DOWN SYNDROME ASSOCIATION OF GREAT… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1976

Legal Domicile

Principal Officer

ERIN SUELMANN

Phone

3148337554

Tax Period

2024-01-01 to 2024-12-31

DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS, founded in 1976, is a community nonprofit that reported $1.6M in total revenue in fiscal year 2024. Revenue surged 41% from the prior year, signaling strong growth momentum.

Mission

THE DSAGSL SERVES, SUPPORTS, AND CELEBRATES THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES, THROUGH EVERY STAGE OF LIFE.

Program Service Accomplishments

Program 1

Expenses: $494,989 Revenue: $79,116

THE ORGANIZATION SUPPORTED INDIVIDUALS AND FAMILIES THROUGH THE FOLLOWING PROGRAMS: NEW PARENT SUPPORT, FIRST BIRTHDAY PROGRAM/CELEBRATION BASKETS, PARENT TO PARENT NETWORK AND MENTOR PROGRAM, AGES AND STAGES BOOK PROGRAM, VOLUNTEER STAFFING FOR DOWN SYNDROME CENTER AT CHILDREN'S HOSPITAL, REGIONAL COMMUNITY GROUPS, FAMILY EVENTS (FAMILY PICNICS, HOLIDAY PARTY), SHARING OUR STRATEGIES RESOURCE NETWORK, INFORMATION AND REFERRAL, RESOURCE LIBRARY, HEALTH PROFESSIONAL OUTREACH, SUPPORT CAREGIVERS OF AGING ADULTS WITH DOWN SYNDROME, AND EDUCATIONAL ADVOCACY AND SUPPORT.

Program 2

Expenses: $433,548 Revenue: $64,932

THE ORGANIZATION PROVIDED THE FOLLOWING EDUCATIONAL PROGRAMS: SMALL STEPS THERAPY CAMP AND THERAPEUTIC PLAYGROUPS, DSAGL ROCKS MUSIC PROGRAM, CONFERENCES, SEMINARS & WORKSHOPS, STEPS TO INDEPENDENCE CLASSES FOR ADULTS WITH DOWN SYNDROME, DOWN SYNDROME EDUCATION SPECIALISTS PROGRAM, READY TO WORK EMPLOYMENT INITIATIVE, COMMUNITY EDUCATION AND OUTREACH, AND POP UP SNACK SHOP SOCIAL ENTERPRISE AND JOB TRAINING PROGRAM.

Program 3

Expenses: $417,490 Revenue: $10,024

THE ORGANIZATION PROVIDED THE FOLLOWING PUBLIC AWARENESS AND ADVOCACY PROGRAMS: STEP UP FOR DOWN SYNDROME (SUDS) AWARENESS WALK, WALK IN THE PARK, RUN FOR 21, WORLD DOWN SYNDROME DAY, DOWN SYNDROME AWARENESS MONTH, FRIENDS FOR ALL SEASONS CALENDAR, AWARENESS BRACELETS AND APPAREL, SOCIAL MEDIA CAMPAIGNS, E-COMMUNICATIONS, PUBLICATIONS, AND LEGISLATIVE ADVOCACY.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $751,076

Program Service Revenue $144,048

Investment Income $72,359

Other Revenue $666,887

TOTAL REVENUE $1,634,370

Expense Breakdown

Grants Paid $0

Salaries & Benefits $803,196

Fundraising Expenses $177,125

Program Expenses $1,346,027

Other Expenses $804,729

TOTAL EXPENSES $1,607,925

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,634,370	$1,162,034	+0.4%
Expenses	$1,607,925	$1,341,262	+0.2%
Net Income	$26,445	$-179,228	-1.1%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
MATTHEW KANE	PRESIDENT	0.50	Officer Director	$0	$0	$0
MICHELLE ABOUNADER	VICE PRESIDENT	0.50	Officer Director	$0	$0	$0
JOE NIEMEYER	TREASURER	0.50	Officer Director	$0	$0	$0
DWAYNE WORLEY	SECRETARY	0.50	Officer Director	$0	$0	$0
BEAU ANCES	DIRECTOR	0.50	Director	$0	$0	$0
CHRIS CANFIELD	DIRECTOR	0.50	Director	$0	$0	$0
ANDY CONOVER	DIRECTOR	0.50	Director	$0	$0	$0
KEVIN COURTNEY	DIRECTOR	0.50	Director	$0	$0	$0
TIFFANY FIZER	DIRECTOR	0.50	Director	$0	$0	$0
MATTHEW FLOYD	DIRECTOR	0.50	Director	$0	$0	$0
DAIN GIESIE	DIRECTOR	0.50	Director	$0	$0	$0
ANNA HARTWEGER	DIRECTOR	0.50	Director	$0	$0	$0
RENATA KEYS	DIRECTOR	0.50	Director	$0	$0	$0
RAY KLEEMAN	DIRECTOR	0.50	Director	$0	$0	$0
JOE LAMARTINA	DIRECTOR	0.50	Director	$0	$0	$0
JESSECA LEGGETT	DIRECTOR	0.50	Director	$0	$0	$0
MICHELLE MCCLAY	DIRECTOR	0.50	Director	$0	$0	$0
ROCHELLE NICHOLS	DIRECTOR	0.50	Director	$0	$0	$0
EMORY REHKOP	DIRECTOR	0.50	Director	$0	$0	$0
BEAU REINBERG	DIRECTOR	0.50	Director	$0	$0	$0
SUSIE STUFFLEBAUM	DIRECTOR	0.50	Director	$0	$0	$0
JONATHAN WALDRON	DIRECTOR	0.50	Director	$0	$0	$0
CLAIRE WATSON	DIRECTOR	0.50	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,634,370	$1,607,925	$2,599,562	$26,445
2023	$1,162,034	$1,341,262	$1,675,737	$-179,228
2022	$1,150,647	$1,046,936	$1,734,878	$103,711
2021	$1,178,992	$917,495	$1,710,185	$261,497
2020	$641,765	$600,399	$1,288,297	$41,366
2019	$768,610	$681,025	$1,204,235	$87,585
2018	$552,606	$604,576	$1,024,797	$-51,970

DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS