American Liver Foundation

EIN: 362883000 501(c)(3) Diseases & Disorders

WEST ORANGE, NJ

Total Revenue
$2,118,604
Total Expenses
$1,540,749
Total Assets
$9,476,651
Net Assets
$7,447,566
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Financial Trends

Organization Details

Formation Year
1976
Legal Domicile
IL
Phone
2126681000
Tax Period
2025-01-01 to 2025-03-31

American Liver Foundation, founded in 1976, is a community nonprofit in the Diseases & Disorders sector that reported $2.1M in total revenue in fiscal year 2024. Revenue fell 63% from the prior year — a significant decline worth monitoring. The organization ran a surplus of $578K, a strong 27% operating margin.

Mission

ALF's mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.

Program Service Accomplishments

Program 1
Expenses: $354,319

COMMUNITY SERVICE: ALF conducts important advocacy work on behalf of the patient community, actively raising awareness of legislation affecting the liver community. Began introductory outreach to the...

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COMMUNITY SERVICE: ALF conducts important advocacy work on behalf of the patient community, actively raising awareness of legislation affecting the liver community. Began introductory outreach to the 119th Congress. Created a Health Policy Round-Up blog which highlights health policy news. Sent a Medicaid Action Alert to ensure no cuts to Medicaid liver patients. Planned Liver Life Advocacy Summit scheduled for late April. Sent letters to the Centers for Medicare and Medicaid Services regarding their proposed rule on anti-obesity medication coverage. Participated in a Rare Disease Day panel discussion.

Program 2
Expenses: $346,606

PATIENT SUPPORT: ALF provides much needed support through numerous programs geared to liver patients and their caregivers. Administered Caring Connections, ALF's Peer-to-Peer support program. Held...

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PATIENT SUPPORT: ALF provides much needed support through numerous programs geared to liver patients and their caregivers. Administered Caring Connections, ALF's Peer-to-Peer support program. Held national support group meetings facilitated by trained social workers. Provided support for biliary atresia families through the Bili the Brave program involving 25 national children's hospitals. Planned the launch of ALF's national non-directed living liver donor transplant registry. Launched a liver website microsite to host clinical trial-related content including educational information for patients and caregivers, and a clinical trials finder tool to help match patients with available clinical trials. Encouraged patient engagement with the American Liver Foundation Patient Registry that has attracted 804 participants to date and is being translated into Spanish.

Program 3
Expenses: $299,679

PUBLIC AND PATIENT EDUCATION: Through ALF's signature public health campaign, Think Liver Think Life, made great progress in raising awareness of fatty liver disease. Expanded to 30 states; signed 65...

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PUBLIC AND PATIENT EDUCATION: Through ALF's signature public health campaign, Think Liver Think Life, made great progress in raising awareness of fatty liver disease. Expanded to 30 states; signed 65 MOUs with free and charitable clinics, FQHCs, and health departments. Screened at 29 community events nationwide. Distributed 2,775 Hep C tests through clinics. Executed 14,000 Think Liver Think Life online quizzes since program inception, with more than 1.75 million people learning about their liver health. ALF focuses on creating impactful national partnerships to provide public and patient education. Executed national agreement with the Veterans Administration to provide liver education and support to veterans including liver videos, liver website microsite, liver webinars and YouTube channel. Launched a national partnership with Walgreens to educate the community on fatty liver disease through the creation of multiple webinars. Published an ALF blog for the National Health Council's Black History Month series. Worked with UPMC to create, produce and promote a new three-part educational webinar series on liver transplant. Raising national public awareness of liver disease is a priority for ALF. Appeared on the nationally televised Tamron Hall Show, featuring a prominent ALF family. Launched the Educated Patient series featuring Q&A and Recipes, working with MJH Life Sciences. Secured media stories in MedPage Today, Everyday Health, and SRN News. Executed public education campaigns including diseases of the liver, hepatitis, liver disease diets, MASLD/MASH. Released 11 videos including presentations about liver cancer, pediatric liver disease, COVID liver update, and several patient testimonials for ALF patient registry.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,042,897
Program Service Revenue $0
Investment Income $67,109
Other Revenue $8,598
TOTAL REVENUE $2,118,604

