CHARGE SYNDROME FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1993

Legal Domicile

Principal Officer

NEAL STANGER

Phone

5166844720

Tax Period

2024-01-01 to 2024-12-31

CHARGE SYNDROME FOUNDATION, founded in 1993, is a small nonprofit in the Philanthropy & Grantmaking sector that reported $539K in total revenue in fiscal year 2024. Revenue fell 52% from the prior year — a significant decline worth monitoring. Net assets of $1.6M represent 36 months of operating reserves.

Mission

WE LEAD AND PARTNER TO IMPROVE THE LIVES OF PEOPLE WITH CHARGE SYNDROME LOCALLY, NATIONALLY, AND INTERNATIONALLY THROUGH OUTREACH, EDUCATION, AND RESEARCH.

Program Service Accomplishments

Program 1

Expenses: $460,754

PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH AN INDIVIDUAL WITH CHARGE; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $289,907

Program Service Revenue $0

Investment Income $48,824

Other Revenue $200,609

TOTAL REVENUE $539,340

Expense Breakdown

Grants Paid $181,620

Salaries & Benefits $248,689

Fundraising Expenses $21,122

Program Expenses $460,754

Other Expenses $113,791

TOTAL EXPENSES $544,100

Year-over-Year Comparison

	2024	2023	Change
Revenue	$539,340	$1,127,763	-0.5%
Expenses	$544,100	$922,660	-0.4%
Net Income	$-4,760	$205,103	-1.0%

Key Indicators

✗ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

443

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

$135,196

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
NEAL STANGER	PRESIDENT	20.00	Officer Director	$0	$0	$0
BEN DAIGLE	DIRECTOR	5.00	Director	$0	$0	$0
MINNIE LEE LAMBERT	DIRECTOR	8.00	Director	$0	$0	$0
LISA CUNNINGHAM	EXECUTIVE DIRECTOR	40.00	Director	$135,196	$0	$135,196
LILY SLAVIN	DIRECTOR	5.00	Director	$0	$0	$0
SARA ESPANET	DIRECTOR	5.00	Director	$0	$0	$0
PENNI ECHOLS	VICE PRESIDENT	10.00	Officer Director	$0	$0	$0
JOANNE LENT	SECRETARY	10.00	Officer Director	$0	$0	$0
AMRIT MEHTA	TREASURER	10.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$539,340	$544,100	$1,718,691	$-4,760
2023	$1,127,763	$922,660	$1,592,023	$205,103
2022	$502,106	$355,542	$1,432,888	$146,564
2021	$572,792	$375,219	$1,240,274	$197,573
2020	$427,329	$256,958	$1,077,372	$170,371
2019	$758,606	$616,390	$828,771	$142,216
2018	$374,075	$297,133	$671,248	$76,942