DOWN SYNDROME DIAGNOSIS NETWORK

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2013

Legal Domicile

Principal Officer

ANNA YEN KIM

Phone

6124600765

Tax Period

2023-11-01 to 2024-10-31

DOWN SYNDROME DIAGNOSIS NETWORK, founded in 2013, is a small nonprofit in the Diseases & Disorders sector that reported $562K in total revenue in fiscal year 2023. Revenue decreased 12% compared to the prior year. Expenses of $619K exceeded revenue, resulting in a 10% operating deficit.

Mission

TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS

Program Service Accomplishments

Program 1

Expenses: $506,916 Revenue: $139,366

CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED,RECHARGE, AND WORK ON SERVICE PROJECTS FOR FUTURE EXPECTANT...

CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED,RECHARGE, AND WORK ON SERVICE PROJECTS FOR FUTURE EXPECTANT AND NEWPARENTS. THE RETREATS ARE A 2-DAY EVENT WITH MEALS INCLUDED,MOTIVATIONAL SPEAKERS, PAMPERING SESSIONS, AND ACTIVITIES TO PROMOTE CONNECTION AMONGST ATTENDEES. REVENUE LISTED ABOVE INCLUDES REGISTRATION AND ACTIVITY FEES, EXHIBITOR FEES, AND RETREAT SPONSORSHIPS.

Program 2

INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL...

INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN TEAM MEMBERS ALSO ATTEND NATIONAL MEDICAL CONFERENCES TO ADVOCATE FOR AN UNBIASED, UP-TO-DATE AND FACTUAL DOWN SYNDROME DIAGNOSIS FORFAMILIES, AS WELL AS TO SHARE ABOUT DSDN'S SERVICES. DSDN ALSO CREATES AND DISTRIBUTES MATERIALS ON DELIVERING A DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.

Program 3

SUPPORT - DSDN PROVIDES SUPPORT TO EXPECTANT AND NEW FAMILIES THROUGH ONLINE SUPPORT GROUPS, WHICH ARE NOW PART OF A DSDN MOBILE APP. DSDN ALSO PROVIDES PREGNANCY GIFTS, NEW BABY GIFTS, AND WELCOME GIFTS WHEN A NEW FAMILY JOINS OUR COMMUNITY, AS WELL AS CARE PACKAGES WHEN A CHILD IS IN THE HOSPITAL, AND MEMORIAL GIFTS WHEN A CHILD PASSES AWAY. EACH YEAR, DSDN ALSO OFFERS ADOPTION GRANTS FOR FAMILIES IN THE PROCESS OF ADOPTING A CHILD WITH DOWN SYNDROME. ALSO PART OF OUR SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE DSDN ROCKIN' MOM AND ROCKIN' DAD RETREATS. DSDN ALSO AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $415,864

Program Service Revenue $134,697

Investment Income $6,883

Other Revenue $4,669

TOTAL REVENUE $562,113

Expense Breakdown

Grants Paid $13,750

Salaries & Benefits $149,103

Fundraising Expenses $58,592

Program Expenses $506,916

Other Expenses $456,051

TOTAL EXPENSES $618,904

Year-over-Year Comparison

	2023	2022	Change
Revenue	$562,113	$636,269	-0.1%
Expenses	$618,904	$575,865	+0.1%
Net Income	$-56,791	$60,404	-1.9%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

150

Governance Policies

✓ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$80,250

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
KATHLEEN SEITZ	PRESIDENT	1.00	Officer Director	$0	$0	$0
PATRICIA NESBITT	VICE PRESIDENT	1.00	Officer Director	$0	$0	$0
JULIA KAUFMAN	TREASURER	1.00	Officer Director	$0	$0	$0
TARYN LAGONIGRO	SECRETARY	1.00	Officer Director	$0	$0	$0
JENNY DI BENEDETTO	DIRECTOR	1.00	Director	$0	$0	$0
CASSANDRA DRAKE	DIRECTOR	1.00	Director	$0	$0	$0
BEN HUGHES	DIRECTOR	1.00	Director	$0	$0	$0
MICHAEL PASCUAL	DIRECTOR	1.00	Director	$0	$0	$0
JENNIFER DINGMAN	DIRECTOR	1.00	Director	$0	$0	$0
TONY NOWICKI	DIRECTOR	1.00	Director	$0	$0	$0
ANNA YEN KIM	DIRECTOR	1.00	Director	$0	$0	$0
SARAH MESA-HAAS	DIRECTOR	1.00	Director	$0	$0	$0
MELISSA SHUTWELL	EXECUTIVE DIRECTOR	32.00	Officer	$80,250	$0	$80,250

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	$562,113	$618,904	$627,566	$-56,791
2023	$636,269	$575,865	$701,264	$60,404
2022	$500,167	$505,978	$643,501	$-5,811
2021	$423,411	$423,720	$633,644	$-309
2020	$409,033	$255,579	$633,954	$153,454