ALS OHANA (OF HAWAII)

EIN: 464222415 501(c)(3) Health Care

HONOLULU, HI

Total Revenue
$224,815
Total Expenses
$212,733
Total Assets
$14,224
Net Assets
$14,224
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2013
Legal Domicile
HI
Principal Officer
NATALIE FONDA
Phone
8082589388
Tax Period
2018-01-01 to 2018-12-31

ALS OHANA (OF HAWAII), founded in 2013, is a small nonprofit in the Health Care sector that reported $225K in total revenue in fiscal year 2018. Revenue surged 4407% from the prior year, signaling strong growth momentum. Expenses of $213K left a modest 5% surplus.

Mission

TO ENHANCE THE QUALITY OF LIFE FOR THOSE INDIVIDUALS IN HAWAII WHO ARE AFFECTED BY ALS BY PROVIDING COMPASSIONATE, PRACTICAL SUPPORT. THIS INCLUDES THE PERSON WITH ALS AS WELL AS FAMILY AND FRIENDS.

Program Service Accomplishments

Program 1
Expenses: $211,298

THE THREE PROGRAMMATIC AREAS IMPACTED INCLUDE: EXPERT CARE AND CONSULTATION, INCLUDING INFORMATION SHARING, REFERRALS, TRAINING AND SUPPORT; EQUIPMENT PURCHASES AND LOANS; AND ALS EDUCATION AND...

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THE THREE PROGRAMMATIC AREAS IMPACTED INCLUDE: EXPERT CARE AND CONSULTATION, INCLUDING INFORMATION SHARING, REFERRALS, TRAINING AND SUPPORT; EQUIPMENT PURCHASES AND LOANS; AND ALS EDUCATION AND AWARENESS. THE ORGANIZATION PROVIDED ESSENTIAL SERVICES TO HAWAII'S ALS COMMUNITY AS ALS OHANA (OF HAWAII) SUBCONTRACTED WITH ANOTHER COMMUNITY PARTNER SERVING HAWAII'S ALS COMMUNITY, THE ALS ASSOCIATION GOLDEN WEST CHAPTER. THE PARTNERSHIP WITH THE ALS ASSOCIATION GOLDEN WEST CHAPTER ENSURED THAT HAWAII'S ALS COMMUNITY HAD ACCESS TO A MODEL OF CARE PROVEN TO HELP PEOPLE WITH ALS LIVE LONGER AND BETTER THAN ANY OTHER KNOWN THERAPY. THE CHAPTER PROVIDED PROFESSIONAL ALS CARE MANAGEMENT, LOCAL SUPPORT GROUPS, MULTIDISCIPLINARY CLINICAL CARE, EQUIPMENT LOANS, EDUCATION AND AWARENESS EVENTS AND OPPORTUNITIES TO SHARE FORMAL FEEDBACK ABOUT PROGRAM EFFECTIVENESS. WITH GRANT SUPPORT, SERVICES WERE PROVIDED THROUGHOUT THE STATE AND AT NO COST TO THE ALS COMMUNITY. IN A STATE WHERE EXPERT CARE FOR DISEASES THAT ARE DEEMED "RARE AND WITH A DISEASE THAT IS HIGHLY VARIABLE, PROGRESSIVELY DEGENERATIVE AND ALWAYS FATAL, ACCESS TO THIS MODEL OF CARE IS INVALUABLE IN HAWAII. FROM HOME VISITS AND CONSULTATIONS VIA EVERY POSSIBLE MOBILE MODE, TO SUPPORT GROUPS WHERE PEOPLE LIVING WITH THE DISEASE CAN DIRECTLY CONNECT WITH EACH OTHER TO ACCESSING VITAL LIFE SUSTAINING AND LIFE-SAVING EQUIPMENT AND TRAINING TO USE THAT EQUIPMENT, GRANT FUNDING HELPED PEOPLE WITH ALS AND THEIR LOVED ONES MAINTAIN HEALTH, SAFETY, MOBILITY, AND WELL-BEING.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2018)

Revenue Breakdown

Contributions & Grants $224,815
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $224,815

Expense Breakdown

Grants Paid $209,487
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $211,298
Other Expenses $3,246
TOTAL EXPENSES $212,733

Year-over-Year Comparison

2018 2017 Change
Revenue $224,815 $4,988 +44.1%
Expenses $212,733 $5,226 +39.7%
Net Income $12,082 $-238 -51.8%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
3
Independent Members
3
Employees
N/A
Volunteers
6

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$0
Total Directors
3
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
NATALIE FONDA PRESIDENT AND TREASURER 2.00
Officer Director
$0 $0 $0
JAN MEDUSKY VICE PRESIDENT AND SECRETARY 2.00
Officer Director
$0 $0 $0
JOHN REPCZYNSKI DIRECTOR 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2018 $224,815 $212,733 $14,224 $12,082
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