NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS (EIN 371112496) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1981

Legal Domicile

Principal Officer

KARL NELSEN

Phone

6185662020

Tax Period

2024-01-01 to 2024-12-31

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS, founded in 1981, is a community nonprofit in the Diseases & Disorders sector that reported $1.2M in total revenue in fiscal year 2024. Net assets of $4.7M represent 46 months of operating reserves.

Mission

EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS VIA EDUCATION, SUPPORT, & RESEARCH.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $971,012

Program Service Revenue $10,275

Investment Income $241,442

Other Revenue $6,923

TOTAL REVENUE $1,229,652

Expense Breakdown

Grants Paid $14,325

Salaries & Benefits $628,902

Fundraising Expenses $122,778

Program Expenses $1,047,863

Other Expenses $560,156

TOTAL EXPENSES $1,203,383

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,229,652	$1,161,405	+0.1%
Expenses	$1,203,383	$1,079,785	+0.1%
Net Income	$26,269	$81,620	-0.7%

Key Indicators

✗ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

425

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
KARL NELSEN	PRESIDENT	5.00	Officer Director	$0	$0	$0
CHARLES RICHTER	DIRECTOR	1.00	Director	$0	$0	$0
KEITH THROM	SECRETARY	1.00	Officer Director	$0	$0	$0
RICHARD STRATZ	DIRECTOR	1.00	Director	$0	$0	$0
KRISTA BASILE	DIRECTOR	1.00	Director	$0	$0	$0
ROY MOFFITT JR	DIRECTOR	1.00	Director	$0	$0	$0
MARIANNE VERMEER	TREASURER	1.00	Officer Director	$0	$0	$0
J TIMOTHY WRIGHT DDS MS	DIRECTOR	1.00	Director	$0	$0	$0
ANIL VORA	VICE PRESIDENT	10.00	Officer Director	$0	$0	$0
RUTH GEISMAR	AD HOC ADVISOR	1.00	Director	$0	$0	$0
JACK KRIZ	DIRECTOR	1.00	Director	$0	$0	$0
SOREN ROE	DIRECTOR	1.00	Director	$0	$0	$0
BILL WILKINSON	DIRECTOR	1.00	Director	$0	$0	$0
MARY FETE	EXECUTIVE DIRECTOR	40.00	Highest	$128,350	$0	$128,350

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	$1,229,652	$1,203,383	$4,790,999	$26,269
2023	$1,161,405	$1,079,785	$4,529,323	$81,620
2022	$1,493,211	$1,083,870	$3,999,579	$409,341
2021	$1,968,542	$885,354	$4,339,643	$1,083,188
2020	$995,618	$731,772	$3,174,642	$263,846
2019	$1,078,711	$849,033	$2,717,658	$229,678
2018	$909,237	$650,400	$2,216,012	$258,837

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS