RARE CANCER RESEARCH FOUNDATION

EIN: 463405526 501(c)(3) Medical Research

DURHAM, NC

Total Revenue
$3,503,960
Total Expenses
$2,167,619
Total Assets
$3,033,890
Net Assets
$2,091,757
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2013
Legal Domicile
NC
Principal Officer
MARSHALL THOMPSON
Phone
9198278373
Tax Period
2023-01-01 to 2023-12-31

RARE CANCER RESEARCH FOUNDATION, founded in 2013, is a community nonprofit in the Medical Research sector that reported $3.5M in total revenue in fiscal year 2023. Revenue surged 9210% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.3M, a strong 38% operating margin.

Mission

THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES.

Program Service Accomplishments

Program 1
Expenses: $889,907 Revenue: $856,707

PPOI (FORMERLY H37) IS ON A MISSION TO CREATE EXCEPTIONAL OUTCOMES FOR INDIVIDUALS FACING ADVANCED CANCER BY PUSHING THE BOUNDARIES OF SCIENCE, RESEARCH, AND CLINICAL INNOVATIONS. WORKING IN DEEP...

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PPOI (FORMERLY H37) IS ON A MISSION TO CREATE EXCEPTIONAL OUTCOMES FOR INDIVIDUALS FACING ADVANCED CANCER BY PUSHING THE BOUNDARIES OF SCIENCE, RESEARCH, AND CLINICAL INNOVATIONS. WORKING IN DEEP PARTNERSHIP WITH A SMALL GROUP OF CLIENTS WITH ADVANCED CANCERS, PPOI EXPLORES THE DETAILED MOLECULAR AND CLINICAL CHARACTERISTICS OF INDIVIDUAL CLIENT'S DISEASE TO HELP THEM AND THEIR CLINICAL TEAM MAKE MORE DATA-INFORMED DECISIONS ABOUT THEIR TREATMENT JOURNEY. WE HAVE ALREADY SEEN THE SUCCESS OF THIS PROGRAM IN THE FIRST PERSONALIZED VACCINE VALIDATED WITH MASS SPECTROMETRY IN THE COUNTRY AS WELL AS DAILY WINS AS WE WORK TO NAVIGATE THROUGH THIS COMPLEX AND EVER-CHANGING LANDSCAPE ON BEHALF OF THESE PATIENTS.

Program 2
Expenses: $406,457 Revenue: $35,252

PATTERN.ORG IS A GROUNDBREAKING PLATFORM THAT ALLOWS RCRF TO WORK DIRECTLY WITH CANCER PATIENTS ACROSS THE COUNTRY TO IDENTIFY PATIENTS ELIGIBLE TO DONATE TISSUE TO RESEARCH, EDUCATE THOSE PATIENTS...

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PATTERN.ORG IS A GROUNDBREAKING PLATFORM THAT ALLOWS RCRF TO WORK DIRECTLY WITH CANCER PATIENTS ACROSS THE COUNTRY TO IDENTIFY PATIENTS ELIGIBLE TO DONATE TISSUE TO RESEARCH, EDUCATE THOSE PATIENTS ON RESEARCH OPPORTUNITIES, CONSENT THEM INTO SUCH RESEARCH PROGRAMS, AND THEN COORDINATE THE BIO-LOGISTICS OF MOVING THEIR TISSUE FROM THEIR LOCAL HOSPITALS TO WORLD-CLASS RESEARCH INSTITUTIONS. PATTERN.ORG WAS LAUNCHED WITH GREAT SUCCESS IN 2016, AND IN 2023, DELIVERED HIGH QUALITY, VIABLE, LIVING RARE CANCER TISSUE FROM BOTH ACADEMIC AND COMMUNITY HOSPITALS ACROSS THE U.S. TO CRITICAL,INNOVATIVE RESEARCH INITIATIVES.

Program 3
Expenses: $231,263

A PROGRAM INITIATED IN 2023 TO DEVELOP A UNIFIED PLATFORM TO HOST COMBINED MOLECULAR AND CLINICAL RARE CANCER DATA WHICH WILL BE SHARED BROADLY WITH THE CANCER RESEARCH COMMUNITY.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,606,409
Program Service Revenue $891,959
Investment Income $0
Other Revenue $5,592
TOTAL REVENUE $3,503,960

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,039,281
Fundraising Expenses $0
Program Expenses $1,527,627
Other Expenses $1,128,338
TOTAL EXPENSES $2,167,619

Year-over-Year Comparison

2023 2022 Change
Revenue $3,503,960 $37,638 +92.1%
Expenses $2,167,619 $333,801 +5.5%
Net Income $1,336,341 $-296,163 -5.5%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Governance

Voting Members
4
Independent Members
3
Employees
10
Volunteers
N/A

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
⚠ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$321,090
Total Directors
5
$321,090
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
MARSHALL THOMPSON PRESIDENT 40.00
Officer Director
$189,251 $5,175 $194,426
AMBER SMITH BIOBANK MANA 40.00
Highest
$136,717 $5,175 $141,892
BARBARA VAN HARE PRES. OF PAT 40.00
Officer Director
$121,264 $5,400 $126,664
CHRIS HEERY DIRECTOR 1.00
Officer Director
$0 $0 $0
MARK LAABS FOUNDER & CH 15.00
Officer Director
$0 $0 $0
RYAN PRIPSTEIN DIRECTOR 1.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 No data No data No data No data
2023 $3,503,960 $2,167,619 $3,033,890 $1,336,341
2022 $37,638 $333,801 $757,505 $-296,163
2021 $1,072,853 $179,015 $1,051,579 $893,838
2020 $79,640 $183,429 $158,432 $-103,789
2019 $316,401 $246,863 $261,753 $69,538
2018 $347,745 $211,790 $194,013 $135,955
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