GLUT1 Deficiency Foundation Inc (EIN 452190535) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2011

Legal Domicile

Principal Officer

Glenna Steele

Phone

8592872928

Tax Period

2025-01-01 to 2025-12-31

GLUT1 Deficiency Foundation Inc, founded in 2011, is a small nonprofit in the Diseases & Disorders sector that reported $505K in total revenue in fiscal year 2025. Expenses of $484K left a modest 4% surplus.

Mission

The GLUT1 Deficiency Foundation is a parent-led patient advocacy organizatino dedicated to bringing help and hope to the GLUT1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $483,828

Program Service Revenue $13,777

Investment Income $6,294

Other Revenue $850

TOTAL REVENUE $504,749

Expense Breakdown

Grants Paid $149,342

Salaries & Benefits $130,994

Fundraising Expenses $26,519

Program Expenses $409,485

Other Expenses $203,759

TOTAL EXPENSES $484,095

Year-over-Year Comparison

	2025	2024	Change
Revenue	$504,749	$514,707	0.0%
Expenses	$484,095	$608,978	-0.2%
Net Income	$20,654	$-94,271	-1.2%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$55,000

Total Directors

Key Employees

$106,000

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Glenna Steele	Executive Director	40.00	Officer Key Emp	$55,000	$0	$55,000
Sandra Ojeda	Science Director	40.00	Key Emp	$51,000	$0	$51,000
Rob Rapaport	President	5.00	Director	$0	$0	$0
Kelly Jones	Vice President	3.00	Director	$0	$0	$0
Debbie Stoddard	Treasurer	3.00	Director	$0	$0	$0
Erin Meisner	Director	3.00	Director	$0	$0	$0
April Breen	Director	3.00	Director	$0	$0	$0
Leigh Hopkins	Secretary	3.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$504,749	$484,095	$358,299	$20,654
2024	$514,707	$608,978	$365,826	$-94,271
2023	$340,216	$359,501	$466,027	$-19,285
2022	$776,976	$611,811	$447,949	$165,165
2021	$451,967	$345,696	$401,741	$106,271
2020	$357,668	$285,999	$489,814	$71,669

GLUT1 Deficiency Foundation Inc