HUNTINGTON STUDY GROUP LTD

EIN: 455557987 501(c)(3) Diseases & Disorders

ROCHESTER, NY

Total Revenue
$5,041,772
Total Expenses
$4,916,902
Total Assets
$8,061,578
Net Assets
$6,828,844
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2012
Legal Domicile
NY
Principal Officer
DANIEL CLAASSEN MD MS
Phone
8004877671
Tax Period
2024-01-01 to 2024-12-31

HUNTINGTON STUDY GROUP LTD, founded in 2012, is a community nonprofit in the Diseases & Disorders sector that reported $5.0M in total revenue in fiscal year 2024. Revenue fell 21% from the prior year — a significant decline worth monitoring.

Mission

FOR ORGANIZATION'S MISSION AND MOST SIGNIFICANT ACTIVITIES.THE ORGANIZATION AIMS TO ADVANCE KNOWLEDGE ABOUT THE CAUSE(S), DISEASE PROGRESSION AND TREATMENT OF HUNTINGTON DISEASE AND RELATED DISORDERS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $347,233
Program Service Revenue $4,418,045
Investment Income $220,465
Other Revenue $56,029
TOTAL REVENUE $5,041,772

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,601,686
Fundraising Expenses $0
Program Expenses $2,955,272
Other Expenses $3,315,216
TOTAL EXPENSES $4,916,902

Year-over-Year Comparison

2024 2023 Change
Revenue $5,041,772 $6,359,880 -0.2%
Expenses $4,916,902 $6,564,085 -0.3%
Net Income $124,870 $-204,205 -1.6%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
4
Independent Members
3
Employees
36
Volunteers
211

Governance Policies

✓ Conflict of Interest Policy
✓ Whistleblower Policy
✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$679,642
Total Directors
6
$443,897
Key Employees
0
$0
Highest Compensated
5
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
JONI STEINMAN TREASURER (UNTIL NOV. 2024) 1.00
Officer Director
$0 $0 $0
SHARI KINEL JD CEO/SECRETARY (UNTIL 7/3/24) 40.00
Officer Director
$252,692 $29,571 $282,263
PETER SCHMIDT PHD CHAIR 1.00
Officer Director
$0 $0 $0
WILLIAM HOH VICE CHAIR 1.00
Officer Director
$0 $0 $0
ARVIND SREEDHARAN BOARD MEMBER 1.00
Director
$0 $0 $0
DANIEL CLAASSEN CEO (BEGIN 9/1/24) 40.00
Officer Director
$155,934 $5,700 $161,634
MICHAEL LENTINE CFO 40.00
Officer
$226,668 $9,077 $235,745
ANNE VAN DUSEN COO 40.00
Highest
$259,537 $20,080 $279,617
ELIZABETH DE BLIECK SR. DIR, PROJECT MANAGEMENT 40.00
Highest
$146,924 $7,268 $154,192
ELISE KAYSON-RUBIN VP OF CLINICAL OPERATIONS 40.00
Highest
$125,483 $11,231 $136,714
MELISSA AUSTIN DIR, CLINICAL OPERATIONS 40.00
Highest
$132,625 $27,848 $160,473
KELLEY MORGAN SR. PROJECT MANAGER 40.00
Highest
$121,595 $18,739 $140,334
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $5,041,772 $4,916,902 $8,061,578 $124,870
2023 $6,359,880 $6,564,085 $8,173,182 $-204,205
2022 $6,746,002 $6,756,731 $8,704,616 $-10,729
2021 $9,967,496 $9,091,521 $10,251,900 $875,975
2020 $11,167,411 $10,180,312 $7,657,910 $987,099
2019 $13,110,561 $12,788,592 $7,722,690 $321,969
2018 $9,752,778 $9,546,664 $5,832,539 $206,114
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