NATIONAL DOWN SYNDROME CONGRESS (EIN 510163631) - Form 990 Financial Analysis & Trantor Score

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

1974

Legal Domicile

Principal Officer

ANDRE PINEDA

Phone

7706049500

Tax Period

2025-01-01 to 2025-12-31

NATIONAL DOWN SYNDROME CONGRESS, founded in 1974, is a community nonprofit in the Diseases & Disorders sector that reported $2.1M in total revenue in fiscal year 2025. Revenue surged 21% from the prior year, signaling strong growth momentum. Expenses of $1.9M left a modest 10% surplus.

Mission

THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $982,801

Program Service Revenue $903,422

Investment Income $30,980

Other Revenue $174,264

TOTAL REVENUE $2,091,467

Expense Breakdown

Grants Paid $42,800

Salaries & Benefits $643,760

Fundraising Expenses $280,047

Program Expenses $1,464,407

Other Expenses $1,123,032

TOTAL EXPENSES $1,874,625

Year-over-Year Comparison

	2025	2024	Change
Revenue	$2,091,467	$1,734,848	+0.2%
Expenses	$1,874,625	$1,653,010	+0.1%
Net Income	$216,842	$81,838	+1.6%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

795

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$193,886

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
SEAN SMITH	PRESIDENT	10.00	Officer Director	$0	$0	$0
ANTHONY ZANFORDINO	1ST VICE PRESIDENT	4.00	Officer Director	$0	$0	$0
BEAU BROOKS	2ND VICE PRESIDENT	6.00	Officer Director	$0	$0	$0
NICOLE BAUMER	3RD VICE PRESIDENT	1.00	Officer Director	$0	$0	$0
ZACHARY CARROLL	4TH VICE PRESIDENT	1.00	Officer Director	$0	$0	$0
ANDRE PINEDA	TREASURER	6.00	Officer Director	$0	$0	$0
DAVID CHAPLIN	SECRETARY	2.00	Officer Director	$0	$0	$0
KISHORE VELLODY	PAST PRESIDENT	4.00	Officer Director	$0	$0	$0
BRADLEY CARLISLE	DIRECTOR	0.50	Director	$0	$0	$0
ANNA EBENSEN	DIRECTOR	0.50	Director	$0	$0	$0
BETH FORAKER	DIRECTOR	0.50	Director	$0	$0	$0
HANNAH LACOUR	DIRECTOR	0.50	Director	$0	$0	$0
CANDICE MOFFIT	DIRECTOR	0.50	Director	$0	$0	$0
JEFF SCOTT	DIRECTOR	0.50	Director	$0	$0	$0
NOEMI SPINAZZI	DIRECTOR	0.50	Director	$0	$0	$0
CLAIR WALLACE	DIRECTOR	0.50	Director	$0	$0	$0
JAMES HUDSON	EXECUTIVE DIRECTOR	40.00	Officer	$157,243	$36,643	$193,886

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$2,091,467	$1,874,625	$744,605	$216,842
2024	$1,734,848	$1,653,010	$495,809	$81,838
2023	$1,931,676	$1,934,348	$438,794	$-2,672
2022	$1,419,457	$1,502,839	$305,791	$-83,382
2022	$1,401,237	$1,586,655	$420,223	$-185,418
2021	$732,155	$930,611	$533,990	$-198,456
2020	$876,542	$961,366	$765,872	$-84,824
2019	$1,428,349	$1,486,527	$850,251	$-58,178
2018	$1,510,081	$1,294,970	$844,071	$215,111

NATIONAL DOWN SYNDROME CONGRESS