BIOPONTIS ALLIANCE RARE DISEASE FOUNDATION INC

EIN: 464764835 501(c)(3)

RALEIGH, NC

Total Revenue
$94,725
Total Expenses
$96,516
Total Assets
$19,562
Net Assets
$1,233
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2014
Legal Domicile
NC
Principal Officer
ERIK TAMBUYZER PHD
Phone
9196240841
Tax Period
2019-01-01 to 2019-12-31

BIOPONTIS ALLIANCE RARE DISEASE FOUNDATION INC, founded in 2014, is a micro nonprofit that reported $95K in total revenue in fiscal year 2019. Revenue fell 55% from the prior year — a significant decline worth monitoring.

Mission

THE BIOPONTIS ALLIANCE RARE DISEASE FOUNDATION IS A NONPROFIT CORPORATION THAT BRINGS TOGETHER RARE DISEASE PATIENT ADVOCACY ORGANIZATIONS, ACADEMIC RESEARCH CENTERS, CONTRACT RESEARCH COMPANIES, AND THE BIOMEDICAL INDUSTRY TO TRANSLATE RESEARCH INTO POTENTIAL TREATMENTS BY FOCUSING ON THE EARLIEST STAGES OF PRODUCT DEVELOPMENT.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2019)

Revenue Breakdown

Contributions & Grants $91,725
Program Service Revenue $0
Investment Income $0
Other Revenue $3,000
TOTAL REVENUE $94,725

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $876
Program Expenses $36,517
Other Expenses $96,516
TOTAL EXPENSES $96,516

Year-over-Year Comparison

2019 2018 Change
Revenue $94,725 $211,351 -0.6%
Expenses $96,516 $225,430 -0.6%
Net Income $-1,791 $-14,079 -0.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
7
Independent Members
7
Employees
N/A
Volunteers
20

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$36,000
Total Directors
7
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
GILBERT CHIP CARNATHAN PHD CHIEF SCIENT 10.00
Officer
$36,000 $0 $36,000
SUSAN R KAHN DIRECTOR & T 3.00
Officer Director
$0 $0 $0
HOWARD LIEBMAN DIRECTOR 3.00
Director
$0 $0 $0
JEAN-JACQUES CASSIMAN MD DIRECTOR 3.00
Director
$0 $0 $0
WARREN STRITTMATTER MD DIRECTOR 3.00
Director
$0 $0 $0
CHRISTIAN POLICARD PHD DIRECTOR 3.00
Director
$0 $0 $0
DAVID SPENCER PHD VICE-CHAIRPE 5.00
Officer Director
$0 $0 $0
ERIK TAMBUYZER PHD CHAIRPERSON 15.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2019 $94,725 $96,516 $19,562 $-1,791
2018 $211,351 $225,430 $3,273 $-14,079
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