International Essential Tremor Foundation

EIN: 363847816 501(c)(3) Medical Research

Lenexa, KS

Total Revenue
$1,320,431
Total Expenses
$929,864
Total Assets
$9,514,675
Net Assets
$9,423,013
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1992
Legal Domicile
KS
Principal Officer
Patrick McCartney
Phone
9133413880
Tax Period
2024-04-01 to 2025-03-31

International Essential Tremor Foundation, founded in 1992, is a community nonprofit in the Medical Research sector that reported $1.3M in total revenue in fiscal year 2024. Revenue surged 61% from the prior year, signaling strong growth momentum. The organization ran a surplus of $391K, a strong 30% operating margin.

Mission

The IETF provides hope to the ET community worldwide through awareness, education, support, and research.

Program Service Accomplishments

Program 1
Expenses: $762,244 Revenue: $31,665

Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the...

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Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $1,350,000 to fund numerous promising studies. (3) Educational Programs The IETF facilitates and shares information on a variety of educational programs to educate patients, caregivers, healthcare providers and the general public about essential tremor (ET). Programs may cover the following topics: the diagnosis of ET, current treatment options, research, support groups, assistive technology, and more.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $924,098
Program Service Revenue $31,665
Investment Income $364,668
Other Revenue $0
TOTAL REVENUE $1,320,431

Expense Breakdown

Grants Paid $196,050
Salaries & Benefits $311,677
Fundraising Expenses $42,313
Program Expenses $762,244
Other Expenses $422,137
TOTAL EXPENSES $929,864

Year-over-Year Comparison

2024 2023 Change
Revenue $1,320,431 $820,747 +0.6%
Expenses $929,864 $904,730 +0.0%
Net Income $390,567 $-83,983 -5.7%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
7
Independent Members
7
Employees
3
Volunteers
65

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$135,081
Total Directors
7
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Patrick McCartney Executive Director 40
Officer
$120,099 $14,982 $135,081
Kelly Lyons President 5
Officer Director
$0 $0 $0
Shari Finsilver Vice President 5
Officer Director
$0 $0 $0
Paul Rodden Secretary 5
Officer Director
$0 $0 $0
Nathan Fiser Treasurer 5
Officer Director
$0 $0 $0
Patrick Reidy Board Member 5
Director
$0 $0 $0
Paula Nauer Board Member 5
Director
$0 $0 $0
Claudine Boldridge Board Member 5
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2025 $1,320,431 $929,864 $9,514,675 $390,567
2024 $820,747 $904,730 $9,002,216 $-83,983
2023 $2,020,359 $825,598 $8,330,203 $1,194,761
2022 $1,414,746 $690,255 $7,213,165 $724,491
2021 $3,394,217 $620,049 $6,492,585 $2,774,168
2020 $932,509 $628,402 $3,713,088 $304,107
2019 $1,104,655 $630,900 $3,502,554 $473,755
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