Cystic Fibrosis Research Fund Inc

EIN: 453768161 501(c)(3) Diseases & Disorders

Ardmore, PA

Total Revenue
$3,033,288
Total Expenses
$2,762,609
Total Assets
$5,622,025
Net Assets
$5,596,776
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1987
Legal Domicile
PA
Principal Officer
Michael Golinkoff
Phone
2153416720
Tax Period
2025-01-01 to 2025-12-31

Cystic Fibrosis Research Fund Inc, founded in 1987, is a community nonprofit in the Diseases & Disorders sector that reported $3.0M in total revenue in fiscal year 2025. Revenue decreased 12% compared to the prior year. Expenses of $2.8M left a modest 9% surplus.

Mission

Research and drug development for the 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $2,953,840
Program Service Revenue $0
Investment Income $207,704
Other Revenue $-128,256
TOTAL REVENUE $3,033,288

Expense Breakdown

Grants Paid $1,270,594
Salaries & Benefits $823,516
Fundraising Expenses $268,933
Program Expenses $2,302,449
Other Expenses $668,499
TOTAL EXPENSES $2,762,609

Year-over-Year Comparison

2025 2024 Change
Revenue $3,033,288 $3,451,167 -0.1%
Expenses $2,762,609 $2,959,423 -0.1%
Net Income $270,679 $491,744 -0.4%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Governance

Voting Members
14
Independent Members
14
Employees
11
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$0
Total Directors
14
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Greg Reh Director 000.50
Director
$0 $0 $0
Jessica Rutstein Lazarus Director 000.50
Director
$0 $0 $0
Beth Shapiro Lavin Director 002.00
Director
$0 $0 $0
Julie Wertheimer Director 000.20
Director
$0 $0 $0
Coby Kramer Golinkoff Director 005.00
Director
$0 $0 $0
Danielle Selber Director 000.50
Director
$0 $0 $0
Doug Young Director 000.20
Director
$0 $0 $0
Nickie Boston Director 001.00
Director
$0 $0 $0
Emily Kramer Golinkoff Director 010.00
Director
$0 $0 $0
Nick Dinges Director 001.00
Director
$0 $0 $0
Joan Denenberg Director 002.00
Director
$0 $0 $0
Michael Golinkoff President 010.00
Officer Director
$0 $0 $0
Elizabeth Kramer Secretary 020.00
Officer Director
$0 $0 $0
Nancy Astor Fox Director 000.20
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $3,033,288 $2,762,609 $5,622,025 $270,679
2024 $3,451,167 $2,959,423 $5,958,828 $491,744
2023 $2,799,957 $2,119,809 $5,004,389 $680,148
2022 $1,789,652 $1,954,560 $4,247,786 $-164,908
2021 $2,091,732 $943,930 $4,381,158 $1,147,802
2020 $2,042,398 $1,169,291 $3,196,742 $873,107
2019 $2,089,368 $1,071,094 $2,308,993 $1,018,274
2018 $1,448,059 $1,282,787 $1,279,930 $165,272
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