THE SNOW FOUNDATION

EIN: 455308117 501(c)(3) Philanthropy & Grantmaking

CLAYTON, MO

Total Revenue
$607,564
Total Expenses
$237,983
Total Assets
$972,917
Net Assets
$972,971
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2012
Legal Domicile
MO
Principal Officer
STEPHANIE GEBEL
Phone
6364484134
Tax Period
2024-01-01 to 2024-12-31

THE SNOW FOUNDATION, founded in 2012, is a small nonprofit in the Philanthropy & Grantmaking sector that reported $608K in total revenue in fiscal year 2024. Revenue surged 27% from the prior year, signaling strong growth momentum. The organization ran a surplus of $370K, a strong 61% operating margin.

Mission

THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS AND NEURODEGENERATION.WOLFRAM SYNDROME SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION ALSO PROVIDES VALUABLE INSIGHT, RESOURCES, AND SUPPORT TO THE PATIENTS AND THEIRFAMILIES. THIS EMPOWERS THEM WITH THE KNOWLEDGE NECESSARY TO PARTICIPATE IN THEIR CARE AND POSITIVELY IMPACT THEIR FUTURE.

Program Service Accomplishments

Program 1
Expenses: $206,701

THE FOUNDATION SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION IS FOCUSED ON FUELING KNOWLEDGE, SPEEDING BETTER TREATMENTS AND SYMPTOM MANAGEMENT THERAPIES, AND...

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THE FOUNDATION SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION IS FOCUSED ON FUELING KNOWLEDGE, SPEEDING BETTER TREATMENTS AND SYMPTOM MANAGEMENT THERAPIES, AND DRIVING ENHANCEMENTS IN THE HEALTH CARE DELIVERY FOR WOLFRAM SYNDROME PATIENTS.THE FOUNDATION ALSO ENCOURAGES THE ENTIRE WOLFRAM SYNDROME COMMUNITY TO COME TOGETHER AND SHARE COMMON LIFE EXPERIENCES, EDUCATION AND MUTUAL AID. BY PROVIDING THESE CRITICAL RESOURCES AND SUPPORT SERVICES, THE FOUNDATION ENABLES WOLFRAM SYNDROME PATIENTS, THEIR FAMILIES AND CAREGIVERS TO POWERFULLY ADVOCATE FOR WHAT THEY NEED, WHEN AND HOW THEY NEED IT.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $630,248
Program Service Revenue $0
Investment Income $0
Other Revenue $-22,684
TOTAL REVENUE $607,564

Expense Breakdown

Grants Paid $56,910
Salaries & Benefits $86,322
Fundraising Expenses $8,516
Program Expenses $206,701
Other Expenses $94,751
TOTAL EXPENSES $237,983

Year-over-Year Comparison

2024 2023 Change
Revenue $607,564 $477,435 +0.3%
Expenses $237,983 $224,873 +0.1%
Net Income $369,581 $252,562 +0.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
6
Independent Members
4
Employees
N/A
Volunteers
8

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$60,000
Total Directors
6
$84,000
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
STEPHANIE S GEBEL PRESIDENT 40.00
Officer Director
$60,000 $0 $60,000
SPENCER W OWENS ESQ SECRETARY 1.00
Officer Director
$0 $0 $0
ROBERT W HAGGERTY TREASURER 2.00
Officer Director
$0 $0 $0
SARAH J GLADSTONE MD CHIEF SCIENTIFIC OFFICER 8.00
Officer Director
$0 $0 $0
JACK THOMAS SNOW DIRECTOR COMMUNICATIONS 2.00
Director
$0 $0 $0
PATRICIA M GIBILISCO PATIENT ADVOCACY LIAISON 18.00
Director
$24,000 $0 $24,000
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $607,564 $237,983 $972,917 $369,581
2023 $477,435 $224,873 $603,694 $252,562
2022 $297,516 $282,674 $351,722 $14,842
2021 $268,612 $133,981 $336,955 $134,631
2020 $171,082 $129,241 $209,369 $41,841
2019 $259,079 $169,091 $170,702 $89,988
2018 $176,133 $259,060 $76,306 $-82,927
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