PREP4GOLD

PREP4GOLD STRIVES TO ESTABLISH THE NEXT GENERATION OF PREVENTION-SENSITIVE CARE -SUPPORTING PREVENTION, RESEARCH, EDUCATION AND PROGRAMS - FOR CHILDREN WITH CANCER AND THEIR FAMILIES IN FOUR KEY AREAS: ENVIRONMENT, TREATMENT, CURE, AND SURVIVORSHIP. PREP4GOLD TAKES A 360-DEGREE, PREVENTION-SENSITIVE APPROACH TO PREPARE THE NEXT GENERATION OF CARE FOR CHILDREN FIGHTING CANCER, ONE THAT STRIVES FOR OUR CHILDREN TO THRIVE, NOT JUST SURVIVE!PREVENTION: CENTRAL TO OUR PHILOSOPHY IS THE CONCEPT OF PREVENTION IN EVERY ASPECT OF CHILDHOOD CANCER. PREVENTION IN ITS TRUE FORM INCLUDES AVOIDING CHILDREN FROM DEVELOPING CANCER ALTOGETHER, LESSENING THE FINANCIAL BURDENS FROM THE DIAGNOSIS, ...CONTINUED ON SCHEDULE OCONTINUED FROM PAGE 2... PRECLUDING THE COMPLEX OF HARMS THAT IMPACT SURVIVORS AS A RESULT OF TREATMENT AS WELL AS ENVIRONMENTAL CONCERNS THROUGHOUT THEIR ENTIRE LIVES, AND PROTECTING THE PSYCHO-SOCIAL IMPACT UPON CHILDREN AND THE FAMILY. WE STRIVE TO APPLY THE CONCEPT OF PREVENTION IN A 360-DEGREE STRATEGY TO ADDRESS THE MOST PRESSING ISSUES FACED BY CHILDREN AND FAMILIES AS A RESULT OF THE DIAGNOSIS.RESEARCH: PREP4GOLD'S APPROACH TO CHILDHOOD CANCER RESEARCH CAN BE SUMMED UP IN ONE WORD: IMPACT. WITH LIMITED YET PRECIOUS RESOURCES, WE SEEK TO IDENTIFY FORWARD-THINKING AGGRESSIVE RESEARCH EFFORTS AIMED AT MOVING THE NEEDLE AHEAD. WITH THE AIM TO REDUCE DUPLICATIVE FUNDING, ORGANIZATIONALLY OUR GOAL IS OUTCOME DRIVEN RATHER THAN INCREMENTALLY FOCUSED.EDUCATION: MORE THAN RAISING AWARENESS, IT IS EMPOWERING PEOPLE WITH INFORMATION, MAKING EFFECTIVE CHANGE POSSIBLE. PARENTAL EDUCATION IS NEEDED TO FURTHER EASE THE IMPACT OF TREATMENT AND SURVIVORSHIP ON THEIR CHILDREN, THEMSELVES AS CARE PROVIDERS, AND THEIR FAMILIES. IT ALSO PROVIDES CONFIDENCE TO FAMILIES OF UNDERSERVED POPULATIONS THAT TREATMENT IS POSSIBLE AND OUTLINES HOW TO ACQUIRE VITAL CARE TO SAVE THEIR CHILDREN. EDUCATION IS IMPERATIVE FOR OUR CHILDHOOD CANCER EXPERTS TO EXPAND THE SPECTRUM OF CARE TO INCLUDE PSYCHOSOCIAL SUPPORT AND FINANCIAL COUNSELING FOR FAMILIES TO SUCCESSFULLY MANAGE MEDICAL EXPENSES. EDUCATING PROFESSIONALS OUTSIDE THE CHILDHOOD CANCER COMMUNITY ON CORE COMPETENCIES INCREASES THE WORKFORCE WHO CAN PROVIDE CUSTOMIZED CARE TO OUR CHILDREN IN TREATMENT, OUR SURVIVORS, AND THEIR