KOOLEN-DE VRIES SYNDROME FOUNDATION

EIN: 463208388 501(c)(3) Diseases & Disorders

WILMINGTON, NC

Total Revenue
$263,173
Total Expenses
$270,270
Total Assets
$573,519
Net Assets
$573,519
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2013
Legal Domicile
MO
Principal Officer
GABRIEL STAGNER
Phone
8337315387
Tax Period
2024-01-01 to 2024-12-31

KOOLEN-DE VRIES SYNDROME FOUNDATION, founded in 2013, is a small nonprofit in the Diseases & Disorders sector that reported $263K in total revenue in fiscal year 2024. Revenue decreased 14% compared to the prior year. Net assets of $574K represent 26 months of operating reserves.

Mission

THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT (CONTINUED ON SCHEDULE O) SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $262,702
Program Service Revenue $38
Investment Income $433
Other Revenue $0
TOTAL REVENUE $263,173

Expense Breakdown

Grants Paid $204,254
Salaries & Benefits $0
Fundraising Expenses $5,695
Program Expenses $248,818
Other Expenses $66,016
TOTAL EXPENSES $270,270

Year-over-Year Comparison

2024 2023 Change
Revenue $263,173 $305,621 -0.1%
Expenses $270,270 $324,564 -0.2%
Net Income $-7,097 $-18,943 -0.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

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Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
11
Independent Members
11
Employees
N/A
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$0
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ALAYNA HAYNAM BOARD MEMBER 1.00
Director
$0 $0 $0
ASHLEY POINT PRESIDENT 10.00
Officer Director
$0 $0 $0
CINDY ASBURY BOARD MEMBER 1.00
Director
$0 $0 $0
EMILY LEMKE BOARD MEMBER 2.00
Director
$0 $0 $0
GABRIEL STAGNER TREASURER 5.00
Officer Director
$0 $0 $0
JESSICA COLLIER BOARD MEMBER 5.00
Director
$0 $0 $0
KACI FISHER BOARD MEMBER 5.00
Director
$0 $0 $0
NEAL DERMERER BOARD MEMBER 1.00
Director
$0 $0 $0
MARIA LUISA VALENTIN DE SOLIS BOARD MEMBER 1.00
Director
$0 $0 $0
KATIE MAHER BOARD MEMBER 2.00
Director
$0 $0 $0
MATT HOLCOMBE BOARD MEMBER 1.00
Director
$0 $0 $0
MEGAN HARTWELL BOARD MEMBER 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $263,173 $270,270 $573,519 $-7,097
2023 $305,621 $324,564 $580,616 $-18,943
2022 $237,465 $41,563 $599,559 $195,902
2021 $257,578 $144,163 $403,657 $113,415
2020 $154,424 $38,198 $290,242 $116,226
2019 $213,930 $161,746 $156,237 $52,184
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