THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (EIN 412073220) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2002

Legal Domicile

Principal Officer

SUSAN L-J DICKINSON

Phone

2675147221

Tax Period

2023-07-01 to 2024-06-30

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION, founded in 2002, is a mid-sized nonprofit in the Medical Research sector that reported $13.1M in total revenue in fiscal year 2023. Revenue surged 54% from the prior year, signaling strong growth momentum. Expenses of $11.5M left a modest 12% surplus.

Mission

PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $12,361,972

Program Service Revenue $2,204

Investment Income $899,785

Other Revenue $-124,841

TOTAL REVENUE $13,139,120

Expense Breakdown

Grants Paid $2,986,505

Salaries & Benefits $5,424,380

Fundraising Expenses $1,066,942

Program Expenses $9,922,194

Other Expenses $3,046,054

TOTAL EXPENSES $11,526,939

Year-over-Year Comparison

	2023	2022	Change
Revenue	$13,139,120	$8,537,416	+0.5%
Expenses	$11,526,939	$9,663,807	+0.2%
Net Income	$1,612,181	$-1,126,391	-2.4%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

398

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$596,897

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
KIM TORRES	CHAIR	5.00	Officer Director	$0	$0	$0
RITA CHOULA	VICE CHAIR	5.00	Officer Director	$0	$0	$0
JULIE KELLY	TREASURER	4.00	Officer Director	$0	$0	$0
GAIL ANDERSON	SECRETARY	4.00	Officer Director	$0	$0	$0
JILL GOLDMAN	DIRECTOR (EFF 5/4/24)	2.00	Director	$0	$0	$0
HALIMA AMJAD	DIRECTOR	3.00	Director	$0	$0	$0
HELEN-ANN COMSTOCK	DIRECTOR	3.00	Director	$0	$0	$0
SANDRA GROW	DIRECTOR (THRU 5/4/24)	3.00	Director	$0	$0	$0
KRISTIN HOLLOWAY	DIRECTOR	2.00	Director	$0	$0	$0
KYLE BRIMINGHAM	DIRECTOR (EFF 5/4/24)	2.00	Director	$0	$0	$0
SHOSHANA KRILOW	DIRECTOR	2.00	Director	$0	$0	$0
JARY LARSEN	DIRECTOR	4.00	Director	$0	$0	$0
JOSEPH MARQUEZ	DIRECTOR	2.00	Director	$0	$0	$0
KATHY MELE	DIRECTOR	4.00	Director	$0	$0	$0
DON NEWHOUSE	DIRECTOR	2.00	Director	$0	$0	$0
KRISTIN SCHNEEMAN	DIRECTOR	3.00	Director	$0	$0	$0
MARG SUTHERLAND	DIRECTOR	3.00	Director	$0	$0	$0
ABRAR TANVEER	DIRECTOR	2.00	Director	$0	$0	$0
VALERIE SNOW	DIRECTOR (EFF 5/4/24)	2.00	Director	$0	$0	$0
DAVID PFEIFER	DIRECTOR (THRU 5/4/24)	2.00	Director	$0	$0	$0
SUSAN L-J DICKINSON	CHIEF EXECUTIVE OFFICER	36.00	Officer	$299,604	$27,277	$326,881
MITCH APPLESON	CHIEF OPERATING OFFICER	38.00	Officer	$239,433	$30,583	$270,016
PENNY DACKS	SR. DIRECTOR OF SCIENTIFIC INITIATIVES	30.00	Highest	$215,668	$15,410	$231,078
CHRISTINE ROGERS STEVENS	DIRECTOR OF FINANCE (THRU 9/24)	36.00	Highest	$182,806	$25,570	$208,376
BENJAMIN FREEMAN	DIR OF DEV & COMM (THRU 1/24)	40.00	Highest	$160,117	$5,097	$165,214
SHARON DENNY	SR. DIRECTOR OF PROGRAMS	40.00	Highest	$163,623	$23,818	$187,441
PETER WITZLEB	DIRECTOR OF IT	40.00	Highest	$162,345	$5,177	$167,522

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	$13,139,120	$11,526,939	$53,971,673	$1,612,181
2023	$8,537,416	$9,663,807	$47,470,345	$-1,126,391
2022	$12,057,958	$8,575,867	$44,796,969	$3,482,091
2021	$28,527,291	$7,615,096	$44,786,288	$20,912,195
2020	$9,455,114	$7,723,528	$23,888,583	$1,731,586
2019	$9,141,943	$6,981,834	$21,156,373	$2,160,109

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION