DISABILITY RIGHTS IOWA

EIN: 421235407 501(c)(3)

DES MOINES, IA

Total Revenue
$2,631,812
Total Expenses
$2,097,697
Total Assets
$2,116,961
Net Assets
$1,418,387
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1984
Legal Domicile
IA
Principal Officer
CATHERINE JOHNSON
Phone
5152782502
Tax Period
2024-10-01 to 2025-09-30

DISABILITY RIGHTS IOWA, founded in 1984, is a community nonprofit that reported $2.6M in total revenue in fiscal year 2024. Revenue surged 27% from the prior year, signaling strong growth momentum. The organization ran a surplus of $534K, a strong 20% operating margin.

Mission

TO ADVANCE THROUGH ALL RESOURCES THE HUMAN AND LEGAL RIGHTS OF INDIVIDUALS WITH DISABILITIES. DISABILITY RIGHTS IOWA PROVIDES FREE LEGAL AND NON-LEGAL ADVOCACY ASSISTANCE TO PERSONS WITH MENTAL ILLNESS, DISABILITIES AND CERTAIN SOCIAL SECURITY BENEFICIARIES.

Program Service Accomplishments

Program 1
Expenses: $436,999 Revenue: $675

DEVELOPMENTAL DISABILITIES - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES AND ASSISTANCE ACCESSING ENTITLEMENTS AND SERVICES (E.G., SPECIAL EDUCATION...

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DEVELOPMENTAL DISABILITIES - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES AND ASSISTANCE ACCESSING ENTITLEMENTS AND SERVICES (E.G., SPECIAL EDUCATION, DAY PROGRAMS, AND RESIDENTIAL SERVICES). A DEVELOPMENTAL DISABILITY IS A SEVERE PHYSICAL, COGNITIVE, OR EMOTIONAL IMPAIRMENT THAT BEGINS BEFORE AGE 22, LIKELY TO CONTINUE INDEFINITELY, AND INTERFERES WITH THREE OR MORE MAJOR LIFE ACTIVITIES.

Program 2
Expenses: $375,641 Revenue: $130

MENTAL HEALTH - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH MENTAL ILLNESS WHO ARE RESIDENTS OF CERTAIN CARE AND TREATMENT FACILITIES (E.G., MENTAL HEALTH INSTITUTES, NURSING...

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MENTAL HEALTH - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH MENTAL ILLNESS WHO ARE RESIDENTS OF CERTAIN CARE AND TREATMENT FACILITIES (E.G., MENTAL HEALTH INSTITUTES, NURSING FACILITIES, COMMUNITY HOSPITALS, ASSISTED LIVING FACILITIES, AND MENTAL HEALTH FACILITIES FOR CHILDREN) OR IN HOME AND COMMUNITY BASED SETTINGS. LEGAL ASSISTANCE TO PROTECT RIGHTS AND ADVOCATE FOR SERVICES TO INDIVIDUALS WITH MENTAL ILLNESS, LIVING IN FACILITIES OR THE COMMUNITY AND EVEN IN THEIR HOMES.

Program 3
Expenses: $237,558 Revenue: $51

WORK INCENTIVES PLANNING AND ASSISTANCE (WIPA) - THE PROGRAM IS FUNDED BY SOCIAL SECURITY ADMINISTRATION (SSA) TO PROVIDE BENEFITS PLANNING AND ASSISTANCE TO SOCIAL SECURITY BENEFICIARIES

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,006,057
Program Service Revenue $578,567
Investment Income $20,052
Other Revenue $27,136
TOTAL REVENUE $2,631,812

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,621,506
Fundraising Expenses $0
Program Expenses $1,837,175
Other Expenses $476,191
TOTAL EXPENSES $2,097,697

Year-over-Year Comparison

2024 2023 Change
Revenue $2,631,812 $2,070,586 +0.3%
Expenses $2,097,697 $1,921,417 +0.1%
Net Income $534,115 $149,169 +2.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
14
Independent Members
14
Employees
23
Volunteers
15

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$135,812
Total Directors
14
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
NICK MALCOM PRESIDENT 5.00
Officer Director
$0 $0 $0
SETH TALBOT VICE PRESIDENT 5.00
Officer Director
$0 $0 $0
BETH RYDBERG SECRETARY TREASURER 5.00
Officer Director
$0 $0 $0
TIFFANY DODD PAST PRESIDENT 5.00
Director
$0 $0 $0
KENNETH CAMERON BOARD MEMBER 5.00
Director
$0 $0 $0
RACHEL ERKKILA BOARD MEMBER 5.00
Director
$0 $0 $0
BETH WARGO BOARD MEMBER 5.00
Director
$0 $0 $0
WENDY ANDERSON BOARD MEMBER 5.00
Director
$0 $0 $0
CLAIRE PADGETT BOARD MEMBER 5.00
Director
$0 $0 $0
CHRISTIAN FASSELIUS BOARD MEMBER 5.00
Director
$0 $0 $0
CHRISTIE CELLMAN BOARD MEMBER 5.00
Director
$0 $0 $0
CRYSTA FIERRO BOARD MEMBER 5.00
Director
$0 $0 $0
MORGAN RYAN BOARD MEMBER 5.00
Director
$0 $0 $0
CANDACE HONEYCUTT BOARD MEMBER 5.00
Director
$0 $0 $0
CATHERINE JOHNSON EXECUTIVE DIRECTOR 40.00
Officer
$120,831 $14,981 $135,812
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $2,631,812 $2,097,697 $2,116,961 $534,115
2024 $2,070,586 $1,921,417 $1,696,657 $149,169
2023 $2,086,078 $2,117,131 $1,625,573 $-31,053
2022 $2,446,975 $1,876,555 $721,651 $570,420
2021 $1,757,188 $1,741,690 $189,854 $15,498
2020 $1,759,936 $1,746,065 $176,313 $13,871
2019 $1,677,798 $1,753,984 $133,985 $-76,186
2018 $1,577,266 $1,578,404 $215,572 $-1,138
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