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,038,327
Fundraising Expenses $163,287
Program Expenses $1,226,072
Other Expenses $502,422
TOTAL EXPENSES $1,540,749

Year-over-Year Comparison

2024 2023 Change
Revenue $2,118,604 $5,660,921 -0.6%
Expenses $1,540,749 $6,521,912 -0.8%
Net Income $577,855 $-860,991 -1.7%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
22
Independent Members
22
Employees
40
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$479,904
Total Directors
22
$0
Key Employees
1
$192,454
Highest Compensated
5
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
CARLO FRAPPOLLI SECRETARY 0.3
Officer Director
$0 $0 $0
EMMANUEL THOMAS MD PHD BOARD CHAIR 0.3
Officer Director
$0 $0 $0
GENE CAUTILLO TREASURER 0.3
Officer Director
$0 $0 $0
ALISHA MAVIS MD BOARD MEMBER 0.3
Director
$0 $0 $0
ALLAN DOERR BOARD MEMBER 0.3
Director
$0 $0 $0
ANNE DOYEN BOARD MEMBER 0.3
Director
$0 $0 $0
ARI COHEN MD FACS BOARD MEMBER 0.3
Director
$0 $0 $0
CONNIE DENEWETH BOARD MEMBER 0.3
Director
$0 $0 $0
DAVID COHEN MD PHD BOARD MEMBER 0.3
Director
$0 $0 $0
DAVID FRANK BOARD MEMBER 0.3
Director
$0 $0 $0
ELLEN RUCKER-SELLERS BOARD MEMBER 0.3
Director
$0 $0 $0
FRED KOSTECKI BOARD MEMBER 0.3
Director
$0 $0 $0
HAILEY PULEO BOARD MEMBER 0.3
Director
$0 $0 $0
JOHN BAYEUX III BOARD MEMBER 0.3
Director
$0 $0 $0
KEVIN LEE BOARD MEMBER 0.3
Director
$0 $0 $0
LIZ LEESMAN BOARD MEMBER 0.3
Director
$0 $0 $0
MATTHEW KOONZ BOARD MEMBER 0.3
Director
$0 $0 $0
MIKE BRAUNSTEIN BOARD MEMBER 0.3
Director
$0 $0 $0
PETER CULLEN BOARD MEMBER 0.3
Director
$0 $0 $0
PHIL SHIN BOARD MEMBER 0.3
Director
$0 $0 $0
RICHARD MILLER BOARD MEMBER 0.3
Director
$0 $0 $0
UDEME EKONG BOARD MEMBER 0.3
Director
$0 $0 $0
DAVID TICKER CFO 35.0
Officer
$200,815 $23,179 $223,994
LORRAINE STIEHL CEO 35.0
Officer
$231,385 $24,525 $255,910
JULIANN KIMBROUGH CHIEF MKTG, COMMS, PUBLIC AFF. 35.0
Key Emp
$184,465 $7,989 $192,454
HEIDI DANIELS VP OF DEVELOPMENT 35.0
Highest
$171,637 $29,697 $201,334
HELENE JORDAN NATL SR. DIRECTOR, Research Program MGMT 35.0
Highest
$154,599 $16,022 $170,621
JACQUELINE DOMINGUEZ NATIONAL SENIOR DIRECTOR, ENGAGEMENT 35.0
Highest
$136,221 $5,829 $142,050
KELLY SMITH VP OF EVENTS 35.0
Highest
$155,806 $35,093 $190,899
SHERI SINGER NATL DIRECTOR, DEV./ENGAGEMENT 35.0
Highest
$158,578 $708 $159,286
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $2,118,604 $1,540,749 $9,476,651 $577,855
2024 $5,660,921 $6,521,912 $8,854,388 $-860,991
2023 $5,007,914 $5,074,610 $9,547,099 $-66,696
2022 $5,792,842 $4,256,085 $8,657,364 $1,536,757
2021 $7,058,209 $3,926,966 $8,459,273 $3,131,243
2020 $5,503,229 $5,884,343 $5,773,717 $-381,114
2019 $8,851,289 $8,737,566 $5,267,197 $113,723
2018 $9,198,357 $9,295,849 $5,260,328 $-97,492
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