DOWN SYNDROME ASSOCIATION OF WISCONSIN INC

EIN: 391681338 501(c)(3) Human Services

WAUWATOSA, WI

Total Revenue
$7,911,923
Total Expenses
$6,386,342
Total Assets
$6,030,885
Net Assets
$5,327,649
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1990
Legal Domicile
WI
Principal Officer
JULIE AGUILAR
Phone
4143273729
Tax Period
2024-01-01 to 2024-12-31

DOWN SYNDROME ASSOCIATION OF WISCONSIN INC, founded in 1990, is a community nonprofit in the Human Services sector that reported $7.9M in total revenue in fiscal year 2024. Revenue grew 18% year-over-year, indicating healthy expansion. The organization ran a surplus of $1.5M, a strong 19% operating margin.

Mission

THE MISSION AT THE DOWN SYNDROME ASSOCIATION OF WISCONSIN (DSAW) IS TO PROVIDE SUPPORT TO WISCONSIN FAMILIES AND INDIVIDUALS WITH DOWN SYNDROME AND RELATED DISABILITIES THROUGH EDUCATION, INFORMATION, PROGRAMS, SERVICES, AND THE EXCHANGE OF IDEAS AND EXPERIENCES.

Program Service Accomplishments

Program 1
Expenses: $4,505,973

MEMBER EVENTS AND OUTREACH PROGRAM: TO HELP MAKE PEOPLE AWARE OF DOWN SYNDROME, BUILD FRATERNITY AND SUPPORT IN COMMUNITIES, AND INCREASE ACCEPTANCE AND ACCESS FOR PEOPLE WITH DOWN SYNDROME.

Program 2
Expenses: $1,011,392 Revenue: $2,625,267

FAMILY SERVICES: TO PROVIDE REHABILITATION SERVICES TO OUTSIDE CLIENTS WITH DOWN SYNDROME AND RELATED DISABILITIES. UNDER THIS PROGRAM, THEY ALSO PROVIDE HOME AND COMMUNITY SERVICES AS WELL AS...

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FAMILY SERVICES: TO PROVIDE REHABILITATION SERVICES TO OUTSIDE CLIENTS WITH DOWN SYNDROME AND RELATED DISABILITIES. UNDER THIS PROGRAM, THEY ALSO PROVIDE HOME AND COMMUNITY SERVICES AS WELL AS EMPLOYMENT SERVICES DESCRIBED BELOW.HOME AND COMMUNITY SERVICES:CHILDREN UNDER 18 CAN UTILIZE CHILDREN'S LONG TERM SUPPORT WAIVER (CLTS) TO PAY FOR SERVICES. DSAW HAS CONTRACTS WITH EACH COUNTY WHERE WE PROVIDE SERVICES THAT LISTS THE MAXIMUM DOLLAR AMOUNT OF SERVICES WE CAN PROVIDE PER YEAR IN THAT COUNTY, ALONG WITH COMPLIANCE REQUIREMENTS. THEN FOR EACH INDIVIDUAL WHO WE PROVIDE SERVICES FOR, WE CONTACT THEIR CASEWORKER AND RECEIVE AN AUTHORIZATION TO PROVIDE SERVICES. THIS AUTHORIZATION LISTS DATES, THE TYPE OF SERVICE TO BE PROVIDED, THE UNITS AUTHORIZED AND THE UNIT COST. AT THE END OF EACH MONTH, DSAW SENDS THE COUNTY AN INVOICE FOR THE SERVICES THAT WERE PROVIDED. ADULTS 18+ CAN UTILIZE EITHER IRIS OR FAMILY CARE TO PAY FOR SERVICES. IRIS IS A SELF-DIRECTED PROGRAM, AND DSAW IS AN IRIS PROVIDER. INDIVIDUALS RECEIVE A BUDGET AND CAN DIRECT DOLLARS TOWARDS SERVICES. FISCAL AGENTS (SUCH AS ILIFE AND PREMIER), RECEIVE THE FUNDS FROM THE STATE AND HELP PARTICIPANTS MANAGE THEIR BUDGETS. IF INDIVIDUALS CHOOSE DSAW, WE CONTACT THE INDIVIDUAL'S FISCAL AGENT AND RECEIVE AN AUTHORIZATION WITH DATES, THE TYPE OF SERVICE TO BE PROVIDED, THE UNITS AUTHORIZED AND THE UNIT COST. AT THE END OF EACH MONTH, DSAW SENDS THE FISCAL AGENT AN INVOICE FOR THE SERVICES THAT WERE PROVIDED. ADULTS 18+ ALSO HAVE A SECONDARY PROGRAM TO CHOOSE FROM, CALLED FAMILY CARE. THEY WORK ALONGSIDE THEIR CARE MANAGER, RN, GUARDIAN AND ANY OTHER IDT MEMBER THAT IS INVOLVED AT THAT TIME. DSAW IS CONTRACTED WITH A FEW OF THE MANAGED CARE ORGANIZATIONS THAT SERVE THE FAMILY CARE FUNDED PROGRAM. IF THE INDIVIDUAL ADDS A SERVICE TO THEIR PLAN AND DSAW IS THE CHOSEN SERVICE PROVIDER, THEN WE RECEIVE AN AUTHORIZATION AND BILL FOR THE SERVICE AT THE END OF THE MONTH. EMPLOYMENT SERVICES:DSAW RECEIVES REFERRALS TO WORK WITH INDIVIDUALS DIRECTLY FROM THE DEPARTMENT OF WORKFORCE DEVELOPMENT'S DEPARTMENT OF VOCATIONAL REHABILITATION (DVR). DSAW IS A DVR PROVIDER IN SEVERAL WDAS. DSAW COMPLETES SERVICES PER THE INSTRUCTIONS ON THE REFERRAL, AND THEN SENDS DVR AN INVOICE AT THE END OF EACH MONTH FOR THE SERVICES THAT WERE PROVIDED.

