SNYDER-ROBINSON FOUNDATION

EIN: 465662435 501(c)(3) Medical Research

McLean, VA

Total Revenue
$28,210
Total Expenses
$171,989
Total Assets
$14,489
Net Assets
$14,489
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Financial Trends

Organization Details

Formation Year
2014
Legal Domicile
VA
Principal Officer
Michael Raymond
Phone
7032030215
Tax Period
2023-04-01 to 2024-03-31

SNYDER-ROBINSON FOUNDATION, founded in 2014, is a micro nonprofit in the Medical Research sector that reported $28K in total revenue in fiscal year 2023. Revenue fell 52% from the prior year — a significant decline worth monitoring. Expenses of $172K exceeded revenue, resulting in a 510% operating deficit.

Mission

We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome ("SRS") and related disorders; and for related scientific and charitable purposes.

Program Service Accomplishments

Program 1
Expenses: $122,351 Revenue: $0

Snyder-Robinson Syndrome Patient Registry and Natural History Study (ongoing): This IRB-approved study gathers medical data from SRS patients to help researchers to understand SRS and to develop...

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Snyder-Robinson Syndrome Patient Registry and Natural History Study (ongoing): This IRB-approved study gathers medical data from SRS patients to help researchers to understand SRS and to develop treatments for SRS. This includes salary expense for our Director of Research and related expenses. This line also includes related expenses incurred to find treatments for SRS patients.

Program 2
Expenses: $45,095 Revenue: $0

Education/Website: We incurred expenses to maintain a website and create digital content to share information about SRS, including information for health care providers. This includes payroll expense...

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Education/Website: We incurred expenses to maintain a website and create digital content to share information about SRS, including information for health care providers. This includes payroll expense for our Director of Membership. Our website may be found at www.snyder-robinson.org.

Program 3
Expenses: $0 Revenue: $0

N/A

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $28,210
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $28,210

Expense Breakdown

Grants Paid $0
Salaries & Benefits $131,215
Fundraising Expenses $227
Program Expenses $167,446
Other Expenses $40,774
TOTAL EXPENSES $171,989

Year-over-Year Comparison

2023 2022 Change
Revenue $28,210 $58,730 -0.5%
Expenses $171,989 $217,252 -0.2%
Net Income $-143,779 $-158,522 -0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
5
Independent Members
5
Employees
2
Volunteers
13

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$243,780
Total Directors
1
$0
Key Employees
2
$243,780
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Teri Koerner Director of Research 40
Officer Key Emp Highest
$81,260 $81,260 $162,520
Cameron Hancock Director of Business Development & Membership 20
Officer Key Emp
$40,630 $40,630 $81,260
Michael Raymond Executive Director 1
Officer Director
$0 $0 $0
Katia Luedtke General Counsel 1
Officer
$0 $0 $0
Frank Marchetti Chief Financial Officer 1
Officer
$0 $0 $0
Christopher Abbott Chief Information Officer 1
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $28,210 $171,989 $14,489 $-143,779
2023 $58,730 $217,252 $158,268 $-158,522
2022 $193,587 $164,907 $316,790 $28,680
2021 $280,812 $227,243 $288,110 $53,569
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