LUPUS FOUNDATION OF AMERICA INC

PUBLIC INFORMATION AND EDUCATION:THE FOUNDATION STRENGTHENED ITS ROLE AS THE LEADING SOURCE OF LUPUS INFORMATION. THE LUPUS.ORG WEBSITE REACHED MORE THAN 9.8 MILLION ANNUAL VIEWS, SUPPORTED BY HOMEPAGE OPTIMIZATION IMPROVEMENTS AND THE INTEGRATION OF THE DIGITAL KNOW LUPUS QUIZ TO ENHANCE ENGAGEMENT DURING LUPUS AWARENESS MONTH (LAM) AND YEAR-ROUND. SOCIAL MEDIA FOLLOWING GREW TO MORE THAN 450,000 COMBINED FOLLOWERS ACROSS PLATFORMS, SUPPORTED BY TARGETED CAMPAIGNS, INCLUDING "SPOTLIGHT SERIES" INITIATIVES HIGHLIGHTING DISPARITIES AND THE UNIQUE IMPACT OF LUPUS ACROSS POPULATIONS.LUPUS AWARENESS MONTH CONTINUED UNDER THE THEME MAKE LUPUS VISIBLE, FEATURING EDUCATIONAL RESOURCES, PERSONAL STORIES, VIDEOS, ADVOCACY EVENTS, AND PROMOTIONAL EFFORTS TIED TO MAJOR FUNDRAISING INITIATIVES AND THE NATIONAL LUPUS ADVOCACY SUMMIT. AN OMNIBUS AWARENESS SURVEY SHOWED 53% OF U.S. ADULTS STILL REPORTED LIMITED OR NO KNOWLEDGE OF THE DISEASE, UNDERSCORING THE NEED FOR CONTINUED EDUCATION.GLOBALLY, THE FOUNDATION LED WORLD LUPUS DAY ON MAY 10 THROUGH ITS WORLD LUPUS FEDERATION (WLF), EXECUTING AN INTERNATIONAL MAKE LUPUS VISIBLE CAMPAIGN. IN 2025, THE FEDERATION MARKED ITS 10TH ANNIVERSARY WITH A COMPREHENSIVE COMMUNICATIONS CAMPAIGN, NEW LOGO, AND REDESIGNED WEBSITE TO CELEBRATE A DECADE OF IMPACT. THE WORLD LUPUS FEDERATION, NOW COMPRISING APPROXIMATELY 250 ORGANIZATIONS ACROSS 75 COUNTRIES, COMPLETED KEY INITIATIVES IDENTIFIED IN ITS NEEDS ASSESSMENT, INCLUDING DEVELOPMENT OF A SPANISH-LANGUAGE "UNDERSTANDING LUPUS" FACT SHEET FOR INTERNATIONAL PARTNERS AND A GLOBAL WEBINAR ON CREATING PEER-LED SUPPORT GROUPS.

PATIENT EDUCATION AND SUPPORT:THE FOUNDATION'S NATIONAL RESOURCE CENTER ON LUPUS (NRCL) REMAINED CENTRAL TO PATIENT EDUCATION, REACHING NEARLY 2 MILLION USERS AND GENERATING 3.3 MILLION SESSIONS IN 2025 WITH A 65% ENGAGEMENT RATE. THE FOUNDATION UPDATED OR CREATED NEW 24 MEDICALLY-REVIEWED ENGLISH RESOURCES AND 20 SPANISH RESOURCES, WITH 88% OF MATERIALS NOW AVAILABLE BILINGUALLY. NEW BLOG CONTENT ADDRESSED MENTAL HEALTH, LUPUS NEPHRITIS, AND LIFESTYLE STRATEGIES.THE FOUNDATION HOSTED 29 LUPUS & YOU EMPOWERMENT CONFERENCES, ATTRACTING MORE THAN 1,500 IN-PERSON ATTENDEES, 41% OF WHOM WERE NEW TO THE ORGANIZATION. CONFERENCES PROVIDED EDUCATION, SUPPORT, AND OPPORTUNITIES FOR RESEARCH ENGAGEMENT. ADDITIONALLY, THE LUPUS & YOU: ANSWERS, ADVOCACY, ACTION WEBINAR SERIES REACHED NEARLY 7,900 INDIVIDUALS THROUGH LIVE AND RECORDED SESSIONS. SELF-MANAGEMENT EDUCATION CONTINUED TO GROW THROUGH THE SELF (STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY) PROGRAM, NOW DELIVERED VIA MOBILE APP. IN 2025, MORE THAN 5,200 INDIVIDUALS REGISTERED FOR THE APP, WITH 1,200 MONTHLY ACTIVE USERS. COMPLEMENTARY TOOLS INCLUDED A PEER SELF-MANAGEMENT PILOT PROGRAM, PRINTED GUIDES, AND A HEALTH CARE PROFESSIONAL REFERRAL TOOLKIT.THE TAKE CHARGE/TOME CONTROL EMAIL SERIES GAINED 842 NEW SUBSCRIBERS IN FY2025, REACHING MORE THAN 17,000 SUBSCRIBERS OVERALL, WITH ABOUT 20% SELECTING SPANISH-LANGUAGE CONTENT. THE EXPERT SERIES PODCAST ADDED NEW EPISODES ADDRESSING FIBROMYALGIA, MENOPAUSE, AND LUPUS IN MEN.COMMUNITY-LEVEL OUTREACH INCLUDED PARTNERSHIPS WITH 20 LIBRARIES, LOCAL EVENTS REACHING NEARLY 2,000 ATTENDEES, AND THE BE FIERCE. TAKE CONTROL. AWARENESS CAMPAIGN, WHICH GENERATED 16.9 MILLION AD VIEWS AND MORE THAN 56,000 WEBSITE VISITS. HEALTH EDUCATION SPECIALISTS RESPONDED TO 2,887 INQUIRIES FROM INDIVIDUALS ACROSS 46 STATES, THREE U.S. TERRITORIES, AND MORE THAN 65 COUNTRIES. TRANSLATION SERVICES EXPANDED CULTURALLY APPROPRIATE MATERIALS AND PROGRAM ACCESS.THE FOUNDATION UPDATED 42 STATE AND LOCAL 211 SYSTEMS WITH LUPUS RESOURCES AND LAUNCHED A CONTINUING NURSING EDUCATION COURSE ACCESSED BY MORE THAN 100 NURSES SHORTLY AFTER RELEASE. THE COMMUNITY HEALTH WORKER RESOURCE HUB EXPANDED WITH UPDATED MODULES AND A SPANISH-LANGUAGE PROMOTORES DE SALUD HUB. OUTREACH EFFORTS REACHED HUNDREDS OF FRONTLINE HEALTH WORKERS, AND SPECIALIZED WORKSHOPS SUPPORTED CULTURALLY RELEVANT EDUCATION IN NATIVE AMERICAN COMMUNITIES.ADDITIONAL PROFESSIONAL ENGAGEMENT INCLUDED DEVELOPMENT OF PROVIDER REFERRAL TOOLKITS, UPDATED CLINICIAN-FOCUSED CONTENT, EDUCATIONAL VIDEOS, CONFERENCE PRESENTATIONS, AND COLLABORATIVE PARTNERSHIPS TO STRENGTHEN REFERRAL PATHWAYS AND IMPROVE LUPUS CARE DELIVERY.