BARDET BIEDL SYNDROME FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2014

Legal Domicile

Principal Officer

TIMOTHY OGDEN

Phone

8018503750

Tax Period

2024-08-01 to 2025-07-31

BARDET BIEDL SYNDROME FOUNDATION, founded in 2014, is a small nonprofit in the Health Care sector that reported $397K in total revenue in fiscal year 2024. Revenue surged 182% from the prior year, signaling strong growth momentum. The organization ran a surplus of $230K, a strong 58% operating margin.

Mission

THE ORGANIZATION'S MISSION IS TO BUILD A COMMUNITY OF SUPPORT FOR INDIVIDUALS AND FAMILIES, PROVIDE INFORMATION ABOUT BARDET BIEDL SYNDROME, AND PROMOTE SCIENCE AND RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS WITH BARDET BIEDL SYNDROME.

Program Service Accomplishments

Program 1

Expenses: $79,365

RESEARCH THE ORGANIZATION PROVIDED RESEARCH GRANTS TO SUPPORT THE CRIBBS REGISTRY. ORGANIZATION LEADERSHIP ATTENDED SCIENTIFIC CONFERENCES TO ADVANCE RESEARCH EFFORTS RELEVANT TO THE COMMUNITY...

RESEARCH THE ORGANIZATION PROVIDED RESEARCH GRANTS TO SUPPORT THE CRIBBS REGISTRY. ORGANIZATION LEADERSHIP ATTENDED SCIENTIFIC CONFERENCES TO ADVANCE RESEARCH EFFORTS RELEVANT TO THE COMMUNITY INCLUDING EMBO CILIA IN OCTOBER 2024 AND THE CHAN ZUCKERBERG INITIATIVE RARE AS ONE SUMMIT IN MAY 2025. PRESIDENT TIM OGDEN CO-AUTHORED A PEER REVIEWED PUBLICATION ON EFFECTIVE COLLABORATION BETWEEN PATIENT GROUPS AND RESEARCHERS.

Program 2

Expenses: $29,544

COMMUNITY SUPPORT THE ORGANIZATION CONNECTED FAMILIES AND SHARED INFORMATION ON RESEARCH, THERAPIES, AND CARE FOR BARDET BIEDL SYNDROME. THIS INCLUDED HOSTING A CONFERENCE FOR APPROXIMATELY 200...

COMMUNITY SUPPORT THE ORGANIZATION CONNECTED FAMILIES AND SHARED INFORMATION ON RESEARCH, THERAPIES, AND CARE FOR BARDET BIEDL SYNDROME. THIS INCLUDED HOSTING A CONFERENCE FOR APPROXIMATELY 200 PEOPLE IN JULY 2024, AND A SERIES OF WEBINARS AND LOCAL MEETINGS FOR MEMBERS AND THE GENERAL PUBLIC.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $396,828

Program Service Revenue $0

Investment Income $2

Other Revenue $0

TOTAL REVENUE $396,830

Expense Breakdown

Grants Paid $77,375

Salaries & Benefits $0

Fundraising Expenses $2,051

Program Expenses $108,909

Other Expenses $89,677

TOTAL EXPENSES $167,052

Year-over-Year Comparison

	2024	2023	Change
Revenue	$396,830	$140,723	+1.8%
Expenses	$167,052	$177,967	-0.1%
Net Income	$229,778	$-37,244	-7.2%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
TIMOTHY OGDEN	PRESIDENT	5.00	Officer Director	$0	$0	$0
ALEX OGEKA	VICE PRESIDE	1.00	Officer Director	$0	$0	$0
NATHAN ARNESEN	TREASURER	1.00	Officer Director	$0	$0	$0
DAVE POTHIER	BOARD MEMBER	1.00	Director	$0	$0	$0
TARA KLASSEN	BOARD MEMBER	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$396,830	$167,052	$609,072	$229,778
2023	$372,565	$172,225	$415,865	$200,340