THE FTD DISORDERS REGISTRY LLC (EIN 473601782) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2015

Legal Domicile

Principal Officer

SUSAN L-J DICKINSON

Phone

2675147221

Tax Period

2024-07-01 to 2025-06-30

THE FTD DISORDERS REGISTRY LLC, founded in 2015, is a small nonprofit in the Diseases & Disorders sector that reported $871K in total revenue in fiscal year 2024. Revenue decreased 16% compared to the prior year. Net assets of $2.0M represent 27 months of operating reserves.

Mission

PROVIDE A PATIENT REGISTRY FOR THOSE AFFLICTED BY FTD, A DEVASTATING NEURODEGENERATIVE DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $800,479

Program Service Revenue $0

Investment Income $70,685

Other Revenue $0

TOTAL REVENUE $871,164

Expense Breakdown

Grants Paid $0

Salaries & Benefits $561,410

Fundraising Expenses $0

Program Expenses $633,262

Other Expenses $331,093

TOTAL EXPENSES $892,503

Year-over-Year Comparison

	2024	2023	Change
Revenue	$871,164	$1,031,597	-0.2%
Expenses	$892,503	$955,293	-0.1%
Net Income	$-21,339	$76,304	-1.3%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

N/A

Employees

Volunteers

N/A

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$877,662

Total Directors

$495,014

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
SUSAN DICKINSON	DIRECTOR-AFTD MEMBER REPRE	4.00	Officer Director	$0	$29,988	$350,014
LAURA MITIC	DIRECTOR-BLUEFIELD MEMBER	4.00	Director	$0	$0	$145,000
PENNY DACKS	PRESIDENT	10.00	Officer	$0	$17,572	$244,063
MITCH APPLESON	COO AND SECRETARY	2.00	Officer	$0	$28,570	$283,585
CARRIE MILLIARD	REGISTRY DIRECTOR	40.00	Highest	$149,435	$17,265	$166,700

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$871,164	$892,503	$2,218,789	$-21,339
2024	$1,031,597	$955,293	$2,410,986	$76,304
2023	$1,600,782	$759,009	$2,043,499	$841,773
2022	$727,717	$734,316	$1,122,791	$-6,599
2020	$543,584	$747,952	$1,086,052	$-204,368
2019	$762,008	$537,839	$1,250,745	$224,169
2018	$489,156	$369,382	$1,008,189	$119,774

THE FTD DISORDERS REGISTRY LLC