total Expenses
$2,661,142
Total Assets
$2,406,778
Net Assets
$2,406,778
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Financial Trends

Organization Details

Formation Year
2003
Legal Domicile
CA
Principal Officer
JAMES MINOW
Phone
2025966267
Tax Period
2024-10-01 to 2025-09-30

CURE JM FOUNDATION, founded in 2003, is a community nonprofit in the Diseases & Disorders sector that reported $2.5M in total revenue in fiscal year 2024.

Mission

TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES.

Program Service Accomplishments

Program 1
Expenses: $2,132,014

THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: (1) 210,629 TO CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) (2) 170,000 TO MEDICAL COLLEGE OF WISCONSIN (3) 128,797 TO DUKE...

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THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: (1) 210,629 TO CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) (2) 170,000 TO MEDICAL COLLEGE OF WISCONSIN (3) 128,797 TO DUKE UNIVERSITY (4) 125,000 TO THE UNIVERSITY OF CALIFORNIA (5) 112,500 TO BINGHAMTON UNIVERSITY STATE UNIVERSITY OF NEW YORK (6)70,000 TO GEORGE WASHINGTON UNIVERSITY (7) 65,641 TO NUCLEIC ACID THERAPY ACCELERATOR (8) 63,750 TO ST. MARIANNA UNIVESIY SCHOOL OF MEDICINE (9) 62,500 TO SEATTLE CHILDREN'S HOSPITAL FOUNDATION (10) 47,000 LURIE CHILDREN'S HOSPITAL (11) 23,000 TO THE UNIVERSITY OF LIVERPOOL (12) 16,000 TO NATIONAL INSTITUTES OF HEALTH (13) 12,440 RADY CHILDEN'S HOSPITAL SAN DIEGO (14) 10,000 TO BAMBINO GESU HOSPITAL (15) 10,000 TO BOSTON CHILDREN'S HOSPITAL (16) 10,000 TO THE CHILDREN'S HOSPIAL OF ATLANTA EMORY (17) 10,000 TO CHILDREN'S HOSPITAL OF COLORADO (18) 10,000 TO THE CHILDREN'S HOSPITAL OF LOS ANGELES (19) 10,000 TO THE CHILDREN'S HOSPITAL OF ORANGE COUNTY (20) 10,000 TO THE CINCINNATI CHILDREN'S HOSPITAL (21) 10,000 TO JOHNS HOPKINS CHILDREN'S CENTER (22) 10,000 TO JOHN HOPKINS DEPARTMENT OF MEDICINE (23) 10,000 TO SCOTTISH RITE FOR CHILDREN (24) 10,000 UNIVERSITY OF PITTSBURGH MEDICAL CENTER CHILDREN'S HOSPITAL OF PITTSBURGH (25) 5,000 TO C.S. MOTT CHILDREN'S HOSPITAL UNIVERSITY OF MICHIGAN HEALTH (26) TEXAS CHILDREN'S HOSPIAL (27) 5,000 UNIVERSIT OF ALABAMA AT BIRMINGHAM (28) 4,992 TO VANDERBILT UNIVERSITY (29) 3,750 TO THE HOSPITAL FOR SICK CHILDREN (KNIGHT) (30) TO THE MYOSITIS ASSOCIATION 2,237 (31) 1,000 TO CHILDREN'S HOSPIAL A MONTEFIORE BRONX NEW YORK.

Program 2

THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES, FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG...

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THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES, FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS, MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.

Program 3

THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE...

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THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGHT A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZTION'S WEBSITE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,788,846
Program Service Revenue $0
Investment Income $155,414
Other Revenue $542,578
TOTAL REVENUE $2,486,838

Expense Breakdown

Grants Paid $1,123,530
Salaries & Benefits $914,818
Fundraising Expenses $408,995
Program Expenses $2,132,014
Other Expenses $622,794
TOTAL EXPENSES $2,661,142

Year-over-Year Comparison

2024 2023 Change
Revenue $2,486,838 $2,318,946 +0.1%
Expenses $2,661,142 $2,062,981 +0.3%
Net Income $-174,304 $255,965 -1.7%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
16
Independent Members
16
Employees
11
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
15
$0
Key Employees
1
$161,936
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KRISTINE ALDERFER CHAIR 1.00
Officer Director
$0 $0 $0
JUSTIN WHITNEY PRESIDENT 1.00
Officer Director
$0 $0 $0
TIM SHELBY TREASURER 1.00
Officer Director
$0 $0 $0
DENISE KOCH SECRETARY 1.00
Officer Director
$0 $0 $0
DEBBIE DAUM DIRECTOR 1.00
Director
$0 $0 $0
SHARI HUME DIRECTOR 1.00
Director
$0 $0 $0
TOM HUME DIRECTOR 1.00
Director
$0 $0 $0
DR TRACY VAN NESS DIRECTOR 1.00
Director
$0 $0 $0
KAREN BERMAN DIRECTOR 1.00
Director
$0 $0 $0
ZACH HARRISON DIRECTOR 1.00
Director
$0 $0 $0
RANDY PUTT DIRECTOR 1.00
Director
$0 $0 $0
MICHELLE BEST DIRECTOR 1.00
Director
$0 $0 $0
JULIE HOUPT DIRECTOR 1.00
Director
$0 $0 $0
ANNA SCHWARTZ-RAMSEY DIRECTOR 1.00
Director
$0 $0 $0
JOHN CALDWELL DIRECTOR 1.00
Director
$0 $0 $0
JAMES MINOW EXECUTIVE DI 40.00
Highest
$183,109 $0 $183,109
ANDREW HEATON PHD CHIEF SCIENT 40.00
Key Emp
$161,936 $0 $161,936
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $2,486,838 $2,661,142 $2,406,778 $-174,304
2024 $2,318,946 $2,062,981 $2,581,082 $255,965
2023 $2,243,763 $2,055,068 $2,301,494 $188,695
2022 $1,824,036 $1,760,953 $2,112,799 $63,083
2022 $1,824,036 $1,760,953 $2,112,799 $63,083
2021 $2,232,153 $1,987,838 $2,049,716 $244,315
2020 $1,907,570 $1,964,707 $1,977,559 $-57,137
2019 $1,923,270 $1,740,400 $1,920,336 $182,870
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