FABRY SUPPORT & INFORMATION GROUP

EIN: 431890134 501(c)(3) Diseases & Disorders

Concordia, MO

Total Revenue
$443,701
Total Expenses
$541,381
Total Assets
$736,747
Net Assets
$695,255
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2000
Legal Domicile
MO
Principal Officer
Jack Johnson
Phone
6604631355
Tax Period
2023-01-01 to 2023-12-31

FABRY SUPPORT & INFORMATION GROUP, founded in 2000, is a small nonprofit in the Diseases & Disorders sector that reported $444K in total revenue in fiscal year 2023. Revenue fell 35% from the prior year — a significant decline worth monitoring. Expenses of $541K exceeded revenue, resulting in a 22% operating deficit.

Mission

Our mission is to provide information, advocacy, education, and compassionate support to improve the quality of life and care for those individuals suffering with Fabry.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $65,632
Program Service Revenue $353,199
Investment Income $10,595
Other Revenue $14,275
TOTAL REVENUE $443,701

Expense Breakdown

Grants Paid $0
Salaries & Benefits $279,387
Fundraising Expenses $28,110
Program Expenses $374,940
Other Expenses $235,819
TOTAL EXPENSES $541,381

Year-over-Year Comparison

2023 2022 Change
Revenue $443,701 $680,471 -0.3%
Expenses $541,381 $504,845 +0.1%
Net Income $-97,680 $175,626 -1.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
6
Independent Members
6
Employees
8
Volunteers
2

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
7
$0
Key Employees
1
$80,600
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
JACK JOHNSON EXECUTIVE DIRECTOR 040.00
Key Emp
$80,600 $0 $80,600
AMY YOUNG PRESIDENT 000.50
Officer Director
$0 $0 $0
JASON FRETT VICE PRESIDENT 000.25
Officer Director
$0 $0 $0
DEBRA JOHNSON SECRETARY/TREASURER 015.00
Officer Director
$0 $0 $0
FREDDY BATTAH BOARD MEMBER 000.10
Director
$0 $0 $0
MARK GELFOND BOARD MEMBER 000.10
Director
$0 $0 $0
JEAN CAMPBELL BOARD MEMBER 000.10
Director
$0 $0 $0
ANITA BRANDT BURGOYNE BOARD MEMBER 000.10
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $443,701 $541,381 $736,747 $-97,680
2022 $680,471 $504,845 $804,958 $175,626
2021 $441,876 $312,849 $633,650 $129,027
2020 $362,522 $273,230 $455,948 $89,292
2019 $402,595 $319,366 $335,853 $83,229
2018 $372,034 $314,589 $231,854 $57,445
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