CYSTIC FIBROSIS RESEARCH INSTITUTE

EIN: 510169988 501(c)(3) Medical Research

PALO ALTO, CA

Total Revenue
$2,055,947
Total Expenses
$1,594,228
Total Assets
$4,205,242
Net Assets
$4,175,381
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1975
Legal Domicile
CA
Principal Officer
BILL HULT
Phone
6506657576
Tax Period
2024-01-01 to 2024-12-31

CYSTIC FIBROSIS RESEARCH INSTITUTE, founded in 1975, is a community nonprofit in the Medical Research sector that reported $2.1M in total revenue in fiscal year 2024. The organization ran a surplus of $462K, a strong 22% operating margin.

Mission

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,916,352
Program Service Revenue $13,707
Investment Income $124,582
Other Revenue $1,306
TOTAL REVENUE $2,055,947

Expense Breakdown

Grants Paid $528,720
Salaries & Benefits $471,713
Fundraising Expenses $134,087
Program Expenses $1,345,841
Other Expenses $593,795
TOTAL EXPENSES $1,594,228

Year-over-Year Comparison

2024 2023 Change
Revenue $2,055,947 $2,150,402 0.0%
Expenses $1,594,228 $1,617,754 0.0%
Net Income $461,719 $532,648 -0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Governance

Voting Members
13
Independent Members
13
Employees
7
Volunteers
150

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$116,238
Total Directors
13
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
FRANCINE BION BOARD MEMBER 1.50
Director
$0 $0 $0
ZOE DAVIES BOARD SECRETARY 1.50
Officer Director
$0 $0 $0
JULIE DESCH BOARD MEMBER 1.50
Director
$0 $0 $0
ROHINI THUKRAL MCKEE BOARD MEMBER 1.50
Director
$0 $0 $0
OSCAR A FLAMENCO BOARD TREASURER 1.50
Officer Director
$0 $0 $0
ELYSE ELCONIN GOLDBERG BOARD MEMBER 1.50
Director
$0 $0 $0
JEAN HANLEY BOARD MEMBER 1.50
Director
$0 $0 $0
BILL HULT PRESIDENT 1.50
Officer Director
$0 $0 $0
JESSICA MARTENS VICE PRESIDENT 1.50
Officer Director
$0 $0 $0
DOUG MODLIN BOARD MEMBER 1.50
Director
$0 $0 $0
RICHARD B MOSS BOARD MEMBER 1.50
Director
$0 $0 $0
AREK PUZIA BOARD MEMBER 1.50
Director
$0 $0 $0
AHMET ULUER BOARD MEMBER 1.50
Director
$0 $0 $0
SIRI VAETH EXECUTIVE DIRECTOR 40.00
Officer
$116,238 $0 $116,238
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $2,055,947 $1,594,228 $4,205,242 $461,719
2023 $2,150,402 $1,617,754 $3,727,841 $532,648
2022 $1,350,296 $1,525,935 $3,199,342 $-175,639
2021 $1,700,235 $1,149,954 $3,446,356 $550,281
2020 $1,304,810 $1,070,700 $2,964,531 $234,110
2019 $1,463,124 $1,345,742 $2,678,794 $117,382
2018 $1,750,385 $1,422,838 $2,572,885 $327,547
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