Owingsville, KY
4 risk indicators measuring financial stability and operational resilience
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Sign In — Free (10 views/day)GLUT1 Deficiency Foundation Inc, founded in 2011, is a small nonprofit in the Diseases & Disorders sector that reported $505K in total revenue in fiscal year 2025. Expenses of $484K left a modest 4% surplus.
The GLUT1 Deficiency Foundation is a parent-led patient advocacy organizatino dedicated to bringing help and hope to the GLUT1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.
RESEARCH SUPPORT: The GLUT1 Deficiency Foundation supports research to advance understanding of GLUT1 Deficiency and accelerate the development of improved treatments. The Foundation awards seed...
RESEARCH SUPPORT: The GLUT1 Deficiency Foundation supports research to advance understanding of GLUT1 Deficiency and accelerate the development of improved treatments. The Foundation awards seed grants to investigators whose projects align with patient-driven priorities identified through our collaborative Research Compass. In 2025, G1DF funded four research projects totaling $167,110. Funds from one previously awarded grant ($17,768) were returned following the investigators relocation. Additional research investments supported the development of open-source research tools, participation in scientific meetings, and the Foundations first in-person Research Workshop. G1DF completed its PCORI-funded Research Ready Series, which provided research fundamentals training to patients, families, and other stakeholders. The G1DF also continues to collect and store biospecimens for research use, gather patient-reported data through an ongoing natural history study, and build a collaborative research network to drive progress.
EDUCATION AND AWARENESS: The GLUT1 Deficiency Foundation has several outreach programs to help raise awareness and improve education among stakeholders in the community. In 2025, we hosted...
EDUCATION AND AWARENESS: The GLUT1 Deficiency Foundation has several outreach programs to help raise awareness and improve education among stakeholders in the community. In 2025, we hosted educational exhibits at 3 professional meetings to educate healthcare professionals in a position to diagnosed patients or improve care. We helped with a global symposium for ketogenic dietary therapies and the European GLUT1 Conference as a nonprofit sponsor. We created new resources for our website and updated our brochure which is available in digitial and print form. Informational packets were created and mailed to 80 newly diagnosed families.
ADVOCACY AND SUPPORT: Monthly virtual meetings were held on Zoom for parents and caregivers, in both English and Spanish sessions. Monthly meetings were also held for tween and teenage patients and...
ADVOCACY AND SUPPORT: Monthly virtual meetings were held on Zoom for parents and caregivers, in both English and Spanish sessions. Monthly meetings were also held for tween and teenage patients and for adult patients. A private Facebook group is managed as a place for the community to get information and support. We had 1:1 consultation sessions available for school support, behavior support, ketogenic diet support, and peer support. The G1DF launched our Collaborative Care Network to identify centers who provide high quality, patient-centered care and work collaboratively across the network to improve outcomes. rare disease community.
Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency
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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)
Sign In — Free (10 views/day)| 2025 | 2024 | Change | |
|---|---|---|---|
| Revenue | $504,749 | $514,707 | 0.0% |
| Expenses | $484,095 | $608,978 | -0.2% |
| Net Income | $20,654 | $-94,271 | -1.2% |
Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics
Financial Distress Indicator
Liquidity & Cash Position
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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics
Sign In| Name | Title | Hours/Week | Role | Reportable Comp | Other Comp | Total |
|---|---|---|---|---|---|---|
| Glenna Steele | Executive Director | 40.00 |
Officer
Key Emp
|
$55,000 | $0 | $55,000 |
| Sandra Ojeda | Science Director | 40.00 |
Key Emp
|
$51,000 | $0 | $51,000 |
| Rob Rapaport | President | 5.00 |
Director
|
$0 | $0 | $0 |
| Kelly Jones | Vice President | 3.00 |
Director
|
$0 | $0 | $0 |
| Debbie Stoddard | Treasurer | 3.00 |
Director
|
$0 | $0 | $0 |
| Erin Meisner | Director | 3.00 |
Director
|
$0 | $0 | $0 |
| April Breen | Director | 3.00 |
Director
|
$0 | $0 | $0 |
| Leigh Hopkins | Secretary | 3.00 |
Director
|
$0 | $0 | $0 |
| Year | Revenue | Expenses | Assets | Net Income |
|---|---|---|---|---|
| 2025 | $504,749 | $484,095 | $358,299 | $20,654 |
| 2024 | $514,707 | $608,978 | $365,826 | $-94,271 |
| 2023 | $340,216 | $359,501 | $466,027 | $-19,285 |
| 2022 | $776,976 | $611,811 | $447,949 | $165,165 |
| 2021 | $451,967 | $345,696 | $401,741 | $106,271 |
| 2020 | $357,668 | $285,999 | $489,814 | $71,669 |
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