LES TURNER AMYOTROPHIC LATERAL SCL… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1977

Legal Domicile

Principal Officer

LAURA FREVELETTI

Phone

8476793311

Tax Period

2024-01-01 to 2024-12-31

LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION LTD, founded in 1977, is a community nonprofit that reported $4.5M in total revenue in fiscal year 2024. Revenue surged 69% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.2M, a strong 26% operating margin.

Mission

TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.

Program Service Accomplishments

Program 1

Expenses: $2,651,091 Revenue: $0

THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES.IN...

THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES.IN ADDITION, THE FOUNDATION PROVIDES PERSONALIZED SUPPORT VISITS, SUPPORT GROUPS, ACCESS TO EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION OFFERS EXTENSIVE EDUCATIONAL RESOURCES TO PEOPLE WITH ALS AND THEIR FAMILIES ACROSS THE COUNTRY AND INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $5,107,087

Program Service Revenue $0

Investment Income $107,409

Other Revenue $-689,712

TOTAL REVENUE $4,524,784

Expense Breakdown

Grants Paid $1,126,959

Salaries & Benefits $1,457,602

Fundraising Expenses $421,419

Program Expenses $2,651,091

Other Expenses $748,720

TOTAL EXPENSES $3,333,281

Year-over-Year Comparison

	2024	2023	Change
Revenue	$4,524,784	$2,682,408	+0.7%
Expenses	$3,333,281	$3,355,940	0.0%
Net Income	$1,191,503	$-673,532	-2.8%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$239,077

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
ERIN REARDON COHN	BOARD CHAIR	2.00	Officer Director	$0	$0	$0
HARVEY GAFFEN	CHAIR EMERITUS	2.00	Officer Director	$0	$0	$0
THOMAS F BOLEKY	VICE CHAIR	2.00	Officer Director	$0	$0	$0
JOEL A SCHECHTER	VICE CHAIR	2.00	Officer Director	$0	$0	$0
JOHN COLEMAN III MD	VICE CHAIR	2.00	Officer Director	$0	$0	$0
ROBIN FERN	VICE CHAIR	2.00	Officer Director	$0	$0	$0
DEBORAH CROCKETT	TREASURER	2.00	Officer Director	$0	$0	$0
TINA CASCIO	DIRECTOR	2.00	Director	$0	$0	$0
AALOK DAVE	DIRECTOR	2.00	Director	$0	$0	$0
SEAN FALLON	DIRECTOR	2.00	Director	$0	$0	$0
BONNY GAFFEN	DIRECTOR	2.00	Director	$0	$0	$0
FRANK GRANATA	DIRECTOR	2.00	Director	$0	$0	$0
JODI M HARRIS	DIRECTOR	2.00	Director	$0	$0	$0
KEN HOFFMAN	DIRECTOR	2.00	Director	$0	$0	$0
JANENE JONAS	DIRECTOR	2.00	Director	$0	$0	$0
JOSHUA NEWSOME	DIRECTOR	2.00	Director	$0	$0	$0
MARY LOU PISONE	DIRECTOR	2.00	Director	$0	$0	$0
DIANA PISONE	DIRECTOR	2.00	Director	$0	$0	$0
SARVESH SOI	DIRECTOR	2.00	Director	$0	$0	$0
LAURA FREVELETTI	CHIEF EXECUTIVE OFFICER	40.00	Officer	$191,209	$47,868	$239,077
MARK HEIDEN	DIRECTOR OF COMMUNICATIONS	40.00	Highest	$127,500	$4,972	$132,472
LAUREN WEBB	CHIEF ADVOCACY AND OUTREACH OFFICER	40.00	Highest	$120,634	$27,548	$148,182
CONSTANCE PAESEL	CHIEF OPERATIONS OFFICER	40.00	Highest	$113,500	$4,483	$117,983

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$4,524,784	$3,333,281	$4,414,309	$1,191,503
2023	$2,682,408	$3,355,940	$3,286,760	$-673,532
2022	$2,660,033	$2,786,124	$3,764,134	$-126,091
2021	$3,120,220	$3,082,990	$3,335,798	$37,230
2020	$3,551,407	$2,924,430	$3,428,851	$626,977
2019	$3,673,033	$3,796,366	$2,454,778	$-123,333
2018	$3,114,452	$2,598,482	$2,745,696	$515,970

LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION LTD