National Ataxia Foundation Group Return

EIN: 510144795 501(c)(3)

Minneapolis, MN

Total Revenue
$5,620
Total Expenses
$15,909
Total Assets
N/A
Net Assets
N/A
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Financial Trends

Organization Details

Formation Year
1957
Legal Domicile
MN
Principal Officer
Andrew Rosen
Phone
7635530020
Tax Period
2020-01-01 to 2020-12-31

National Ataxia Foundation Group Return, founded in 1957, is a micro nonprofit that reported $6K in total revenue in fiscal year 2020. Revenue fell 31% from the prior year — a significant decline worth monitoring. Expenses of $16K exceeded revenue, resulting in a 183% operating deficit.

Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Program Service Accomplishments

Program 1
Expenses: $15,364

The National Ataxia Foundation encourages and promotes research on hereditary and sporadic ataxias through three research funding programs: (1) ataxia "seed money" for research grants; (2) ataxia...

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The National Ataxia Foundation encourages and promotes research on hereditary and sporadic ataxias through three research funding programs: (1) ataxia "seed money" for research grants; (2) ataxia fellowship awards;, and (3) ataxia young investigator awards. In addition, due to an anonymous donor, the Foundation was able to establish two additional research programs in 2011, the pioneer SCA Translational Research Award: one year $100,000 grants focusing on research investigations that will facilitate the development of treatments for the Spinocerebellar Ataxias (SCAs) and the Young Investigator (YI-SCA) Award for SCA Research: one year grants of $50,000 awarded to encourage young investigators to pursue a career in spinocerebellar ataxia (SCA) research.The Foundation grants funds for new and innovative research projects which have the potential to expand into major, multi-disciplinary research programs supported by government or private agencies. In addition, the Foundation helps to coordinate research efforts into the causes and early detection of ataxia through existing research centers throughout the world and supports scientific conferences on the ataxias.

Program 2

Increased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health...

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Increased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health professionals and the general public. The Foundation publishes 'Generations', a quarterly newsletter devoted to ataxia related articles, including the latest research and other information beneficial to individuals with ataxia. Other educational materials, such as books, videos and fact sheets are provided to persons with ataxia, family members and health care professionals on a "direct request" basis through the NAF office. The annual membership meeting, and sponsorship an/or/participation in national and international meetings, symposiums and seminars also serve to increase ataxia awareness.The National Ataxia Foundation attempts to locate people and families with hereditary and sporadic ataxia in order to provide them with information about ataxia. This is accomplished by providing updated information about ataxia to the general public by maintaining a website, creating public service announcements and publishing 'Generations'. The Foundation assists individuals and families by identifying clinical resources and making appropriate referrals for neurological care, genetic counseling and gene testing. The Foundation also assists people with locating resources within their own communities, including support groups.

Program 3
Expenses: $545

The National Ataxia Foundation attempts to locate people with ataxia and their families in order to provide them with information and services. Offers each year a 3 day membership meeting which...

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The National Ataxia Foundation attempts to locate people with ataxia and their families in order to provide them with information and services. Offers each year a 3 day membership meeting which provides ataxia families with information on cutting-edge ataxia research efforts, information relating to specific types of ataxia, and a variety of topics of concern within the ataxia community. Development of local ataxia support groups to provide local ataxia families with the latest information on ataxia, as well as providing a setting for families to learn, share and network.

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Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2020)

Revenue Breakdown

Contributions & Grants $5,620
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $5,620

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $15,909
Other Expenses $15,909
TOTAL EXPENSES $15,909

Year-over-Year Comparison

2020 2019 Change
Revenue $5,620 $8,160 -0.3%
Expenses $15,909 $9,788 +0.6%
Net Income $-10,289 $-1,628 +5.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
4
Independent Members
4
Employees
N/A
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
4
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Carolyn Davis President-Chesapeake 2.00
Officer Director
$0 $0 $0
Joe DeCrescenzo Treasurer-Chesapeke 2.00
Officer Director
$0 $0 $0
Camille Daglio President-Mississippi 2.00
Officer Director
$0 $0 $0
Peter Hanks Treasurer-Mississippi 2.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2020 $5,620 $15,909 No data $-10,289
2019 $8,160 $9,788 $10,289 $-1,628
2018 $8,945 $9,158 $17,985 $-213
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