EHLERS-DANLOS SOCIETY (EIN 382813140) - Form 990 Financial Analysis & Trantor Score

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

1988

Legal Domicile

Principal Officer

LARA BLOOM

Phone

4106707577

Tax Period

2024-01-01 to 2024-12-31

EHLERS-DANLOS SOCIETY, founded in 1988, is a community nonprofit in the Health Care sector that reported $5.0M in total revenue in fiscal year 2024. Revenue fell 49% from the prior year — a significant decline worth monitoring. Expenses of $4.5M left a modest 9% surplus.

Mission

THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGNIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITIY SPECTRUM DISPORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLAVORATIVELY TO IMPOVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,394,416

Program Service Revenue $538,854

Investment Income $566

Other Revenue $23,103

TOTAL REVENUE $4,956,939

Expense Breakdown

Grants Paid $1,182,364

Salaries & Benefits $1,661,403

Fundraising Expenses $255,088

Program Expenses $3,134,759

Other Expenses $1,671,860

TOTAL EXPENSES $4,515,627

Year-over-Year Comparison

	2024	2023	Change
Revenue	$4,956,939	$9,764,053	-0.5%
Expenses	$4,515,627	$5,185,571	-0.1%
Net Income	$441,312	$4,578,482	-0.9%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$301,478

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
MELANIE MACLEOD	DIRECTOR	1.00	Director	$0	$0	$0
WOODROW GANDY	DIRECTOR	1.00	Director	$0	$0	$0
SUSAN HASKEL	DIRECTOR	1.00	Director	$0	$0	$0
AMY ROCHLIN	DIRECTOR	1.00	Director	$0	$0	$0
MICHELLE JALALI	DIRECTOR	1.00	Director	$0	$0	$0
CLAIR FRANCOMANO	DIRECTOR	1.00	Director	$0	$0	$0
FRANCES FITZGERALD	DIRECTOR	1.00	Director	$0	$0	$0
ANOUSHE HUSAIN	DIRECTOR	1.00	Director	$0	$0	$0
AISLING GREEN	DIRECTOR	1.00	Director	$0	$0	$0
AKILAH CADET	DIRECTOR	1.00	Director	$0	$0	$0
WARD FITZGERALD	DIRECTOR	1.00	Director	$0	$0	$0
ROBERT RUBIN	TREASURER	5.00	Officer Director	$0	$0	$0
JOHN ZONARICH	SECRETARY	5.00	Officer Director	$0	$0	$0
SUSAN HAWKINS	PRESIDENT	5.00	Officer Director	$0	$0	$0
LARA BLOOM	CEO	50.00	Officer	$0	$0	$215,131
ERIC ALLEY	CFO	40.00	Officer	$86,347	$0	$86,347

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$4,956,939	$4,515,627	$8,202,898	$441,312
2023	$9,764,053	$5,185,571	$8,734,113	$4,578,482
2022	$4,514,528	$4,085,098	$3,182,723	$429,430
2021	$4,237,967	$3,433,295	$2,819,867	$804,672
2020	$2,230,715	$1,684,441	$2,191,805	$546,274
2018	$1,606,827	$1,707,982	$645,814	$-101,155

EHLERS-DANLOS SOCIETY