FAMILIES.PROGRAMS: PROVIDE THE REMEDY AND SOLUTIONS TO THE MANY CHALLENGES EXPERIENCED BY CHILDREN AND THEIR FAMILIES IMPACTED BY CHILDHOOD CANCER. THROUGH A TEAM-SPIRITED APPROACH COLLABORATING WITH LIKE-MINDED COLLEAGUES, PREP4GOLD STRIVES TO DESIGN PROGRAMS BORN IN THE LABORATORY, CLINIC, LEGISLATURE AND BY FAMILIES THEMSELVES. IT TAKES INNOVATIVE PROGRAMMING TO IMPROVE THE LANDSCAPE OF CHILDHOOD CANCER AND SURVIVORSHIP, AND PROVIDE A LIFE OF QUALITY FOR OUR CHILDREN.MAJOR ACCOMPLISHMENTS FOR 2024: FOLLOWING THE SUCCESS OF THE HISTORIC INAUGURAL CHILDHOOD CANCER PREVENTION SYMPOSIUM CONVENED IN 2023, SIGNIFICANT TIME WAS SPENT DURING 2024 ENGAGING NUMEROUS CHILDHOOD CANCER ORGANIZATIONS TO MAINTAIN MOMENTUM FROM THE FIRST SYMPOSIUM. THIS INVOLVED PLANNING FOR THE 2ND CHILDHOOD CANCER PREVENTION SYMPOSIUM HELD AT TEXAS CHILDREN'S IN FEBRUARY 2025. IN ADDITION, WE BEGAN PUTTING TOGETHER THE CONSTRUCTS FOR WHAT WILL BE KNOWN AS THE CHILDHOOD CANCER PREVENTION CONSORTIUM. THIS CONSORTIUM WILL CONSIST OF PARTNERS COLLABORATING, CONVENING A WORLD CLASS SCIENTIFIC ADVISORY COUNCIL, AND IDENTIFYING AND OUTLINING A COMPREHENSIVE CHILDHOOD CANCER PREVENTION STRATEGY. SIGNIFICANT TIME AND EFFORT WERE SPENT ON CREATING THE OUTLINE AND FRAMEWORK FOR THE CONSORTIUM, PUTTING TOGETHER THE AGENDA AND PRESENTATIONS FOR THE SYMPOSIUM, WHICH WAS SCHEDULED FOR THREE FULL DAYS, AND ENGAGING WITH THE SCIENTIFIC AND CLINICAL COMMUNITY TO BETTER UNDERSTAND THE OBSTRUCTIONS TO CHILDHOOD CANCER PREVENTION. LARGE AMOUNTS OF TIME WERE SPENT IN IDENTIFYING, OUTLINING, AND BUILDING STRUCTURAL COMPONENTS OF PREP4GOLD'S PREVENTION MISSION.IN ADDITION, PREP4GOLD, THROUGH ITS EXECUTIVE DIRECTOR, ATTENDED VARIOUS MEETINGS AND CONFERENCES, INCLUDING A HIGH-LEVEL MEETING AT THE WHITE HOUSE, TO PARTICIPATE IN IMPORTANT DISCUSSIONS FACING THE CHILDHOOD CANCER COMMUNITY. WE MONITORED LEGISLATIVE ACTIVITY AND ENGAGED WITH OTHER MEMBERS OF THE COMMUNITY TO SUPPORT LEGISLATION THAT IMPACTED THE CHILDHOOD CANCER COMMUNITY. ADDITIONALLY, WE MONITORED PROGRESS BEING MADE BY GRANT RECIPIENTS TO ENSURE FUNDS WERE PROPERLY DIRECTED TO RESEARCH EFFORTS AND THAT PROJECTS WERE BEING ACTUALIZED. WE ALSO ENGAGED WITH OTHER ORGANIZATIONS TO CREATE GREATER AWARENESS OF OPPORTUNITIES FOR CHILDHOOD CANCER PREVENTION EFFORTS.