NATIONAL SPASMODIC DYSPHONIA ASSOCIATION

EIN: 382918042 501(c)(3)

ITASCA, IL

Total Revenue
N/A
Total Expenses
N/A
Total Assets
N/A
Net Assets
N/A
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1989
Legal Domicile
IL
Principal Officer
CHARLIE REAVIS
Phone
8007956732
Tax Period
2024-04-01 to 2025-03-31

Mission

THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH RESEARCH, EDUCATION, AWARENESS AND SUPPORT. WE FUND RESEARCH TO ADVANCE THE UNDERSTANDING OF THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS, AND EVENTUALLY A CURE. WE EDUCATE TO HELP REDUCE THE TIME TO DIAGNOSIS. WE RAISE AWARENESS TO REDUCE THE ISOLATION AROUND HAVING A VOICE DISORDER. WE PROVIDE SUPPORT TO THOSE AFFECTED AND THEIR FAMILIES THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ONLINE RESOURCES SO THAT NO ONE FEELS ALONE. THE NSDA IS DEDICATED TO HELPING THOSE WITH THESE DISORDERS OVERCOME ADVERSITY AND THRIVE BY CREATING A COMMUNITY THAT CARES ABOUT THEM AND THEIR VOICE.

Program Service Accomplishments

Program 1

SUPPORTING PEOPLE WITH SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $0
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $0

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Other Expenses $0
TOTAL EXPENSES $0

Year-over-Year Comparison

2024 2023 Change
Revenue N/A N/A N/A
Expenses N/A N/A N/A
Net Income N/A $0 N/A
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
12
Independent Members
11
Employees
N/A
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$96,423
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DOT SOWERBY DIRECTOR 2.00
Director
$0 $0 $0
CHARLES REAVIS PRESIDENT 15.00
Officer Director
$0 $0 $0
MARY BIFARO SUPPORT NETWORK DIRECTOR 10.00
Officer Director
$0 $0 $0
MARCIA STERLING DIRECTOR 2.00
Director
$0 $0 $0
BEVERLY MATTHEWS TREASURER 2.00
Officer Director
$0 $0 $0
SUSAN BECK VICE PRESIDENT 2.00
Officer Director
$0 $0 $0
DENNIS KASZETA DIRECTOR 2.00
Director
$0 $0 $0
BRUCE MENK DIRECTOR 2.00
Director
$0 $0 $0
SUE PAYNE DIRECTOR 2.00
Director
$0 $0 $0
CHARLIE WOMBLE DIRECTOR 2.00
Director
$0 $0 $0
SCOTT FLANAGAN DIRECTOR 2.00
Director
$0 $0 $0
KIMBERLY KUMAN EXECUTIVE DIRECTOR 52.00
Officer
$0 $0 $96,423
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 No data No data No data No data
2023 No data No data No data No data
2022 $611,049 $536,887 $3,059,425 $74,162
2021 $2,545,215 $288,490 $2,932,455 $2,256,725
2020 $371,731 $322,719 $630,527 $49,012
2019 $327,153 $313,309 $589,573 $13,844
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