PROJECT ALIVE

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

2014

Legal Domicile

Principal Officer

KAREN BEATTY

Phone

8652489092

Tax Period

2025-01-01 to 2025-12-31

PROJECT ALIVE, founded in 2014, is a small nonprofit in the Philanthropy & Grantmaking sector that reported $468K in total revenue in fiscal year 2025. Revenue grew 15% year-over-year, indicating healthy expansion. Expenses of $849K exceeded revenue, resulting in a 81% operating deficit.

Mission

PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.

Program Service Accomplishments

Program 1

Expenses: $71,856

RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO...

Program 2

Expenses: $90,935 Revenue: $20,000

FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED...

FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC. THIS INCLUDES HUNTER HEALTH PROGRAM.

Program 3

Expenses: $454,877

"N PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICALCOMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ONSUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE...

"N PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICALCOMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ONSUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II. HOSTED A MARKET INSIGHTS ROUNDTABLE TO DISCUSS WITH INSURANCE PAYORS THE NEED FOR THEM TO BE PROACTIVE IN HOW THEY WILL HANDLE COVERAGE OF NEWLY FDA APPROVED TREATMENTS FOR MPS II PATIENTS.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $415,302

Program Service Revenue $20,000

Investment Income $42,535

Other Revenue $-9,791

TOTAL REVENUE $468,046

Expense Breakdown

Grants Paid $59,659

Salaries & Benefits $314,347

Fundraising Expenses $90,486

Program Expenses $653,050

Other Expenses $475,168

TOTAL EXPENSES $849,174

Year-over-Year Comparison

	2025	2024	Change
Revenue	$468,046	$407,104	+0.1%
Expenses	$849,174	$914,008	-0.1%
Net Income	$-381,128	$-506,904	-0.2%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$86,240

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
KYLE UNDERWOOD	CHAIR	2.00	Officer Director	$0	$0	$0
ELIA HENRIQUEZ	VICE CHAIR	2.00	Officer Director	$0	$0	$0
KEVIN FUHRMANN	TREASURER	2.00	Officer Director	$0	$0	$0
JENN ESTEVEZ	SECRETARY	2.00	Officer Director	$0	$0	$0
JOHN BARBOUR	DIRECTOR	1.00	Director	$0	$0	$0
CORY BRIDDLE	DIRECTOR	2.00	Director	$0	$0	$0
AARON BYZAK	DIRECTOR	2.00	Director	$0	$0	$0
ANNE AND JEFF DENNEEN	DIRECTOR	2.00	Director	$0	$0	$0
KATEY HOFFMAN	DIRECTOR	1.00	Director	$0	$0	$0
VICTOR NWABA	DIRECTOR	1.00	Director	$0	$0	$0
ASHLY WIEBELT	DIRECTOR	1.00	Director	$0	$0	$0
DAIZA GORDON	DIRECTOR	1.00	Director	$0	$0	$0
KYRAH JONES	DIRECTOR	2.00	Director	$0	$0	$0
JEANETTE HENRIQUEZ	DIRECTOR	1.00	Director	$0	$0	$0
MIRIAM PEDROZA	DIRECTOR (UNTIL 3/31/25)	1.00	Director	$0	$0	$0
KRISTIN MCKAY	PRESIDENT	40.00	Officer	$86,240	$0	$86,240

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$468,046	$849,174	$1,882,123	$-381,128
2024	$407,104	$914,008	$2,316,110	$-506,904
2023	$301,636	$439,138	$2,584,090	$-137,502
2022	$364,179	$246,998	$2,679,056	$117,181
2021	$1,330,220	$161,977	$2,579,826	$1,168,243
2020	$316,382	$138,566	$1,387,438	$177,816
2019	$417,701	$221,814	$1,210,717	$195,887
2018	$1,454,996	$1,391,728	$1,021,272	$63,268