LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC

EIN: 455312680 501(c)(3) Medical Research

FAIRFAX, VA

Total Revenue
$3,351,390
Total Expenses
$3,676,714
Total Assets
$1,851,613
Net Assets
$890,920
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Tuckman-Chang Vulnerability Assessment

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Financial Trends

Organization Details

Formation Year
2012
Legal Domicile
MD
Principal Officer
DR OZLEM GOKER-ALPAN
Phone
7032616220
Tax Period
2023-01-01 to 2023-12-31

LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC, founded in 2012, is a community nonprofit in the Medical Research sector that reported $1.9M in total revenue in fiscal year 2020. Expenses of $2.2M exceeded revenue, resulting in a 14% operating deficit.

Mission

RESEARCH AND UNRAVEL DISEASE CAUSING MECHANISMS AND EXPLORE NEW BIOMARKERS AND TREATMENT OPTIONS.

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Trantor Score

Financial Health & Payment Capacity Assessment (FICO Scale: 300–850)

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $491,100
Program Service Revenue $2,860,290
Investment Income $0
Other Revenue $0
TOTAL REVENUE $3,351,390

Expense Breakdown

Grants Paid $5,000
Salaries & Benefits $1,694,420
Fundraising Expenses $0
Program Expenses $3,332,840
Other Expenses $1,977,294
TOTAL EXPENSES $3,676,714

Year-over-Year Comparison

2023 2022 Change
Revenue $3,351,390 $3,020,151 +0.1%
Expenses $3,676,714 $2,474,219 +0.5%
Net Income $-325,324 $545,932 -1.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
4
Independent Members
N/A
Employees
26
Volunteers
3

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$446,512
Total Directors
4
$551,941
Key Employees
0
$0
Highest Compensated
2
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DR OZLEM GOKER-ALPAN PRESIDENT / FOUNDER 16.00
Officer Director
$289,151 $7,804 $296,955
LAUREN NOLL DIRECTOR / MANAGER 8.00
Director
$101,862 $3,567 $105,429
BOBBY SANDHU SECRETARY / LPN 8.00
Officer Director
$73,800 $0 $73,800
UYENSA BEESE TREASURER / OPERATIONS DIRECTOR 24.00
Officer Director
$70,458 $5,299 $75,757
MARGARITA IVANOVA DIR. OF TRANSLATIONAL RESEARCH 40.00
Highest
$112,241 $0 $112,241
LIA H VAN NURSE PRACTITIONER 40.00
Highest
$105,715 $0 $105,715
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $3,351,390 $3,676,714 $1,851,613 $-325,324
2022 $3,020,151 $2,474,219 $2,144,032 $545,932
2021 $2,664,551 $2,093,309 $1,635,612 $571,242
2020 $1,934,480 $2,201,912 $834,123 $-267,432
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