HYPERTROPHIC CARDIOMYOPATHY ASSOCIATION

EIN: 411855605 501(c)(3) Diseases & Disorders

DENVILLE, NJ

Total Revenue
$1,326,262
Total Expenses
$1,080,476
Total Assets
$1,398,852
Net Assets
$1,151,960
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1996
Legal Domicile
NJ
Principal Officer
LISA SALBERG
Phone
9739837429
Tax Period
2023-01-01 to 2023-12-31

HYPERTROPHIC CARDIOMYOPATHY ASSOCIATION, founded in 1996, is a community nonprofit in the Diseases & Disorders sector that reported $1.3M in total revenue in fiscal year 2023. Revenue grew 20% year-over-year, indicating healthy expansion. The organization ran a surplus of $246K, a strong 19% operating margin.

Mission

TO PROVIDE SUPPORT, ADVOCACY AND EDUCATION TO PATIENTS, FAMILIES, THE MEDICAL COMMUNITY AND THE PUBLIC ABOUT HYPERTROPHIC CARDIOMYOPATHY, WHILE SUPPORTING RESEARCH AND FOSTERING THE DEVELOPMENT OF TREATMENTS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $979,965
Program Service Revenue $247,716
Investment Income $10,816
Other Revenue $87,765
TOTAL REVENUE $1,326,262

Expense Breakdown

Grants Paid $0
Salaries & Benefits $605,349
Fundraising Expenses $58,068
Program Expenses $717,022
Other Expenses $475,127
TOTAL EXPENSES $1,080,476

Year-over-Year Comparison

2023 2022 Change
Revenue $1,326,262 $1,106,885 +0.2%
Expenses $1,080,476 $796,317 +0.4%
Net Income $245,786 $310,568 -0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

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Liquidity & Cash Position

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Governance

Voting Members
13
Independent Members
12
Employees
13
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$105,000
Total Directors
13
$105,000
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
LISA SALBERG CEO/VICE CHAIR 40.00
Officer Director
$98,908 $6,092 $105,000
GORDON FOX PHD CHAIR 10.00
Officer Director
$0 $0 $0
ADAM SALBERG SECRETARY 1.00
Officer Director
$0 $0 $0
ROB LORFINK TREASURER 1.00
Officer Director
$0 $0 $0
AMIT KALIA PHD DIRECTOR 2.00
Director
$0 $0 $0
ROSEMARY CONLON DIRECTOR 1.00
Director
$0 $0 $0
BILLUR DOWSE DIRECTOR 10.00
Director
$0 $0 $0
MARTIN MARON MD DIRECTOR 2.00
Director
$0 $0 $0
MIKE LYNCH MD DIRECTOR 1.00
Director
$0 $0 $0
KEVIN O'CONNOR MD DIRECTOR 1.00
Director
$0 $0 $0
ISAAC RODRIGUEZ-CHAVEZ PHD MHS MS DIRECTOR 1.00
Director
$0 $0 $0
BILL ROSSI DIRECTOR 1.00
Director
$0 $0 $0
RICHARD MELIA PHD EMERITUS DIRECTOR 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $1,326,262 $1,080,476 $1,398,852 $245,786
2022 $1,106,885 $796,317 $1,085,584 $310,568
2021 $804,960 $531,813 $577,031 $273,147
2020 $390,972 $374,280 $313,163 $16,692
2019 $320,578 $191,775 $296,471 $128,803
2018 $355,678 $192,098 $167,668 $163,580
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