EHLERS-DANLOS SOCIETY

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1988

Legal Domicile

Principal Officer

LARA BLOOM

Phone

4106707577

Tax Period

2025-01-01 to 2025-12-31

EHLERS-DANLOS SOCIETY, founded in 1988, is a community nonprofit in the Health Care sector that reported $9.6M in total revenue in fiscal year 2025. Revenue surged 94% from the prior year, signaling strong growth momentum.

Mission

THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.

Program Service Accomplishments

Program 1

Expenses: $7,322,223 Revenue: $624,519

BRINGING TOGETHER MEDICAL PROFESSIONALS FROM ALL OVER THE WORLD TO WORK ON GROUND-BREAKING MANAGEMENT AND CARE. AT THE CORE OF THIS RESEARCH IS THE GLOBAL EDS AND HSD REGISTRY. THE REGISTRY WILL ALSO PROVIDE NEW OPPORTUNITIES FOR RESEARCH, INCLUDING IDENTIFYING LINKS BETWEEN EDS AND HSD AND OTHER CONDITIONS. THE EHLERS-DANLOS SOCIETY HAS AWARDED FUNDING FOR RESEARCH GRANTS INTO THE EHLERS-DANLOS SYNDROMES AND HYPERMOBILITY SPECTRUM DISORDERS. OUR GOAL IS TO ENSURE CONSISTENT AND GROUNDBREAKING RESEARCH INTO THESE CONDITIONS TO HELP INDIVIDUALS LIVING WITH THESE CONDITIONS, WORLDWIDE.

Program 2

Expenses: $1,394,709 Revenue: $127,913

THE EHLERS-DANLOS SOCIETY ORGANIZES MEDICAL AND SCIENTIFIC SYMPOSIUMS TO EXAMINE THE LATEST RESEARCH AND UPDATE THE DIAGNOSTIC CRITERIA AND GUIDELINES FOR MANAGEMENT AND CARE. WE WORK WITH THE...

THE EHLERS-DANLOS SOCIETY ORGANIZES MEDICAL AND SCIENTIFIC SYMPOSIUMS TO EXAMINE THE LATEST RESEARCH AND UPDATE THE DIAGNOSTIC CRITERIA AND GUIDELINES FOR MANAGEMENT AND CARE. WE WORK WITH THE COMORBIDITY COALITION AND THE INTERNATIONAL CONSORTIUM ON DEVELOPED CLINICAL CARE PATHWAYS FOR MANAGEMENT AND DIAGNOSIS. EVENTS FOR HEALTH PROFESSIONALS ARE HELD GLOBALLY AND ARE CME-ACCREDITED. ANNUAL GLOBAL LEARNING CONFERENCES BRING TOGETHER AND UNITE OUR COMMUNITY, PROVIDING OPPORTUNITIES TO INTERACT, FIND SUPPORT, AND LEARN MANAGEMENT STRATEGIES AND INFORMATION FROM WORLD-LEADING EXPERTS IN EDS AND HSD.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $8,845,686

Program Service Revenue $737,412

Investment Income $541

Other Revenue $20,506

TOTAL REVENUE $9,604,145

Expense Breakdown

Grants Paid $6,974,640

Salaries & Benefits $718,533

Fundraising Expenses $258,745

Program Expenses $8,716,932

Other Expenses $1,746,444

TOTAL EXPENSES $9,439,617

Year-over-Year Comparison

	2025	2024	Change
Revenue	$9,604,145	$4,956,939	+0.9%
Expenses	$9,439,617	$4,515,627	+1.1%
Net Income	$164,528	$441,312	-0.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$318,319

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
MELANIE MACLEOD	DIRECTOR	1.00	Director	$0	$0	$0
WOODROW GANDY	DIRECTOR	1.00	Director	$0	$0	$0
SUSAN HASKEL	DIRECTOR	1.00	Director	$0	$0	$0
AMY ROCHLIN	DIRECTOR	1.00	Director	$0	$0	$0
PAUL SEGAL	DIRECTOR	1.00	Director	$0	$0	$0
CLAIR FRANCOMANO	DIRECTOR	1.00	Director	$0	$0	$0
FRANCES FITZGERALD	DIRECTOR	1.00	Director	$0	$0	$0
ANOUSHE HUSAIN	DIRECTOR	1.00	Director	$0	$0	$0
AISLING GREEN	DIRECTOR	1.00	Director	$0	$0	$0
AKILAH CADET	DIRECTOR	1.00	Director	$0	$0	$0
WARD FITZGERALD	DIRECTOR	1.00	Director	$0	$0	$0
ROBERT RUBIN	TREASURER	5.00	Officer Director	$0	$0	$0
JOHN ZONARICH	SECRETARY	5.00	Officer Director	$0	$0	$0
SUSAN HAWKINS	PRESIDENT	5.00	Officer Director	$0	$0	$0
LARA BLOOM	CEO	50.00	Officer	$0	$0	$219,187
ERIC ALLEY	CFO	45.00	Officer	$93,697	$5,435	$99,132

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$9,604,145	$9,439,617	$9,617,006	$164,528
2024	$4,956,939	$4,515,627	$8,202,898	$441,312
2023	$9,764,053	$5,185,571	$8,734,113	$4,578,482
2022	$4,514,528	$4,085,098	$3,182,723	$429,430
2021	$4,237,967	$3,433,295	$2,819,867	$804,672
2020	$2,230,715	$1,684,441	$2,191,805	$546,274
2018	$1,606,827	$1,707,982	$645,814	$-101,155