DYSAUTONOMIA INTERNATIONAL INC

EIN: 455437249 501(c)(3) Diseases & Disorders

EAST MORICHES, NY

Total Revenue
$1,221,343
Total Expenses
$1,241,572
Total Assets
$2,754,023
Net Assets
$2,650,284
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2012
Legal Domicile
NY
Principal Officer
SHANNON KOPLITZ
Phone
6312021720
Tax Period
2023-01-01 to 2023-12-31

DYSAUTONOMIA INTERNATIONAL INC, founded in 2012, is a community nonprofit in the Diseases & Disorders sector that reported $1.2M in total revenue in fiscal year 2023. Revenue decreased 18% compared to the prior year. Net assets of $2.7M represent 26 months of operating reserves.

Mission

To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.

Program Service Accomplishments

Program 1
Expenses: $334,580

Providing research funding for projects at major University Research Centers.

Program 2
Expenses: $324,918 Revenue: $114,532

Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.

Program 3
Expenses: $231,935 Revenue: $1,890

Advocacy Initiatives - Patient Support and Empowerment programs.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,118,815
Program Service Revenue $116,462
Investment Income $552
Other Revenue $-14,486
TOTAL REVENUE $1,221,343

Expense Breakdown

Grants Paid $263,200
Salaries & Benefits $502,809
Fundraising Expenses $147,673
Program Expenses $1,075,554
Other Expenses $475,563
TOTAL EXPENSES $1,241,572

Year-over-Year Comparison

2023 2022 Change
Revenue $1,221,343 $1,485,666 -0.2%
Expenses $1,241,572 $1,013,571 +0.2%
Net Income $-20,229 $472,095 -1.0%
Key Indicators
✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
7
Independent Members
6
Employees
10
Volunteers
300

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$131,250
Total Directors
5
$131,250
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
LAUREN STILES JD President & CEO 70.00
Officer Director
$131,250 $0 $131,250
AMY KOHUT JD CH. COMPL OFCR 2.00
Officer Director
$0 $0 $0
JACQUELINE RUTTER GULLY Secretary 10.00
Officer Director
$0 $0 $0
IRENE COLLINS Vice President 2.00
Officer Director
$0 $0 $0
SHANNON KOPLITZ Treasurer & CFO 10.00
Officer Director
$0 $0 $0
LIZA FISHER MBA Director 2.00
Officer
$0 $0 $0
SALVATORE DESENA MD Director 2.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $1,221,343 $1,241,572 $2,754,023 $-20,229
2022 $1,485,666 $1,013,571 $2,828,501 $472,095
2021 $1,133,539 $728,273 $2,460,755 $405,266
2020 $1,252,600 $724,872 $2,147,198 $527,728
2019 $1,286,383 $1,640,615 $1,902,775 $-354,232
2018 $1,480,829 $938,478 $1,787,780 $542,351
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