HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC

EIN: 454955538 501(c)(3) Diseases & Disorders

LIVONIA, MI

Total Revenue
$430,447
Total Expenses
$297,938
Total Assets
$384,129
Net Assets
$384,129
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2013
Legal Domicile
MN
Principal Officer
JENNA HEILMAN
Phone
9522705428
Tax Period
2023-01-01 to 2023-12-31

HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC, founded in 2013, is a small nonprofit in the Diseases & Disorders sector that reported $430K in total revenue in fiscal year 2023. Revenue surged 95% from the prior year, signaling strong growth momentum. The organization ran a surplus of $133K, a strong 31% operating margin.

Mission

THE HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA IS A NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES.

Program Service Accomplishments

Program 1
Expenses: $122,930 Revenue: $263,329

YOUNG ADULT CONGRESS EVENT: INTERNATIONAL YOUNG ADULT EVENT FOR SUPPORT AND EDUCATION.

Program 2
Expenses: $14,137

RESEARCH VIDEO SERIES: YOUNG PEOPLE NEED TO BE INFORMED ABOUT CLINICAL RESEARCH AND TRIALS IN AN EASY-TO-UNDERSTAND FORMAT. WE'VE PARTNERED WITH HDBUZZ TO TAKE THEIR ARTICLES AND CREATE 2 MINUTE LONG...

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RESEARCH VIDEO SERIES: YOUNG PEOPLE NEED TO BE INFORMED ABOUT CLINICAL RESEARCH AND TRIALS IN AN EASY-TO-UNDERSTAND FORMAT. WE'VE PARTNERED WITH HDBUZZ TO TAKE THEIR ARTICLES AND CREATE 2 MINUTE LONG VIDEOS THAT BREAK DOWN THE ARTICLES FOR YOUNG PEOPLE TO BECOME THEIR BEST ADVOCATES.

Program 3
Expenses: $50,000

HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE...

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HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE CREATION AND SHARING OF JOINT RESOURCES INCLUDING A WEBSITE, BROCHURES, EDUCATIONAL PROGRAMS, AND MUCH MORE. OUR SISTER ORGANIZATION WORKS INSYNC WITH HDYO-AMERICA TO COMBINE OUR EFFORTS TO PROVIDE THE BEST SUPPORT POSSIBLE FOR ALL YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HD.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $430,447
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $430,447

Expense Breakdown

Grants Paid $50,000
Salaries & Benefits $113,333
Fundraising Expenses $0
Program Expenses $282,168
Other Expenses $134,605
TOTAL EXPENSES $297,938

Year-over-Year Comparison

2023 2022 Change
Revenue $430,447 $220,565 +1.0%
Expenses $297,938 $229,787 +0.3%
Net Income $132,509 $-9,222 -15.4%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

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Liquidity & Cash Position

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Governance

Voting Members
4
Independent Members
4
Employees
N/A
Volunteers
40

Governance Policies

✓ Conflict of Interest Policy
✓ Whistleblower Policy
✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$113,333
Total Directors
15
$113,333
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DR BONNIE HENNIG-TRESTMENT BOARD MEMBER 2.00
Director
$0 $0 $0
JENNA HEILMAN EXECUTIVE DIRECTOR 15.00
Officer Director
$113,333 $0 $113,333
SETH ROTBERG TERM ENDED 08/2023 2.00
Director
$0 $0 $0
HAYLEY HUBBERSTEY TERM ENDED 01/2023 15.00
Officer Director
$0 $0 $0
TREY RANDALL SECRETARY 15.00
Officer Director
$0 $0 $0
JARROD STRYDOM TREASURER 15.00
Officer Director
$0 $0 $0
DR KELLY ATKINS INTERIM BOARD CHAIR 2.00
Director
$0 $0 $0
DR LAUREN BYRNE BOARD MEMBER 2.00
Director
$0 $0 $0
LAUREN YOUNGBORG BOARD MEMBER 2.00
Director
$0 $0 $0
ASHLEY CLARKE BOARD MEMBER 2.00
Director
$0 $0 $0
MATTHEW SHORE BOARD MEMBER 2.00
Director
$0 $0 $0
CLARE BRAITHWAITE BOARD MEMBER 2.00
Director
$0 $0 $0
JENNY HARTE BOARD MEMBER 2.00
Director
$0 $0 $0
ARIANA PULLIN CHAIR 2.00
Director
$0 $0 $0
PAUL CONN BOARD MEMBER 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $430,447 $297,938 $384,129 $132,509
2022 $220,565 $229,787 $251,620 $-9,222
2021 $202,772 $178,816 $260,842 $23,956
2020 $454,833 $298,686 $236,886 $156,147
2019 $361,807 $338,174 $80,739 $23,633
2018 $415,822 $400,948 $57,106 $14,874
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