Decoding Developmental Epilepsies DBA International SCN8A Alliance (EIN 471822559) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2019

Legal Domicile

Principal Officer

Gabrielle A Conecker

Phone

2022500599

Tax Period

2023-01-01 to 2023-12-31

Decoding Developmental Epilepsies DBA International SCN8A Alliance, founded in 2019, is a small nonprofit in the Diseases & Disorders sector that reported $586K in total revenue in fiscal year 2023. Revenue decreased 7% compared to the prior year. The organization ran a surplus of $276K, a strong 47% operating margin.

Mission

WE WORK COLLABORATIVELY TO ACCELERATE THE PACE OF SCIENCE ON SCN8A AND RELATED DISORDERS IN ORDER TO BRING HOPE AND IMPROVED OUTCOMES FOR ALL THOSE LIVING WITH RARE EPILEPSIES AND THEIR FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $585,540

Program Service Revenue $0

Investment Income $0

Other Revenue $680

TOTAL REVENUE $586,220

Expense Breakdown

Grants Paid $5,900

Salaries & Benefits $139,811

Fundraising Expenses $18,516

Program Expenses $251,552

Other Expenses $164,996

TOTAL EXPENSES $310,707

Year-over-Year Comparison

	2023	2022	Change
Revenue	$586,220	$629,384	-0.1%
Expenses	$310,707	$260,064	+0.2%
Net Income	$275,513	$369,320	-0.3%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$111,005

Total Directors

$111,005

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Gabi Conecker	Executive Dir.	40.00	Officer Director	$100,000	$0	$100,000
JayEtta Hecker	Chairman	40.00	Officer Director	$11,005	$0	$11,005
Michael Halpern	Director	1.00	Director	$0	$0	$0
Madeleine Oudin	Director	1.00	Director	$0	$0	$0
Eric Wengert	Director	1.00	Director	$0	$0	$0
Mohammad Nabeel Miskeenyar	Director	1.00	Director	$0	$0	$0
Mandy Mills	Director	1.00	Director	$0	$0	$0
Michael Hammer	Director	1.00	Director	$0	$0	$0
Ariel Gibbons	Director	1.00	Director	$0	$0	$0
Anne Thompson Heller	Director	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$586,220	$310,707	$689,190	$275,513
2022	$629,384	$260,064	$453,877	$369,320
2021	$328,884	$218,240	$202,042	$110,644

Decoding Developmental Epilepsies DBA International SCN8A Alliance