Li Fraumeni Syndrome Association I… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2011

Legal Domicile

Principal Officer

Jennifer Perry

Phone

7742660503

Tax Period

2024-01-01 to 2024-12-31

Li Fraumeni Syndrome Association Inc, founded in 2011, is a small nonprofit in the Health Care sector that reported $278K in total revenue in fiscal year 2024.

Mission

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Program Service Accomplishments

Program 1

Expenses: $270,475

LFSA organized and financially supported the annual international LFSA Conference wherein lending researchers, providers, genetic counselors, patients and their families from all over the world...

LFSA organized and financially supported the annual international LFSA Conference wherein lending researchers, providers, genetic counselors, patients and their families from all over the world shared LFSA experiences and information on the most recent LFSA cancer research, screening protocols, potential treatments, and survivorship issues. The LFSA provided patient travel scholarships for those who could otherwise not afford to attend and funded conference events and materials.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $0

Program Service Revenue $277,925

Investment Income $6

Other Revenue $0

TOTAL REVENUE $277,931

Expense Breakdown

Grants Paid $0

Salaries & Benefits $0

Fundraising Expenses $0

Program Expenses $270,475

Other Expenses $275,728

TOTAL EXPENSES $275,728

Year-over-Year Comparison

	2024	2023	Change
Revenue	$277,931	N/A	N/A
Expenses	$275,728	N/A	N/A
Net Income	$2,203	$0	N/A

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

N/A

Employees

N/A

Volunteers

130

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Rob Lufkin	Med. Director	5.00	Director	$0	$0	$0
Deb Soprano	Dev. Director	25.00	Director	$0	$0	$0
Gina Vild	Comm.	25.00	Director	$0	$0	$0
Kathy Higgins	Educ. & Aware.	15.00	Director	$0	$0	$0
Sean Downing	Science	3.00	Director	$0	$0	$0
Jennifer Perry	President/Co- Founder	25.00	Officer	$0	$0	$0
Holly Fraumeni	Vice President	25.00	Officer	$0	$0	$0
Erica Kirschner	Secretary	10.00	Officer	$0	$0	$0
Michele Giovenelli	Treasurer	2.00	Officer	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$277,931	$275,728	$114,375	$2,203
2020	$604,521	$180,483	$451,882	$424,038
2018	$309,495	$636,063	$28,541	$-326,568
2017	$206,087	$369,367	$355,109	$-163,280
2016	$734,506	$289,423	$518,390	$445,083

Li Fraumeni Syndrome Association Inc