Program 3
Expenses: $55,536 Revenue: $21,310

DSAW HOUSING LLC: THESE COMPANY IS A WHOLLY-OWNED SUBSIDIARY OF DOWN SYNDROME ASSOCIATION OF WISCONSIN, INC. THIS WAS ESTABLISHED TO PROVIDE COMMUNITY-BASED HOUSING FOR INDIVIDUALS WITH DOWN SYDROME...

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DSAW HOUSING LLC: THESE COMPANY IS A WHOLLY-OWNED SUBSIDIARY OF DOWN SYNDROME ASSOCIATION OF WISCONSIN, INC. THIS WAS ESTABLISHED TO PROVIDE COMMUNITY-BASED HOUSING FOR INDIVIDUALS WITH DOWN SYDROME AND RELATED DISABILITIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $5,395,874
Program Service Revenue $2,646,577
Investment Income $38,282
Other Revenue $-168,810
TOTAL REVENUE $7,911,923

Expense Breakdown

Grants Paid $156,610
Salaries & Benefits $3,912,830
Fundraising Expenses $122,182
Program Expenses $5,572,901
Other Expenses $2,316,902
TOTAL EXPENSES $6,386,342

Year-over-Year Comparison

2024 2023 Change
Revenue $7,911,923 $6,693,318 +0.2%
Expenses $6,386,342 $6,102,541 +0.0%
Net Income $1,525,581 $590,777 +1.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
7
Independent Members
7
Employees
152
Volunteers
786

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$195,773
Total Directors
7
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
JULIE AGUILAR PRESIDENT 5.00
Officer Director
$0 $0 $0
JOE MALLOY TREASURER 3.00
Officer Director
$0 $0 $0
WENDY BUSHELL VICE PRESIDENT 3.00
Officer Director
$0 $0 $0
JOE BRYDGES SECRETARY 3.00
Officer Director
$0 $0 $0
KERRY LAURIN BOARD 1.00
Director
$0 $0 $0
MARK ANDRES BOARD 1.00
Director
$0 $0 $0
SYED AHMED BOARD 1.00
Director
$0 $0 $0
DAWN NUOFFER CEO 65.00
Officer
$194,833 $940 $195,773
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $7,911,923 $6,386,342 $6,030,885 $1,525,581
2023 $6,693,318 $6,102,541 $4,620,223 $590,777
2022 $3,222,790 $2,998,965 $5,130,763 $223,825
2021 $2,368,214 $1,636,605 $2,632,502 $731,609
2020 $2,147,456 $1,465,184 $1,852,745 $682,272
2019 $686,967 $766,157 $857,544 $-79,190
2018 $750,486 $618,468 $897,961 $132,018
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