GRACE SCIENCE FOUNDATION

EIN: 465727883 501(c)(3) Medical Research

MENLO PARK, CA

Total Revenue
$943,011
Total Expenses
$1,519,386
Total Assets
$2,224,370
Net Assets
$2,223,366
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2014
Legal Domicile
CA
Principal Officer
MATTHEW R WILSEY
Phone
6507464591
Tax Period
2024-01-01 to 2024-12-31

GRACE SCIENCE FOUNDATION, founded in 2014, is a small nonprofit in the Medical Research sector that reported $943K in total revenue in fiscal year 2024. Revenue grew 14% year-over-year, indicating healthy expansion. Expenses of $1.5M exceeded revenue, resulting in a 61% operating deficit.

Mission

THE MISSION OF THE FOUNDATION IS TO SUPPORT AND FUND THE DEVELOPMENT OF LIFE-SAVING TREATMENT FOR PATIENTS THAT ARE DEFICIENT IN THE N-GLYCANESE ENZYME AND THOSE SUFFERING FROM RELATED GENETIC DISEASES. THE ACTIVITIES OF THE FOUNDATION WILL INVOLVE PROVIDING GRANT FUNDING TO HOSPITALS AND MEDICAL RESESARCH FACILITIES WHICH ARE CONDUCTING MEDICAL RESEARCH IN VARIOUS FIELDS RELATING TO THE SEARCH FOR UNDERSTNADING AND TREATMENT OF THIS CONDITION, FOSTERING COLLABORATION BETWEEN ACADEMIA, RESEARCH INSTITUTIONS, HOSPITALS, PRIVATE COMPANIES, AND GOVERNMENTAL AGENCIES.

Program Service Accomplishments

Program 1
Expenses: $452,697

Baylor College of Medicine NGLY1 Natural History Study (Bernhard Suter) Team is conducting a natural history study to define the clinical spectrum of the disease and its progression, and define...

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Baylor College of Medicine NGLY1 Natural History Study (Bernhard Suter) Team is conducting a natural history study to define the clinical spectrum of the disease and its progression, and define biomarker endpoints for use in therapeutic trials. This study is led by Dr. Bernhard Suter, MD, a child neurologist and medical geneticist. The study is collecting longitudinal measures of movement concurrently with clinical and biomarker measures to define aspects of gait and movement that are most affected in the disorder, characterize progression of the disease, select clinical features for performing longitudinal assessments, and inform clinical endpoint development for therapeutic trials.

Program 2
Expenses: $352,945

Psychogenics Inc. Team has imported and is analyzing mouse and rat models of NGLY1 Deficiency for testing of candidate therapies. Team has conducted several studies using an NGLY1 knockout rat model...

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Psychogenics Inc. Team has imported and is analyzing mouse and rat models of NGLY1 Deficiency for testing of candidate therapies. Team has conducted several studies using an NGLY1 knockout rat model to test phenotypic rescue using candidate small molecule therapies (both novel and approved drugs).

Program 3
Expenses: $203,574

THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER (YAN LAB) Team continues work generating and characterizing several mouse models of NGLY1 Deficiency, including models in which the gene is...

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THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER (YAN LAB) Team continues work generating and characterizing several mouse models of NGLY1 Deficiency, including models in which the gene is inactivated in certain tissues and conditionally after birth. These mouse models have allowed them to characterize neurological phenotypes including neuronal loss, neuropathological changes, inflammation, sensory and motor defects, and disease associated biomarkers, all of which are also observed in NGLY1 Deficiency patients These animal models provide a foundation for testing candidate therapies, including gene therapies and small molecule drugs. The team has also found that NGLY1 Deficiency in mice triggers a specific innate immune pathway mediated by the cGAS/STING pathway. Using genetic and pharmacological approaches, the team has uncovered three different targets that can be modulated to reduce disease associated phenotypes and improve survival.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $869,699
Program Service Revenue $0
Investment Income $73,312
Other Revenue $0
TOTAL REVENUE $943,011

Expense Breakdown

Grants Paid $1,342,330
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $1,391,084
Other Expenses $177,056
TOTAL EXPENSES $1,519,386

Year-over-Year Comparison

2024 2023 Change
Revenue $943,011 $826,626 +0.1%
Expenses $1,519,386 $1,289,174 +0.2%
Net Income $-576,375 $-462,548 +0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
7
Independent Members
7
Employees
N/A
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
7
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Matthew Wilsey President 0.0
Officer Director
$0 $0 $0
Egon Durban Chief Financial Officer 0.0
Officer Director
$0 $0 $0
KEN DRAZAN Secretary 0.0
Officer Director
$0 $0 $0
Pete Briger Director 0.0
Director
$0 $0 $0
Chelsea Clinton Director 0.0
Director
$0 $0 $0
J Taylor Crandall Director 0.0
Director
$0 $0 $0
Elle Stephens Director 0.0
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $943,011 $1,519,386 $2,224,370 $-576,375
2023 $826,626 $1,289,174 $2,790,274 $-462,548
2022 $1,236,228 $1,218,482 $3,183,591 $17,746
2021 $1,327,113 $1,113,132 $3,128,030 $213,981
2020 $1,454,180 $1,452,901 $2,884,506 $1,279
2019 $1,561,302 $839,395 $2,889,615 $721,907
2018 $1,199,988 $1,074,064 $2,196,374 $125,924
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